Topic: Lack sleep and tired all the time?Nightmares too
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I feel like crap the lastmonth or so was doing pretty good but now I seem to have low level ache and Iam tired alot and trying to work on house has been hard scraping painting rear porch.
I have had nightmares the last few nights wierd ones at that. Iam tired weather I sleep good or dont work? Just seem wore out. Iam on omnicef & biaxin xl. Taking all my probiotics too just seem tired I have been tested for babs = neg & when I go back this time to LLMD should have results of some extra blood work checking iron,mag,potassium.
I forgot any Ideas???
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
It could be the Biaxin. When I take Biaxin XL I can't sleep and I also get nightmares. Biaxin works well on the lyme and also on mycobacterium.
One other thing to consider if you are doing home remodeling and scraping paint, is there a chance you could be coming into contact with lead? Adults generally do not show as many signs of lead poisoning as children, but it can be serious, none the less. There are lots of opportunities to come into contact with chemicals/lead when doing a remodel, all can make you feel yuck.
You should be able to tell if there is lead in the old paint by looking at the cracking/peeling pattern, but you can have your environmental health agency do a test on the paint scrapings. In the meantime, if you really think lead is a possibility, stop scraping and get to the dr. for a lead blood level.
I have not taken omnicef, but again Biaxin could be a big culprit here.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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I'm so sorry you feel lousy. Similarly, I've had low level body ache, low level fever, low energy and wierd nightmares! Some dreams leave me feeling disturbed all day.
The fibromyalgia stuff always goes hand in hand with bad sleep patterns for me. in the past, the achiness would be self-limited to my eventual desperation for sleep overtaking me. Sometimes a p.m. epsom salts bath has helped. Right now, nothing does and I'm going onto one month of body aches. We are treating babesia with a slow abx buildup, but I can't help but wonder whether it means I'm on the right path or just the wrong path! I've also noticed that the flipping weather patterns are driving me crazy with swelling and sweating.
I'd be interested to know if the nightmare/sleep stuff is an indicator of some sort of deficiency or a byproduct of herxing/flaring/whatever....
I hope your bloodwork points you in a helpful direction. Let me know what works!
wiserforit
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lymemomtooo
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Tree, I have no good answer..sorry..But I also wonder about the paint..It is most likely toxic to you..Make sure you take something to detox.
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You guys all need too know I thank You!!!
The nightmares just started this month? went off clindamycin & on omnicef
also last 2 weekend scrape paint? Humm I did get a slight sore throat nostril area? Could be paint = nightmares?
Sleep problem started about {{your right}} about the time I started biaxin.
But the acheing low level tired all the time started when I went back on abx clindamycin.Which Iam off now 1.5 months
Thanks Guys
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Tree, sorry to read about how crappy you've felt lately.
Did you have a sleep apnea study done? Mine showed I stopped breathing, etc. Also, it showed the NIGHTMARE DREAMS OCCURRING for 30-60 minutes on the 2 nights I slept in hospital testing room.
Sleep study also showed I get NO DELTA 4 sleep; therefore, my body doesn't rejuvenate & feel refreshed when I get up!
Tired; allergist recently had me stop taking 15 of the supplements I was taking for 10 days then to start them back 1 by 1 every 4 days to find out which supplement was causing such EXTREME FATIGUE of my being in bed 4-8 times a day.
Good luck finding the culprits. Bettyg
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dontlikeliver
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Hi Treepatrol,
Could you maybe have sleep apnea?
I just had a sleep study done last night.
The guy told me that symptoms of sleep apnea are:
Tiredness during the day Depression Moodiness Nightmares
There were other things he mentioned that would be a result of the sleep apnea also: palpitations due to stress on heart Generally feeling ill
Most of it fits into the Lyme picture also, which I find confusing, because I really don't know what's what now.
My study was abnormal. I struggle to breathe about every 1/2 hour during sleep apparently, pulse shoots up and oxygen goes down. Will get full results/diagnosis on taht in a couple of weeks I think.
You might want to think about getting a sleep study if you can, perhaps you have it also. I have also read that Lyme can cause sleep apnea.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by bettyg: Tree, sorry to read about how crappy you've felt lately.
Did you have a sleep apnea study done? Mine showed I stopped breathing, etc. Also, it showed the NIGHTMARE DREAMS OCCURRING for 30-60 minutes on the 2 nights I slept in hospital testing room.
Sleep study also showed I get NO DELTA 4 sleep; therefore, my body doesn't rejuvenate & feel refreshed when I get up!
Tired; allergist recently had me stop taking 15 of the supplements I was taking for 10 days then to start them back 1 by 1 every 4 days to find out which supplement was causing such EXTREME FATIGUE of my being in bed 4-8 times a day.
