posted
Most annoying symptom I have is a shaky or slight trembling feeling. Not noticable to anyone else but I can certinly feel it.
It is worse at night and in the morning and gets better throughout the day.
Very strange how if I lay still in bed, I feel fine, but if I roll over or move at all I start to shake and then after about a minute I'm all calm again.
What a strange and diverse disease this is.....
Posts: 41 | From Somerset County, New Jersey | Registered: Aug 2006
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posted
I have this too. I call it an "internal vibration" feeling.
It seems to be a sign to me that it may develop into actual tremors/twitches. It does this sometimes.
Posts: 366 | From MA | Registered: Apr 2006
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posted
Anyone else have the shakes or trembling (just feel jittery like on caffeine) worse in the morning and slowly 'get better' through the day? Love to know why this happens.
Posts: 41 | From Somerset County, New Jersey | Registered: Aug 2006
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Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I get this, and it developed into a motor tic disorder. I'm pretty sure it is caused in my case from autonomic nervous system disfunction, caused by years of Lyme.
I've noticed a huge reduction in starting treatment for my ANS. For me, that primarily includes Amino Acid supplements, B-12 and folic acid.
My doctor treating my ANS disfunction has me regulate my blood pressure and pulse. This shows progress.
My blood pressure has always been low, and has increased to more normal levels since starting treatment. My pulse is very high, sometimes over 100. This hasn't changed yet.
But I notice the feeling is worst when my pulse is high.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
I was diagnosed with autonomic nervous system dysfunction as well. As Aniek wrote, it probably is related to this.
Sometimes the feeling develops into full blown twitching/tremors, other times it stays internal.
Posts: 366 | From MA | Registered: Apr 2006
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posted
B-12 (methylcobalomin) shots have improved all my nervous system symptoms, including internal vibration feelings and feeling like I am gently shaking or slight tremor. And twitches.
They are pricey and generally not covered by insurance but worth it.
they also help the body detox.
LC
Posts: 116 | From Pennsylvania | Registered: Mar 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by jazzman62: Anyone else have the shakes or trembling (just feel jittery like on caffeine) worse in the morning and slowly 'get better' through the day? Love to know why this happens.
I have something similar, head and hand tremors, though they do not get better throughout the day. The only thing that has helped with these symptoms of Lyme so far, and I am early in treatment, is large doses of doxycycline. Good luck with that!
Posts: 2557 | From home | Registered: Aug 2006
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posted
I've had these internal vibrations for about a year and a half after contracting lyme. It was only after treatment for that entire time did they go away for the most part. During herxes they got worse for me and I had full blown jerks and tremors.
The internal vibrations were 24/7 for me. It was like my nerves were super stimulated, I would mentally picture the nerve ending vibrating like the tip of a rattlesnake.
Also, during herxing, in the morning upon waking up, I would get a shaking feeling. This did not feel internal at all. I would have sworn I was laying on a washer during its spin cycle.
Now, 2 1/2 years into treatment, I still get all this, but its very infrequent and much milder.
- Mike
Posts: 153 | From Watertown, CT USA | Registered: Feb 2004
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posted
I had multiple shaking and tremor problems...hands, head, whole body, plus feelinging a buzzing vibration in my brain. Believe me when I tell you that you don't want to get an MRI when your head is feeling that way.
I've never had B12 shots. All of my shakiness, tremors and vibrations have gone away after almost a year of heavy duty abx. thank god!
This post brings back such bad memories. And yes, my symptoms were always worse upon awakening and became better as the day progressed. It's a curious feature of this infection that I always wondered about also.
Patti
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Tremors on waking up, that get better as the day continues, really does suggest autonomic nervous system dysfunction. The blood pressure is often lower when waking.
Also, my doctor said that sublingual B-12 for many people is as effective as injections and it's much less expensive.
The brand he uses is Perque Activated B-12 Guard, 2000 mg sublingual tabs. He suggests doses of 2-3 tabs at a time, up to a total of 40 tabs a day. But most people are around 12-15 per day.
Each tab should be taken with folic acid. He recommends the use of Folirinse by Scientific Botanicals. It's a liquid, 10% Folate Solution. You put one drop on each B-12 tab, and put it under your tongue.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
This became 24/7 for me last fall after two years into treatment. At first it was so bad the bed would literally shake. Now others can't see the tremors unless I hold a piece of paper, but I can see and feel it all the time. Plus the internal vibrations.
