posted
hi there, i see you post quite frequently. have you been diagnosed with lyme? are you undergoing treatment? i don't quite understand your post but i know you have been quite anxious. have you seen a regular pcp yet to rule out other causes?
hang in there, i know it's difficult but at times we can really get ourselves worked up about alot of things
firepiper
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
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posted
Unfortunately the answer is no. There is currently no hospital that treats chronic Lyme patients. If you have an accute problem such as encephalitis, then you would be treated short-term, but there is not anywhere that I know of that treats patients who require long-term antibiotics.
There has been talk of building such a facility, but it does not exist currently.
Hang in there.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
IWH, Please hang in there tonight. I do not know of any hospitals that treat lyme, and honestly, after reading some of the ER experiences, that may not be the most helpful place for you.
Could you help us understand?
Are you under treatment?
Do you have a llmd?
Do you friends or family nearby to talk to right now?
I have no idea where you live, so cannot even say "try a short walk and fresh air". Are you on East or West Coast?
Can you call your dr's night number?
Talk to us.
N/
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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posted
I am not under care of a LLMD yet and every day new symptom that I cannot manage alone.
such as today the air hunger. or swallowing difficulties. It is so scary. This is what I mean about getting to a hospital to get some a plan and care.
does anyone know that these are pretty much only /particular to lyme symptoms or TBD symptoms--? (along with my shin splints, joint pain, floaters, chills, low body temp, sleep difficulties, anxiety attacks??? stutter/confusion (helped with 2 z packs)
can everyone see why I am so tired/confused thank you
doesn't it seem I have lyme?
appt is sept 13 seems far away --
Posts: 225 | From home | Registered: Aug 2006
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posted
live in massachusetts (could call my pcp) but she is not sure what is wrong with me
I really am having difficulties
thank you all you are all so helpful Posts: 225 | From home | Registered: Aug 2006
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
There were many times I just wanted to crawl into a hole, and never exist again.
Then the sun rose the next day, and nothing had changed. Just more pills and sickness. But I had to keep walking, which is really just putting one foot at a time, onto the ground.
But it is ok and normal, to just slump over in temporary defeat, when it is the darkest.
Stay with the group here, to walk with you now.
I will put you in my prayers tonight.
N/
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Is it physical, or just plain worn out from always trying to get better? N/
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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I find prayer very helpful. I am sure that will help me.
thank you so very much, kristin Posts: 225 | From home | Registered: Aug 2006
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I have no medical training but have Lyme and Babesia and what you're saying sounds very very familiar to me.
I understand. I don;t know what to say to help though. Hang in there for now, everyday that passes the appt is that much closer it will come faster than you think.
I know from experience.
Did the kolonopin help your breathing?
I had that gasping thing last week, I think... really bad, it helped. I don't know if it was Babs or panic but I've only had one other time that happened in my life. Can someone only have 2 panic attacks in their life and a few year apart?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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type in your name and click on enter in the main screen
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I'm going to bed soon, so I'll send you a "dream cat" to curl up with you as soon as I go to sleep. Lie down, grab a pillow, and imagine a fluffy purring kitty (or dog, if you insist) in your arms.
Can you tell I'm a big believer in pet therapy?
Kitty hugs and kissies, 3ktykatz
-------------------- 3ktykatz + 1 new kitten Posts: 24 | From Alabama | Registered: Jul 2006
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posted
well thank you for that pet therapy, I do have two dogs I love very much so I guess they would do! good night Posts: 225 | From home | Registered: Aug 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Help
Air hunger is caused by Babs-- For Sure--
Swallowing problem is most likely too--
This is what you should do--
Write out your Symptoms List-- give ALL of your symptoms
Use DR B symptom List as a guide-- give complete details -not just Yes -No --
Write your symptoms list so it is clear and easy to read --
Doing this list will save you months of time- and get you better answers to your questions-
If you want a sample Symptoms list to look at PM me and I will send you mine--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Help
Your PM mail box is full--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
woke up with that sleep/wake paraylysis and felt difficult to get air so went to ER to have them check my oxygenation levels
they were fine
sense from all over annoyance about this condition .. husband is fed up
and even thought I heard the nurses joking that I should be in the "ambulance bay"
could have been about something else but I just decided to leave after hearing levels were good. that is all they really could help me with anyway, the last time I went in to ER they diagnosed me with "joint pain"
though urged me to follow up on the lyme...
it is hard to feel sick every day but worse when there is no support-then the worse you feel ---which is a vicous cycle because then it makes your "non support" people even MORE annoyed....
I will have to work really hard on days like this to keep my spirits up (which believe me they normally are!)
Posts: 225 | From home | Registered: Aug 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by i want help: I feel unable to cope anymore. thank you
Hi Kristin, I hope you feel better tomorrow. Lyme's impacts change every day. I know how you feel.
Frankly, it took a long time to get an appt with a LLMD, and I could not wait for my appt with how I was feeling. So I started antibiotics before my appt, which was 10 days in the future. Although my family was opposed to this, it helped me tremendously. If you read Dr. B's guidelines that another responder posted, perhaps your regular doctor would be responsive enough to you to assist and give you a script for some doxy or amoxy. Take care and be well!
Posts: 2557 | From home | Registered: Aug 2006
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Sorry you are in the position of waiting it out til the appt. I remember the terrible suspense.
I have mild air hunger...an albuterol inhaler has helped at nighttime.
This is ragweed season and that can make breathing worse. I just read that the pollen can blow 100 miles from the country into a city and cause trouble for folks.
Maybe some over the counter allergy like claritin?
i honestly do not know what i would be doing without all of this input
I feel sorry for us all because this is so darn difficult in so many different ways, physical, financial, relational, emotional/mental
it takes quite a toll- some days you feel it more than others.. it has been six weeks plus for me of this-but started not feeling well I think it was three or four years ago it must have gone into remission....
well a great bug to all of you for being so darn kind
this what everyone can use -and what about a nice big
and finally, my favorite he seems to put a smile on my face anyhow kristin
Posts: 225 | From home | Registered: Aug 2006
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