Good luck finding the culprits. Bettyg
I really dont wrapp myself around the sleep apnea I think everyone has that to some degree.I know I had it before because when Lyme was real bad in the beginning wife would say you stopped breathing for a second but it was usually after a really tiring day like wildfire fighting I havent done that in years. Now when Iam really tired I breath fast and snore hard wake my wife up hahaha. This is different its like since I went on clindamycin off now but while on it this all started extremely tired and pooped even when I wake up fresh it comes back in a few hrs? I think me and the LLMD missed a coinfection.
Thanks Though Betty I appreciate your input I have increased the B complex thought maybe that was causing the acheness it just seems different ? I wonder if I could have caught something New ? I hate this elimanting things trying to figure whats changed.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by dontlikeliver: Hi Treepatrol,
Could you maybe have sleep apnea?
I just had a sleep study done last night.
The guy told me that symptoms of sleep apnea are:
Tiredness during the day Depression Moodiness Nightmares
There were other things he mentioned that would be a result of the sleep apnea also: palpitations due to stress on heart Generally feeling ill
Most of it fits into the Lyme picture also, which I find confusing, because I really don't know what's what now.
My study was abnormal. I struggle to breathe about every 1/2 hour during sleep apparently, pulse shoots up and oxygen goes down. Will get full results/diagnosis on taht in a couple of weeks I think.
You might want to think about getting a sleep study if you can, perhaps you have it also. I have also read that Lyme can cause sleep apnea.
DLL
palpitations due to stress on heart Generally feeling ill
Dont have them anymore or I should say one every 5,6,7, 10 days? very little also.
It just gets so dang confusing when your sleepy. and another thing lastnight had nasty nightmare guy cut arm off with power saw and I dream in color Wife woke me twice she was fighting with her covers and as usuall I get beatup minding my own busness and shes out cold never remembers anything? And when I woke up it felt like something was wrong like someone was messing around the house just a overwhelming feeling and of coarse because I woke up long enough to realize I had take a leak it took me longer to fall back asleep and I was tired.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Maybe have amino acid levels tested?
Also, do you take any other medications? I had an anxiety dream every night I took Vioxx. They stopped the day I stopped the Vioxx.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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treepatrol
Honored Contributor (10K+ posts)
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quote:Originally posted by Aniek: Maybe have amino acid levels tested?
Also, do you take any other medications? I had an anxiety dream every night I took Vioxx. They stopped the day I stopped the Vioxx.
Amino acid tests never had that done. Heres my list of all stuff:
Glucosomine when needed Biaxin xl everyday 2 morn, night Omnicef everyday 2 morn, night B complex everyday 1 two of them Mg 500mg 2 to 3 a day Rhodiola rosea 1 or 2 a day calmer MultiVitamin 1 every other day Acidophilis 2 or 3 a day I forgot Percocets as needed or vicodin as needed sometimes alot other times none. Ibuprophen when a joint hurts.
Was on Clindamycin 2 a day 3 months
Antibiotics will adversely affect the growth of the bacterium used in the Guthrie bioassay test for phenylalanine. Mothers of breastfeeding infants should report any medications they are taking, since these can pass from mother to child in breast milk. That leaves that out have to stay on abx's.?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Thanks I never had them before when I was on it?Ill go read your links.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
quote:Originally posted by treepatrol: But the acheing low level tired all the time started when I went back on abx clindamycin.Which Iam off now 1.5 months
I don't know if clindamycin by itself will work against babs, but clindamycin/quinine is what I took to clear it, along with artemisinin.
Any chance you can get your dr to give you a trial run of clindy/Q?
You could EASILY have babs with a negative test. EASILY
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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dontlikeliver
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posted
With sleep apnea, apparently also frequent nighttime urination, and nightsweats.....
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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lymednva
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Biaxin always keeps me awake at night. Of course my former PCP duck rolled his eyes big time over that one, but I noticed it happened every time I was on it for sinus infections, which was a lot several years ago.
I also have noticed my pain levels increase when my fatigue does. I have recently been suffering from increased fatigue which turned out to be due to a reduction in my Florinef dosage, which led to lower BP.
For someone with orthostatic intolerance, that is not a good thing, although my endo's nurse tried to tell me it was!
Now that I've seen my LLMD and changed another of my OI meds I am hoping the BP will go back up a bit and the pain will go back down!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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AliG
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All I could come up with was the possibility of interference with ABX if taking Mg or Acidophilus too close. I'm sure you knew that already.
I took Biaxin XL for sinus infection before I knew it wasn't just a sinus infection. It knocked me for a loop. I had air hunger, sleep problems, sweats, all kinds of problems.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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trueblue
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quote:Originally posted by treepatrol: I feel like crap the lastmonth or so was doing pretty good but now I seem to have low level ache and Iam tired alot and trying to work on house has been hard scraping painting rear porch.
