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» LymeNet Flash » Questions and Discussion » Medical Questions » having difficulty coping altogether!

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Author Topic: having difficulty coping altogether!
i want help
LymeNet Contributor
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Have been having a great attitude so far but enough is enough--is there a hosptial someone can check into for treatment of lyme?

I feel unable to cope anymore.
thank you

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firepipersnurse
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hi there,
i see you post quite frequently. have you been diagnosed with lyme? are you undergoing treatment? i don't quite understand your post but i know you have been quite anxious. have you seen a regular pcp yet to rule out other causes?

hang in there, i know it's difficult but at times we can really get ourselves worked up about alot of things

firepiper

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seibertneurolyme
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Unfortunately the answer is no. There is currently no hospital that treats chronic Lyme patients. If you have an accute problem such as encephalitis, then you would be treated short-term, but there is not anywhere that I know of that treats patients who require long-term antibiotics.

There has been talk of building such a facility, but it does not exist currently.

Hang in there.

Bea Seibert

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northstar
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IWH,
Please hang in there tonight. I do not know of any hospitals that treat lyme, and honestly, after reading some of the ER experiences, that may not be the most helpful place for you.

Could you help us understand?

Are you under treatment?

Do you have a llmd?

Do you friends or family nearby to talk to right now?

I have no idea where you live, so cannot even say "try a short walk and fresh air". Are you on East or West Coast?

Can you call your dr's night number?

Talk to us.

N/

Posts: 1331 | From hither and yonder | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
i want help
LymeNet Contributor
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I am not under care of a LLMD yet and every day new symptom that I cannot manage alone.

such as today the air hunger. or swallowing difficulties. It is so scary. This is what I mean about getting to a hospital to get some a plan and care.

does anyone know that these are pretty much only /particular to lyme symptoms or TBD symptoms--? (along with my shin splints, joint pain, floaters, chills, low body temp, sleep difficulties, anxiety attacks??? stutter/confusion (helped with 2 z packs)

can everyone see why I am so tired/confused
thank you

doesn't it seem I have lyme?

appt is sept 13 seems far away --

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i want help
LymeNet Contributor
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live in massachusetts (could call my pcp) but she is not sure what is wrong with me

I really am having difficulties

thank you all you are all so helpful [group hug]

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northstar
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There were many times I just wanted to crawl into a hole, and never exist again.

Then the sun rose the next day, and nothing had changed. Just more pills and sickness. But I had to keep walking, which is really just putting one foot at a time, onto the ground.

But it is ok and normal, to just slump over in temporary defeat, when it is the darkest.

Stay with the group here, to walk with you now.

I will put you in my prayers tonight.

N/

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northstar
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Is it physical, or just plain worn out from always trying to
get better?
N/

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i want help
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I am very thankful

I find prayer very helpful. I am sure that will help me.

thank you so very much,
kristin [Smile]

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trueblue
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I have no medical training but have Lyme and Babesia and what you're saying sounds very very familiar to me.

I understand. I don;t know what to say to help though. Hang in there for now, everyday that passes the appt is that much closer it will come faster than you think.

I know from experience.


Did the kolonopin help your breathing?



I had that gasping thing last week, I think... really bad, it helped. I don't know if it was Babs or panic but I've only had one other time that happened in my life. Can someone only have 2 panic attacks in their life and a few year apart?


[group hug]

--------------------
more light, more love
more truth and more innovation

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i want help
LymeNet Contributor
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an accumulation of an incredible amount of challenges that are non stop ..

not being diagnosed or under the care of a specialist..

tonite the breaking point is the air hunger.

no one has actually said yet that it is not dangerous, will pass etc..

it is very uncomfortable.

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trueblue
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IWH,
Why don't you come over to the lymechat? there are more people there that can help.

http://www.lymediseaseaudio.com/lymechat.htm

type in your name and click on enter in the main screen

--------------------
more light, more love
more truth and more innovation

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3ktykatz
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Kristin,

I'm going to bed soon, so I'll send you a "dream cat" to curl up with you as soon as I go to sleep. Lie down, grab a pillow, and imagine a fluffy purring kitty (or dog, if you insist) in your arms.

Can you tell I'm a big believer in pet therapy?

Kitty hugs and kissies,
3ktykatz

--------------------
3ktykatz + 1 new kitten

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i want help
LymeNet Contributor
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well thank you for that pet therapy, I do have two dogs I love very much so I guess they would do! [Wink] good night [sleepy]
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groovy2
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Hi Help

Air hunger is caused by Babs-- For Sure--

Swallowing problem is most likely too--

This is what you should do--

Write out your Symptoms List--
give ALL of your symptoms

Use DR B symptom List as a guide--
give complete details
-not just Yes -No --

Write your symptoms list so it is
clear and easy to read --

Doing this list will save you months of time-
and get you better answers to your questions-

If you want a sample Symptoms list to look at
PM me and I will send you mine--Jay--

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groovy2
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Hi Help

Your PM mail box is full--Jay--

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i want help
LymeNet Contributor
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fixed it thank you
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i want help
LymeNet Contributor
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woke up with that sleep/wake paraylysis and felt difficult to get air so went to ER to have them check my oxygenation levels

they were fine

sense from all over annoyance about this condition .. husband is fed up

and even thought I heard the nurses joking that I should be in the "ambulance bay"

could have been about something else but I just decided to leave after hearing levels were good. that is all they really could help me with anyway, the last time I went in to ER they diagnosed me with "joint pain"

though urged me to follow up on the lyme...

it is hard to feel sick every day but worse when there is no support-then the worse you feel ---which is a vicous cycle because then it makes your "non support" people even MORE annoyed....

I will have to work really hard on days like this to keep my spirits up (which believe me they normally are!)

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Vermont_Lymie
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quote:
Originally posted by i want help:

I feel unable to cope anymore.
thank you

Hi Kristin, I hope you feel better tomorrow.
Lyme's impacts change every day. I know how you feel.

Frankly, it took a long time to get an appt with a LLMD, and I could not wait for my appt with how I was feeling. So I started antibiotics before my appt, which was 10 days in the future. Although my family was opposed to this, it helped me tremendously. If you read Dr. B's guidelines that another responder posted, perhaps your regular doctor would be responsive enough to you to assist and give you a script for some doxy or amoxy. Take care and be well!

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char
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Sorry you are in the position of waiting it out til the appt. I remember the terrible suspense.

I have mild air hunger...an albuterol inhaler has helped at nighttime.

This is ragweed season and that can make breathing worse. I just read that the pollen can blow 100 miles from the country into a city and cause trouble for folks.

Maybe some over the counter allergy like claritin?

Praying for you.

Char

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5dana8
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Hey i want help,

Have you looked into salt pipes or neti pots? Have helped some people. Maybe this may help till you get to your LLMD appointment.

here's the link:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=039763

--------------------
5dana8

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i want help
LymeNet Contributor
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thanks again to all of you

i honestly do not know what i would be doing without all of this input

I feel sorry for us all because this is so darn difficult in so many different ways, physical, financial, relational, emotional/mental

it takes quite a toll- some days you feel it more than others.. it has been six weeks plus for me of this-but started not feeling well I think it was three or four years ago it must have gone into remission....

well a great bug [group hug] to all of you for being so darn kind

this what everyone can use -and what about a nice big [Smile]

and finally, my favorite [hi]
he seems to put a smile on my face anyhow
kristin

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