posted
Had to get my family ready for a 5 hour trek to in-laws for Thanksgiving. I'm on day seven of Plaquenil that was added to Zith and I suddenly can barely function. I'm not even up to dose yet.
Don't know whether I wore myself out packing, stressed myself out due to bickering inlaws, or drugged my babesia into a tantrum -- or all of the above.
LLMD put me on Plaquenil for joint pain plus babs. I read that everyone is doing Mepron/Malerone with abx for babs. Can Plaquenil also take care of it?
Right now my legs feel too weak to walk around and I'm suddenly weepy and paranoid about my illness. (You know the rap..."What if this is more than Lyme... What if it is incurable Lyme... what if I can't care for my family... what if... what if...") I'm even paranoid about things other than my illness... like I have no common sense filter to handle negative thoughts.
What is going on?! I'm stuck on a neuro backfiring!
feeling less than,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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posted
Sounds like depression. I think Plaquenil could be blamed for that. Can you back off of it for a day or two and see how you feel? Put in a call to your dr on Monday too.
My personal opinion is that Plaq may be useful for babs, but I don't think it's really strong enough to knock it out completely.
Hang in there! The stress of the holidays can be really rough.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Cobweb
Unregistered
posted
Sometimes I get scared by periods of weakness . Have to sit down- Can't move, afraid to move, afraid I'll fall down from weakness, afraid I'll pass out. I sit down until I am strong enough to go lie down-after an hour or so -I feel better.
Sometimes I get scared that it is my heart. Somehow I always survive these spells. I recently cut back on a lot of meds, with LLMD's permission, because we are in the process of moving-and I told her I cannot afford to be incapacitated this month ith herxing and all.
I'm doing zith/mepron at the moment, and just added in another abx too (macrobid) -- and I am having a lot of neuro-herxing at the moment.
I'm pretty sure the zith is what precipitated the neuro-flare for me (and that can bring on a host of psych. stuff, like mood and thought changes.) --- I did mepron/ketek for 4 months before, but it was only after switching from ketek to zith that I really started feeling herxy from it.
Don't know if that helps at all....
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
my LLMD uses plaquenil primarily for its cyst busting capabilities and b/c no one really understands how and why it works with Bb or with babs. It is not used hardly any more just for babs as the babs is resistant to it, but along with other meds it is effective against SOMETHING that makes many of us ill....what it is is not well understood.
I also get very week and weepy.
I think you are hitting the bugs so try to stay positive and know that even though you feel like crap, you are on the right track!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
The good news, is Plaquenil really reduced joint pain in my hands. So hopefully it will do the same with you.
I have this suspicion that Plaquenil makes me tired. I haven't been able to prove it, but I feel like I get tired soon after taking it.
When I get really weak though, it's related to my autonomic neuropathy. It's like my system is just suddenly shutting down. It does happen when I over exert msyelf.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I used to get profound weakness with emotional upset when my adrenals were depleted. I would feel OK one minute and then as limp as a noodle and like I could barely stand up the next if I was upset or did anything too taxing on my adrenals. It used to be very bad. It is much better now that I keep my adrenals noursished.
There are many things that you can take to help your adrenal glands. B vit's are a good start if you don't already take them. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
dear aniek, lymetoo, minimonkey, trails and cobweb,
thank you for your replies. I just spoke with my LLMD via phone and he suggested I get off the Plaquenil. I said I was willing to stay on it if I just needed to ride it out. He said he thought I should stay off it for two or three weeks and try it again then.
Lymetoo -- I have thought about holiday depression, except this sadness only seems to permeate my head during exhausted Lymish moments following new drugs or extreme activity. Still... holiday overwhelming could definitely be the straw that broke the spirochetes' back...
Cobweb -- I also build my big life activity around whether I can afford to herx or not... it feels so d##n limiting! i hope your move goes seamlessly and you can relax again before the next anticipated herx path.
Minimonkey, zith is a bear, isn't it?! I kind of feel like I'm in a constant herx that I can stand, but it doesn't take much outside stimulus to fall over the edge. Have you taken it by itself, or did you start with it and mepron at the same time? What is macrobid for?
Aniek -- The term "autonomic neuropathy" is new to me. Other than energy crashes and exercise/heat fatigue, I don't seem to match many other symptoms on the google definition. The plaquenil definitely adds fatigue, but did help my hands too. Wish it would help my back!
Trails -- thanks for the description of the mystery of Plaquenil and what it is known for. I am not totally clear on whether I'm on it for the anti-inflammatory aspect or cyst-busting or what. My LLMD is pretty good at answering questions provided that I know enough to ask them -- otherwise, he doesn't always describe things.
Being away from home right now, it has been more than a comfort to be able to check in with everyone. Felt pretty blindsided by this last fatigue event.
Thanks to all,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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posted
wiserforit did you do artemisinin and how are you doing now? very curious.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
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quote:Originally posted by wiserforit: Lymetoo -- I have thought about holiday depression, except this sadness only seems to permeate my head during exhausted Lymish moments following new drugs or extreme activity. Still... holiday overwhelming could definitely be the straw that broke the spirochetes' back...
Well, that stuff doesn't help...the holiday stress, I mean. What I was getting at is the plaquinel. My worst depression was always from the drugs....flagyl especially.
Hope you're doing better now.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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