posted
I have had lyme since 88..it was known that I had it over the years..however my doctor always chocked it up to bad anxiety and that i was to intune with my body..i was acute untill 2001 and given 200mg of doxy..the doc said it was a high dose...I did not respond to the doxy so I thought that I did not have it...I was told not to persue any illness that I thought that I had..so for another 1.5 years I struggled to get by...I thought that i must have syphillis or mad cow disease...it was not untill I found a lyme web site that realized that I still had lyme..so now I have had autoimune attacks on nerves of the eyes,brain,reproductive areas and so on..I wonder after bieng On treament now for four years if it will get any better...then again I have only been on iv once for three weeks..my blood pressure went thru the roof on rochephin.. I have been on doxy 600mg for three weeks and ceftin and malarone...but not mepron or zithromax..I tryed using art last week and I am still dizzy...I am wondering if I created alot of toxins that is making feel like crap..also two months ago I noticed that there is a thump print size peice of hair missing on my neck and the hair does not grow as well as my stomach is very slow and hurts alot...the cognitive issues are the worst for me as they have not been the greatest..do nerves that were attacked regenerate if the load of the germ is reduced?I sure hope so because i want to live..I have been on low dose mino 150 or less for a year taking many breaks with it..but if take augementin or ketek i will herx like crazy...I think that alot of my problem is from the brain stem and that is why I feel the way I do..need hope... thanks eric
Posts: 593 | From long island ny | Registered: Apr 2006
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posted
I hope you are on loads of probotics!
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Polar,
What are you doing to offset the incredible damage being caused by the constant abx assault?
Try not to kill yourself in the process of killing the lyme.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I'm sorry Polar,
My previous Post is my initial shock reaction.
Let me restate it please. There is much you can do to protect your body while you are agressively attacking lyme.
Best wishes to you and prayers for your healing soon.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I am finnally getting over the severe herx caused by artemenisin..I only took it for three days but it really hit bad,...I am now going to a naturapath to help detox the body and bring wellness to my nervous system..I think I have babs...hence the reaction to art...thank all for caring as I am slowly getting better... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Eric,
I was going to suggest you find somebody to work on detoxing your system. But you beat me to it.
By nervous system, is the naturopath looking at your autonomic nervous system? Lyme causes damage to the ans, which regulates the organs and basic life functions.
The years of the Lyme alone can cause ans disfunction. The meds can cause it too.
-Aniek
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I have had constant lyme symptoms since sept of 1987... I wasnt diagnosed till 2000. And wasnt treated at all until the end of 2000 ... and didnt find a llmd til 2001.
I am still in treatment and still disabled but much better than I was.
Some things I thought were permanant damage got better
(like my fingers were crinkled for at least a year and a half and now I can straighten them)
also the numbness in the skin from my toes up through my mid calf ( I still had pain in the bones muscles and joints even though you culd stick me with a pin and I wouldn't feel it. I could walk on the stones in the driveway and didnt feel a thing - it was weird)
that numbness hung around for quite awhile so I thought I might be stuck with that symptom - but now i have total feeling.
posted
i have also had it since 87 and did not start treatment till I almost could not function in 2003..i was acute many times and it was know that I had lyme but you know how it goes...doctors really mess up alot...anyway when i was on rocephin the nurse could not believe that the needle area rubbed with alcohol immited no pain..she was freaked. I have since gotten feeling back.. i know I have along way to go to get it out of the brain..so that is the challenge eric
Posts: 593 | From long island ny | Registered: Apr 2006
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