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» LymeNet Flash » Questions and Discussion » Medical Questions » new to this and need some help

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Author Topic: new to this and need some help
Junior Member
Member # 9924

Icon 1 posted      Profile for zephyrdog     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi, new to this
Looking for some advice, have many of the symptoms of lyme -
Very tiered all the time, I'm a carpenter and am having trouble making it though a day at work
Stiff neck and some swelling in the limfnods
Mild headachs
Memory loses???
Upper chest pains, like cramping
Restless leg syndrome (don't know if that's a symptom)
Mood swings, irritability
Too much sleep or insomnia
Difficulty falling or staying asleep
Panic attacks, anxiety, I have had this for years and an on 10mg. paxel a day
Extreme fatigue
Much back pain
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Most of these symptoms I've had for months, but for the last few weeks the fatigue and joint pain are getting very bad
My left shoulder has a constant ach and at times goes down my arm, and have aching and clicking in my knees and ankles.
Have had blood tests for romatod arthritis, this was clean.
And the test for lyme came back negative, but still not convinced, I live in western ma. And know many people with lyme, and who I've talked to thinks it sounds like I have the disease.
I am looking for the best way to rule lyme in or out from here? Any help would be appreciated.

Posts: 5 | From ma | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130

Icon 1 posted      Profile for lymie tony z     Send New Private Message       Edit/Delete Post   Reply With Quote 
Negative lyme test results are not an indication that you do not have the disease.

A clinical diagnosis is necessary.
Go to seeking a LLMD(lyme literate medical doctor) in your area.

Mainstream medicine is not equipped nor interested enough in lyme disease to be of any use to anyone afflicted with this disease.

If and when you get an appointment with a llmd and start treatment...a good indication that you are infected is an initial worsening of symptoms and then an abatement of same.

This is called a Jarosch Herxeimer response to killing the bacteria(spirochete)...Borelia Burgdorferi.


I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Like lymie tony z said you need a llmd to rule out or confirm a lyme diagnosis...

If you have lyme a lyme literate dr is your best chance of regaining your health.

If you go to the seeking a dr section say you need a llmd and the area you are in and are willing to travel to.

(There are a shortage of llmds due to ignorance, arrogance and political bs)

Someone will pm you the info so make sure your pm is working.

Before the appointment I would make a list of all symptoms and if you can remember when each started.

Best wishes

multiple chemical sensitvity group:

Group for artists. All media welcome:

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator

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welcome! Did I send you my newbie links/advise; 15 pages? I try to send to all when I come on here daily, and directory will show 5 newbies names at a time; sometimes some slip thru the cracks.

The reason I ask is my extensive 125-150 symptom list another lymie came up with! Would help you a lot to get your thoughts together for your future LLMD appt.

After you get some names, CALL PROMPTLY; many take only ONE NEW PATIENT PER MONTH!

So there is a waiting time where you can spend reading up on the basics of lyme treatment by printing/reading Dr. Burrascano's 05 lyme treatment guidelines; also in the newbie links I sent you.

If you did not get these, please PM, private message, me using the 2 people standing together icon, and ask me to send it to you...ok!
Bettyg [Big Grin]

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