I have had nightmares the last few nights wierd ones at that. Iam tired weather I sleep good or dont work? Just seem wore out. Iam on omnicef & biaxin xl. Taking all my probiotics too just seem tired I have been tested for babs = neg & when I go back this time to LLMD should have results of some extra blood work checking iron,mag,potassium.
I forgot any Ideas???
As for the low level aches and tiredness...
Any chance of EBV or other viruses? (I'm only mentioning them because someone finally bothered to check me for some and found them recently reactivated.)
Ahem, didn't know I had them but the LLMD seems to think the tiredness is EBV. Has prescribed an anti-viral; I'm on Babs treatment at present.
Otherwise, I only took Biaxin for a short time but couldn't sleep well on it, however, that's not the only ABX that happened on.
I hope you're feeeling way less crappy soon.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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treepatrol
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quote:Originally posted by AliG: I did a check for you Interaction Check
All I could come up with was the possibility of interference with ABX if taking Mg or Acidophilus too close. I'm sure you knew that already.
I took Biaxin XL for sinus infection before I knew it wasn't just a sinus infection. It knocked me for a loop. I had air hunger, sleep problems, sweats, all kinds of problems.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
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posted
quote:Originally posted by trueblue:
quote:Originally posted by treepatrol: I feel like crap the lastmonth or so was doing pretty good but now I seem to have low level ache and Iam tired alot and trying to work on house has been hard scraping painting rear porch.
I have had nightmares the last few nights wierd ones at that. Iam tired weather I sleep good or dont work? Just seem wore out. Iam on omnicef & biaxin xl. Taking all my probiotics too just seem tired I have been tested for babs = neg & when I go back this time to LLMD should have results of some extra blood work checking iron,mag,potassium.
I forgot any Ideas???
As for the low level aches and tiredness...
Any chance of EBV or other viruses? (I'm only mentioning them because someone finally bothered to check me for some and found them recently reactivated.)
Ahem, didn't know I had them but the LLMD seems to think the tiredness is EBV. Has prescribed an anti-viral; I'm on Babs treatment at present.
Otherwise, I only took Biaxin for a short time but couldn't sleep well on it, however, that's not the only ABX that happened on.
I hope you're feeeling way less crappy soon.
Biaxin xl never bothered me before this like the 4th or 5th run on it. Dr J leaning towards missed coinfection? Virus is possible EBV? I dont know.Babs?tested neg.mycoplasm?possible I have been bitten so many times over the years not only PA been bitten by blackflies in Maine , New Hampshire too.Powassen? This all started when on Clindamycin but now off and on omnicef,biaxinxl. Just hate this its like a bad chess game where you can lose more than the game.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
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posted
It seems different than before when what I thought was just Lyme. It could still be it one of my strains? Heck I been bitten well over a hundred times and at least 15 20 ticks imbeded some bellys full. But I know when I started this clindamycin this low level ache started and tired but off of it now for over a month still have sleepyness tired achey feeling. Clindamycin goes after anerobic bacteria primarily.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
trueblue
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posted
quote:Originally posted by treepatrol: It seems different than before when what I thought was just Lyme. It could still be it one of my strains?
Clindamycin goes after anerobic bacteria primarily.
Would that leave aerobic things to go crazy? Babs? myco? Can't remember what's aerobic right now.
This was way easier when I thought I only had a weird strain of Lyme. I've been in the twilight zone for over a year now. Different than any thing else, lately. I wonder what-all I have.
I really hope the nightmares have stopped. And that some answers become apparent. Sorry, I wish I was some help. I do know how you feel if that's any help. Nah, didn't think so.
(I'm trying to piece together what happened last night woke in the middle of the night to find the pillows on the floor. Picked them up and woke again with pillows on bed and me half off.)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Have you considered addressing any brain chemistry imbalances? A considerable amount of fatigue and pain was alleviated for me when I started wellbutrin xl while herxing on bicillin.
I wasn't happy about having to take another med and put if off for a long time but once I started I wished I had taken it long before. The quality of my life skyrocketed.
Best wishes.
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treepatrol
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quote:Originally posted by DolphinLady: Have you considered addressing any brain chemistry imbalances? A considerable amount of fatigue and pain was alleviated for me when I started wellbutrin xl while herxing on bicillin.
I wasn't happy about having to take another med and put if off for a long time but once I started I wished I had taken it long before. The quality of my life skyrocketed.
Best wishes.
Thats possible with all the things and gerx's encephilitis in the past.
Anymore Ideas???
Nightmares gone but lots of dreams now?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
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but I noticed it happened every time I was on it for sinus infections, which was a lot several years ago.![[Smile]](smile.gif)
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