posted
I have been reading about the Protest they are having in New York against IDSA new guidelines. Which as we all know These Guidelines are wrong and damaging to us all.
Many of you that I know can't probably make it to the Protest. You are probably as mad about this as I am.
I was thinking that maybe we could at least protest at our Infectious Disease Office in Santa fe. We could call the news and tell our Story.
Do a little fighting Back. If anybody thinks this is a good idea and wants to do this Please chime in or email me at: [email protected]
Blessings, Love & Healing to you all.
~Namaste~ Yemaya
[ 18. November 2006, 03:14 PM: Message edited by: Yemaya ]
Posts: 188 | From NM | Registered: Feb 2006
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
up fer my buds in NM Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
Thanks Trails!!! Posts: 188 | From NM | Registered: Feb 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I don't live in NM, but I do live in the SW. I don't think this is a good idea. It is not the NM ID doc that is the problem. You will only make an enemy...when there is the potential to make a friend.
If you want to do something, see my post in Activism about contacting your state health dept.
Just my opinion....Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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thanks for your input. Yemaya and I were on the phone discussing something along those lines. I'll check your post.
Any one else have thoughts on this? Amyone else here in NM want to join in? Thanks Yemaya for initiating something to hepefully get our voice heard around here!
Jif
Posts: 208 | From Santa Fe | Registered: May 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Hi Jif~
I think it is better to consider other things besides a confrontation, at least at first. Obviously, if building bridges doesn't work (like with the IDSA) then a confrontation may be in order.
I'm still working on the building bridges idea with Mayo. They are SLOW in getting back to me though. I will keep you posted on that. If you haven't called them, you might wait, and I can give you the phone number of the person who turns out to be the most responsive to me. I trust that such a person does, indeed, exist! If we talk to the same person, it will make more of an impact.
If you wouldn't mind, PM me how you finally got diagnosed. (Since Mayo didn't make the diagnosis)
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
I appreciate all your imput. I did have a convo with our CDC here & our Infectious Disease person here last year.
He was very unhelpful asked if I had been out of state. Which is yes. I had already been Diagnosed by one Doc here.
Refused to give me any names of Docs in NM that may treat Lyme Disease patients ( Including mine that I have Now).
In fact told me not to go to one at all. Yeah like I should go to someone who was not going to believe me in the first place.
So I really believe we already have an enemy. They aren't going to help. They are run by the Government and they are already trying to irradicate any belief in Chronic Lyme.
Its not an issue of were we got bit. It is an issue that we come forward and say to the entire country I am sick, and this is what I have and it is ruining my life & THE LIVES OF OTHERS.
We want to be recognized because wether or not our National Government wants to admit it this or not.
Lyme Disease is a Pandemic. If Gone untreated it becomes Chronic, and no ammount of telling us it doesn't exist is not going to change that fact, or help us get better.
We need to get out their, educate the people on Lyme Disease and Chronic Lyme Disease. Educate them on what the IDSA has done.
Get some recognition that we here in the Southwest should be counted too. Maybe approach Gov.Richardson on this.
Our Brothers & Sisters Back East are fighting for us. We should step up and fight too. Because it doesn't matter where we are from the IDSA guidelines effects us all.
If my insurance picks up on the IDSA guidelines & stops paying for my Meds or drops me. I am basicly screwed.
I like many others cannot afford my Meds on my own. I already have to pay my Doc & supplements out of Pocket.
The Insurance won't cover the visits. So Financially it is really hurting us too.
So I am asking you to Please don't think about making enemies. Jif and I talked about maybe schedulinga meeting with Our IDC on the 30th ,and showing up in a large group and air our opinions. Call the media. Have it Coinside with the Lymies in New York.
I spoke to another person who said maybe we can pass out literature on the street outside to make people aware & educate themo the Disease & the guidelines.
I am just asking for ideas and for bodies who are willing to show up. Still any advice or inputwould be greatly appreciated. Thanks!
Love & Light, Yemaya Posts: 188 | From NM | Registered: Feb 2006
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kelmo
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posted
It's funny they would even ASK the question if you were "out of state" when you were bit, or before you were tested.
I think that's a moot point. My daughter may have had this bacteria in her system, with an immune system fighting it until it just gave up. This bite could've come from our many trips to Oklahoma, or our summer travel along the east coast several years ago.
We'll never know the origin, but the point is SHE NEEDS TO BE TREATED HERE, SO WHAT ARE YOU GOING TO DO ABOUT IT!!????
I'm not sure what the most effective way to change things. I think it takes a collective voice. One voice is lost in the noise.
Anyway, thank you for trying to come up with something for us west siders.
posted
OK, here is some input. They are going to use the LDA petition for the protest. Do everything you can to add a lot of signers to the petition before Nov. 30. Go to the threads that discuss this and read the one about paper petitions and what to do about people who don't have an email address.
Over TG, get everyone in your family and friends to sign (take your paper petition). Be creative about who else you ask to sign.
This will be a big help. They are not yet to 20K and are hoping for 50K, so there's a long way to go and not much time.
Then, sign the petition about federal legislation. Ann did the most recent post on it. Congress is not going to be in session much longer and we have lost several of the bill sponsors in the last election, so if it isn't passed this year, we have to start all over again. Call and visit the local offices of your federal legislators. Ask for their help.
Posts: 8430 | From Not available | Registered: Oct 2000
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could you help us construct a decent letter to our congressman--i have a great one, Tom Udall. (Yemaya may not know who hers is yet, the two ladies in question may STILL be counting ballots!) perhaps there are some samples somewhere?
thanks
jif
Posts: 208 | From Santa Fe | Registered: May 2006
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posted
Thanks Lou thats great advice. Julia we will get this done.Plese folks keep it comming. Posts: 188 | From NM | Registered: Feb 2006
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I will keep you posted on that. If you haven't called them, you might wait, and I can give you the phone number of the person who turns out to be the most responsive to me. I trust that such a person does, indeed, exist! If we talk to the same person, it will make more of an impact.
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