I just had to let you know...now that I'm no longer lurking in the shadows...
I'm so very glad to be a part of this place. I don't know what I'd do without you all. A Godsend indeed!
You all are my lyme family now. I care so deeply for you all and with each post, it just seems to grow! I feel so badly for what you all are going through and how it has altered your lives, as I am right here with you all. Having lyme has definitely surrounded me with some of the very best people though!
If I can ever be of any help to you, please don't ever hesitate to let me know. Lord knows you all have already helped me in more ways that what you'll probably ever know!
I love you all from the very bottom of my heart!!!!
Love, Light, & Health, Jennie
P.S. Here's a kleenex []. I'll quit being so weepy now. Gotta go find my sense of humor now...
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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Thank your for starting this thread and your post. This is a wonderful place. I only recently stopped lurking myself and posting.
Thank you all for creating this place that is warm, inviting, and a fountain of information.
Posts: 628 | From the south | Registered: Dec 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Oh, you guys... now you're gonna get me all mushy, too.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
What a kind and thoughtful post. I am new here myself and have learned a world of information. I find the people here warm, kind, intelligent and helpful.
Glad to be a member. Sure hope in our lifetime we all live to see the cure of this dreadful disease so there is no longer any need for a Lyme forum. Kelly
-------------------- ...~*Just keep swimming, Just keep swimming*~... Posts: 120 | From New Jersey | Registered: May 2006
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Hi Jennie, Glad you found this site. Where are you? When did you get Lyme disease? Do you have a good doctor? Are you taking medicines for it now?
Lots of questions, but people here want to help. Hope you will ask all the questions you have.
Ann - OH p.s. Your name-tag looks like a mom sounds when she is calling her kid. jjeennnniiee !!!
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Welcome outta the closet Jennie!
You bout got me all watered up too.
I think people with lyme get more in touch with their feelings. But I don't think that's a bad thing!
This is a very supportive and wonderful place to gather, vent, find support, compare weird symptoms, or just help each other through tough times.
Glad you found us!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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bettyg
Unregistered
posted
Jenny, we needed this positive thread right now from what the board has gone thru this past week.
Tears are coming down my cheeks too. Lymenet is a wonderful, caring place with 24/7 SUPPORT and education.
Treepatrol is a HE is our archival librarian which he took on his own. Tincup, woman, was before him. We all contribute to what is found in there.
Glad you came out of lurking to join us and share YOUR knowledge with us too. We learn every day with an open mind. Bettyg
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I am also new to this site, but not to the disease. Everyone here has been so wonderful and caring. It is a blessing that my husband got me involved in lymenet. That is how I got the name "savebabe". My husband is always trying to save me from this disease. Thanks everyone!
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Hey Jeenie....How do you really spell your name?
I love this place and in order for me to leave, you'll have to cut off my hands! Well, that won't work either.
They have those programs that can type for you now!! I always wanted one of those when I was first dxd, as my shoulders and hands were killing me when I typed!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Nice remarks Jen,
I sincerely hope we all meet some day like in Washington DC...pileing out of lyme green buses...
to limp or roll up to the white house...
Then when they ok enough money to end this nightmare...and then....
I never want to see any of you on lymenet again!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Thank you for this post. I don't even know if I have Lyme yet, but highly suspect that I do. I have never felt as horrible as I do at this very moment, and cannot believe that I am telling this to total strangers. My physical body will not cooperate with what my brain is telling it to do -- it is betraying me. I will find a way to control my symptoms and not let my symptoms control me. Just have to figure out how, cause I can't live like this. It helps to know that others understand, cause I think my family will soon be frustrated with me. But I have a feeling that someone out there will care if I need them. Thanks in advance.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Perhaps I posted too soon. I do have doctor's appointments -- one with my sympathetic GP tomorrow and one with my neurologist on Wednesday. I have been treated for the past week for a headache-free migraine but my symptoms are getting worse. I will reserve any future posting until I have a more definitve answer to my problem. I have been trying to learn as much as I can in a short period of time so that I can have a logical discussion with my MDs. I had a bullseye rash 5 years ago, negative Western blot. I found this website when I came home from the hospital this week where I had been admitted with stroke-like symptoms but the test results were all normal. Jennie, glad that this board has been helpful for you, and hopefully my visit here will be brief and my symptoms will be the result of something more easily treatable than Lyme.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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That has been on my mind for a long time..
Posts: 89 | From Ohio | Registered: Mar 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by lou4656: Perhaps I posted too soon. I do have doctor's appointments -- one with my sympathetic GP tomorrow and one with my neurologist on Wednesday...I will reserve any future posting until I have a more definitve answer to my problem.
I had a bullseye rash 5 years ago, negative Western blot.
I found this website when I came home from the hospital this week where I had been admitted with stroke-like symptoms but the test results were all normal.
Permit me Jennie to hijack your thread briefly here if I may ...
Lou, if you had a bullseye rash five years ago, and you're having signs and symptoms consistent with late lyme disease, chances are pretty good that's your problem.
A neuro is good for ruling out other ominous things.
However, neither a neuro nor an MD is good at diagnosing lyme.
Trust me on that.
Did you treat at all five years ago when you had your bullseye? Or treat just for a while, or what?
Did you test for coinfections such as babesia or bartonella, etc.? These can totally lay you out as badly or worse than lyme alone.
All these are reasons you must make an appointment to see an LLMD - a lyme literate medical doctor. It is almost guaranteed none of your other doctors will have any clue what they are doing in these areas, or will swear these diseases are "rare" or completely cured with a few weeks' antibiotics.
Please don't feel odd about posting prior to diagnosis. Most of us did, and freely!! Heck, that's how we figured out we were on the right track, because if you wait for a mainstream doctor to figure it out you're gonna get really old.
Don't trust any testing that doesn't issue from a first class specialty lab. IGeneX is the tops. If your doctor doesn't know about it, he's not the right doctor to be dealing with lyme disease.
Now, post away and let us try and help!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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I'm a Kentucky gal living in Indiana now. Where are you from and where are you now?
I'm not quite sure when I got my lyme disease, but my LLMD and I are guessing at least 17+ years ago. Ugh! When did you get yours?
Yes, I have an awesome LLMD. Do you?
I'm on an antibiotic break per say, since I recently had a severe adverse reaction to one. I've cycled through three orals so far though and plan to start treating for Babesia, hopefully sometime in the near future. What is your plan like?
Thanks for asking! I appreciate all of the help that I can get!
It's funny you mentioned that about my name tag, as I never thought of it like that before. Yes, it now reminds me of my mom saying my name like that when she was looking for me and couldn't find me. LOL!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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I can just picture the lyme green buses and us limping or rolling up there! Relieving, but sorta sad and funny at the same time!
I'm not sure about the not wanting to see anybody here ever again though! I'm afraid you all are stuck with me now! Hahaha!
Love, Light, & Health, Jennie
-------------------- My Lyme dx:11/05. My Mom's Lyme dx:5/16. ISO ASAP-Lyme Literate Dr & Neurologist-Prefer IL, IN, KY, MO, OH, TN. Can travel farther. Finances limited. Prefer Drs take Medicare or Payments. Need great list to find best fit. Tyvm. Posts: 701 | From Owensboro, KY | Registered: Sep 2005
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