posted
I am having a second MRI and had small lesions last time. My Neuro really believes they are from Lyme and I seem to be improving with treatment. I had an MS misdiagnosis with my first neuro and this neuro said, if there is improvement or no more lesions than last time, we know we are on the right track having diagnosed me with Lyme.
Posts: 298 | From los angeles | Registered: Mar 2006
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi LALyme.
It's good to hear that you are making progress in treatment. I knew you would!
I had multiple lesions (11) on MRI and after a year of treatment, also wanted to have another look. At first I was disappointed to find that they were exactly as they appeared a year ago. However, the more I thought about it, the more I realized it was good news that perhaps treatment had kept me from developing any new lesions.
I know I've read on here of people whose lesions did get better with treatment.
Make sure your MRI is with and without contrast.
I believe the "statistical" rate of disappearance of lesions is around 50/50. The fewer and smaller, the more likely they'll go away -- and I have no citation for that other than just from what I've read, anecdotally speaking.
Good luck, and let us know!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
Good to hear from you. You know, I was supposed to get the MRI this morning and postponed it until early Jan. I just wasn't mentally prepared. I guess last time was so traumatic that I felt like I needed a bit more time and wanted to have a little bit more time on Meds. How are your symtoms by the way and how long now, have you been in treatment?
Posts: 298 | From los angeles | Registered: Mar 2006
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Treating a year and a half now.
I asked for the re-do of the MRI this spring, at the one year mark, because I felt something was horribly wrong in my brain.
It was .. it was called babesia WA-1! I had not tested for it, lacking classic signs like sweats.
Did a couple months of babesia treatment, felt great for a couple months, then back downhill.
Just now starting Round 2.
Beginning to think that babesia is perhaps a worse character than borrelia.
Still, I am LEAGUES better than a year and a half ago. I shudder to think where'd I be now had I not been diagnosed.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
Do you diagnose babesia WA-l by a MRI or did I misunderstand?
I am being persuaded by my GP to have a brain MRI or tests for MS and I will do that. But I also have been on round after round for babesia. I would like to have a reliable test for babesia done.
Any comments appreciated, glad you are feeling better.
Posts: 460 | From Illinois | Registered: Aug 2005
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Chronic. Sorry if that seemed confusing. I meant I got the second MRI in an attempt to find out why my head was still killing me after a year of treatment.
It showed no change in lesions.
So I said, "OK, so it's not more lesions or a brain tumour; maybe you actually do have babesia like everyone on LymeNet suggests, even though you've never broke a sweat in your life?"
So then I tested and was positive for babesia WA-1.
I think if you have a lot of neuro stuff that isn't resolving, and especially if you have very bad headaches, a brain MRI is a really good thing. But do acquaint yourself first with the limitations of "MS testing" since there really is no such thing and lyme can be responsible for nearly every finding in so-called "MS."
Babesia WA-1 is tested via blood draw through Sonoma County Health Department (IGeneX sends it there).
I wish you luck getting rid of your babesia demon.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Eek!]](eek.gif)
Printer-friendly view of this topic