posted
Cipro is one of the possible meds used for Bartonella treatment -- I think only 10% passes into the CSF whereas with Rifampin something like 70% crosses into the CSF.
If you have Bartonella in the G.I. tract Cipro would be much more effective for that than if the Bartonella is in the brain and nervous system.
It has been over a year since hubby took these 2 meds so I am probably off about the percentages.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
i think it is possible to herx on anything, even diflucan or nystatin, which are not atx.
hope it passes soon
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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posted
A couple of weeks ago someone posted a link to a table of antibiotics. It listed Cipro as a treatment for Bartonella.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I also believe that there are coinfections that we don't yet know about and that with Lyme, more common infections can cause problems because our immune system is compromised.
Some common infections, like salmonella, cause reactive arthritis. That's something I'm battling with the lyme and it's also hard to kill. Quinolines are used for salmonella. With breathing symptoms, you may have a respiratory infection that's been hanging around that cipro is kiling.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks everyone,
i called for the urnie results ,,,no shock negative, no bacteria grown,
but the cipro does seem to help my bladder a lil bit.
all of this mess started with bad bronchitis...that came back once and then turned into the nightmare i am now living.
seems i herx on everything...vfend, diflucan, all abx. cipro is giving me the least amount of herx.
im going to ask my llm tomorrow if there is an abx for lyme that will hit the bladder, since it is my main symptom.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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I pm'd you Scorp!
Posts: 399 | From Texas | Registered: Apr 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks scorp! I just replied.
i took cipro back in 2004 for a 'bladder infection' my dr never sent it to a lab and i do believe it was related to the tick bite in 2000. similar back symptoms but not as bad as now.
i had that 'infection' for about a month. my main symptom then was the lower right back pain, which my LLMD now says is lyme.
its so hard to figure this all out.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
It is well documented that some strains of bartonella do sometimes produce a herxheimer like reaction. This is maybe what you are seeing.
Posts: 1184 | From north america | Registered: Feb 2003
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posted
Cantgiveup - Your start of this whole lyme thing sounds like mine - I only found out about 4 weeks ago that I have a couple of parisite issues. My Biofeed guy picked it up. One is a blood fluke. In my case its is in my left lung along with the myco that I have been fighting for a year. Well, tested stong on the Clark parisite cleanse. After two weeks on this protocal my left lung started to clear up. I could breath better than I have in the last 14 months of treatment. But beware, if you should look into the parisite cleanse make sure your lymph system and liver are working good. I had to do a liver/gall purge to flush out all of the die off. Felt fantastic after.
Posts: 582 | From milwaukee wi | Registered: May 2005
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
I think you can herx on just about anything if you are unwell.
I recently had Kidney surgery and was put on Cipro for a couple of weeks. It completely trashed my gut and I have been sick as ever since with what feels like a full return of symptoms. MD says to try and ride this one out as it is normal to feel @#$%y after surgery and on a high dose abx. He is right!
Am hoping to feel better soon. Hope you do as well. Cipro & Flagyl have been very hard for me to handle, of all the abx I have taken.
Posts: 1452 | Registered: Feb 2004
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JimBoB
Unregistered
posted
I see no reason WHY you cannot herx on Cipro, though when my doc prescribed it for my Lyme back in 2000, I just felt better, no herxes at all. After 24 days of Cipro, I had no more pain for about 8 to 10 months. Then slowly it all came back and was much worse by this past fall.
Be real careful on Cipro though as it totally ruins the colons of many people. Many have actually died from it.
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I was put on Cipro years ago for Mycoplasma, this was way before I knew I had Lyme. I ended up with severe vertigo, bad enough to wake me out of a dead sleep.
I have tinnitis and I think I was herxing from my inner ear. After I stopped the Cipro which was immediately, the ringing in one ear was significantly less.
Posts: 1251 | From california | Registered: Apr 2005
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suki444
Unregistered
posted
Hi I was on Cipro recently too for a UTI and I got lower back pain/stiffness badly all of a sudden...herx! seemingly Cipro has no effect on Lyme so all I can think is that it is a herx from Bart?
A lot of people get anxiety from Cipro as it kills the bugs in the brain..I got that first time round but now I am okay in that respect on it.
posted
I disagree that Cipro has no benefit in Lyme. It worked for me back in 2000. It got rid of my symptoms for over 8 months. Then they slowly came back.
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i agree JimBoB- it seems to have helped me a lil bit in the 3 days that i took it. ( i was only given a 3 day sample from my gyn and since no bacteria was grown i dont have a UTI)
well not the classic UTI.
My cipro herx is comparable to my doxy herx. cipro is a broad spectrum abx so it could be hitting the coinfections as well. who knows really.
Its interesting to see that abx i once used without a problem causing me such a herx.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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suki444
Unregistered
posted
It was Dr B who told me Cipro had no effect on Lyme. Maybe the improvement is from hitting the Bart?!
In his guidelines he also says that cipro dampens down the bart symptoms but it takes Levaquin to erradicate it...have you guys tried Levaquin??
My infections are European so my Bart probably has different drug susceptibility.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Ever been tested for chlamydia pneumoniae? It's a respiratory infection that has been linked by some to fibromyalgia type symptoms. Many LLMDs test for it.
Don't worry, not anything to do with the other form of chlamydia.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i was given 3 days of cipro again and it seems to be helping me again. Im puzzled.
There must be some kind of anti inflamitory in cipro... I felt horrible yesterday a slight herx i believe so I took the 3rd dose today. Its extended release and it just started to make me feel better a few hours ago.
yeast is creeping back in but my bladder feels better.
maybe i have some other bacterial infection. I would like to try this for a month and see what happens. Like i said i was on a month of this a few years ago and it worked then for the 'bladder infection'.
i even gained a bit of weight today.
Im puzzled. could it be because cipro penatrates tissues...like the bladder wall?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Mathias
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posted
I agree with Jellybelly, it could be mycoplasma. Cipro was one of the abx my LLMD prescribed for that and it worked very well with good herxheimer reactions.
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
hi to all of you dealing with cipro and mycoplasma. how are you doing now? last post here was in may. how long and what dose did it take you to get a handle on the mycoplasma? how did you know you got it? is there a test that says it's gone...or do you just know what symptoms went with mycoplasma...or did you stop herxing with cipr? thanks...i'm pretty sure that is what i am dealing with now even tho the doc that gave me the cipro for a sinus infection doesn/t have a clue.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
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posted
up-no cipro/mycoplasma people here?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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trails
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Member # 1620
posted
I would like to know the answer to this too kayaker!
Maybe start a new thread?
I have been on cipro for about 5 weeks now for kidney,uti and other issues related to ureteral surgery, but I was right in the middle of treating BART with rifampin when all this started so switching to cipro was a bonus in some ways.
I talked for along time with my LLMD who is a parmacist yesterday. TECHNICALLY cipro can not kill lyme. in the lab you need a certain concentration that is not possible with oral cipro. BUT he said the labs are testing on a strain that is NOT what is seen in humans now. Also, many LLMDS in ILADS are reporting that cipro IS affecting lyme and they are reporting SOME benefits.
MOST of cipro is excreted in the urine and feces and a bunch of it is viable when it reaches your bladder, which is why it is used so often for UTIs and bladder and kidney. Levaquin is exreted almost exclusively in the urine and the amount of viable medication as it hits the bladder is much higher. I forget the #'S
I hope this helps some people understand more.
I still would like to know about mycoplasma and cipro though. trails
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5dana8
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posted
I did also herx on cipro. Not sure what it was hitting.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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could it be because cipro penatrates tissues...like the bladder wall?
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