It led to myoclonic jerking and increased muscle twitching. Have to take seizure meds because of it.
This may turn out to be Bart for me because Bart recently turned positive in testing even though my LLMD and I suspected it despite previous negative tests.
The jerking often gets worse as I go to sleep and as I try to wake up. Sometimes it wakes me up from sleep.
One person had posted here on Lymenet that it's like having a car on high idle. For me, that's the perfect description. In fact, I told my LLMD about that description because he calls it an internal vibration and he thought it was an excellent description.
I have not yet noticed improvement on either injected or sublingual B12, but I'm continuing the sublingual B12.
Also, I recently had my neurotransmitters tested because I kept bugging my LLMD to test me to figure out how we could help me. Some of my neurotransmitters are a little low, but my LLMD said it's not as bad as many Lyme patients he sees. But I'm going to start some supplements (mostly amino acids, etc) soon. I'll post if they help with these symptoms.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
I get this, but mine is more of a shakey feeling rather than a vibration. It feels like my blood sugar is VERY low. I have not really noticed what time of the day is the worst. I am diabetic, so I of course check my blood sugar right away, but it is almost always fine. When I get these sensations I usually have alot of muscle fatigue also. It feels to me like after you've had the flu and been throwing up for a day or so. Very strange!
posted
Actually, this problem was one of the first things that tipped me off to the possibility of having Lyme. I developed a shaking that made me look like I was having a seizure, and muscle spasms that were powerful enough to fling my legs up into the air. When I started on high doses of magnesium (specifically the Natural Calm powdered form), they improved dramatically.
I do still have it at times, though, especially during a herx. And they are worse when I am tired.
I will have to try the B12 y'all suggested... thanks.
Posts: 220 | From central TX | Registered: Jun 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I had this for a little while. I'm not sure why it stopped. It was quite some time ago.
It may have had to do with me taking B-12 again.
I use Sublingual BTotal Liquid Solutions. It has 1000 mcg. B-12 per dropperful, plus some B-complex vitamins to aid absorption & synthesis.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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I had this and my husband still has it but he lives in Lyme denial... My LLMD said that it was caused by Demyelination cause by the lyme. The truth is that I have a gut feeling it was more a Bart symptom...
I use Co Q10 and have been symptom free for about two years now. At one point it was so bad that couldn't type without repeating letters.
BTW, We have ALOT of bart in the Garden State
hope this helps,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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posted
Jazzman and others. I got really excited when I found this stream of posts! This describes exactly what I've been feeling for a couple of months and have had difficulty explaining to others what it feels like.
Mine too is definitely worse at night or in the morning and gets better during the day. You described how it gets worse when you roll over and then calms down after you lay still. Same here.
I've also noticed if I get up during the night to go to the bathroom, when I lay back down it's bad for a while.
I've also developed twitches. Mostly in my legs, but sometimes other places as well. These aren't cramps, just twitches or spasms.
I've also been really weak and shaky all over.
I'm going to ask my LLMD about folic acid and B12.
I'd not heard of BFS and went and checked the url's given below. But, since I have muscle weakness along w/ the twitching, it doesn't sound like it could be that for me.....the hunt continues.
I'm still waiting on my labs to come back from IGeneX to see if I test positive on anything....
-------------------- Susan T. Posts: 28 | From Austin, TX | Registered: Oct 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Had this for a while. Way worse when herxing. Better now for me after treatment.
I think bea has a point. Wouldn't hurt to get a fasting blood sugar test. To be on the safe side.
hope you can feel better soon.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
thyroid? If you are low or high(this sounds like you) it would be most off in the morning.
Have you tsh, thyroid antibodies, t3, t4, antibrush border, ana checked at a GOOD endocrinologist..
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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posted
Ditto! I have shakiness, tremor, weakness, imbalance, large muscle jerks , nerves on edge, you name it.
Posts: 56 | From bayarea | Registered: Nov 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have had this shaky, trembling sensation too.
Before being dx with Lyme, I thought and described the sensation as my blood sugar just bottomed out.
So to try to compensate I ate sweet things. I used to have hypogylcemia when I was in High School.
Doxy has helped this, but because I ate so much sugary stuff during the last 3 months, my blood sugar level has been high.
My regular MD has been trying to dx me as being "prediabetic".
Great topic.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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