posted
I still feel that I have toxicity...I dont feel pain that well...problems with lungs at night like not enough air and the sensee that every day someting else is getting worse..they say that it has never happened here but I think it has..it sounds like I have signs of overdose..or maybe to much art..I took it with cod liver oil if that made it worse and each pill I took m would tingle..so I dont think I am out of the woods... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yo, Igloo boy
DID YOU GO TO ER?
If not, why not?
You have to co-operate with us here a little!
We're not ducks ya know!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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Cobweb
Unregistered
posted
yes Zman he went -and for the third time was told that he's okay physically,so...It feels like we are all whistling in the wind trying to relieve PB of his angst.
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posted
it is that I just dont have a break in symptoms and the fact that alchohol on an open wounds causes no pain is very troubling..I am calm today though.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
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Cobweb
Unregistered
posted
If calm today -then why the post 2 hours ago still obsessing on overdose of Art?
The most glaring symptom I see right now is OCD and there, but for the grace of God go I.
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posted
thay say that I am ok but to me I am not..I have to many symptoms that are not normal...I have problems with lung function..and other things like no pain that are worrysome..I know they say that nothing is wrong but I dont feel that way...I feel that they just cant see it on the tests but I can feel it.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
From the lyme I have had breathing problems and completely lost ALL sensation in my toes feet and halfway up both of my calves.
Both of my hands had much less sensation then they should have. I would give something to some one that to me barely felt warm and they would touch and say what are you trying to burn me it is blazing hot.
So while your symptoms are very scary they actaully are not that unusual with lyme/coinfections.
Are you on any treatment for lyme and/or coinfections now. I know you stopped the art but are you on any other abx?
Hang in there ... I used to have palpataions that scared me quite a bit ... so I know how hard it can be waiting for scary symptoms to clear.
posted
Eric, I'm sorry, but I do not understand why you don't add more comments to your original post instead of starting 10-13 separate posts!
People give you advise; you disregard totally!
I realize you are ill, and I sent you a PM about this, but I agree on what COBWEB told you above.
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Perhaps not feeling pain can be seen as a good thing?
Medical tests can lie, but if your lung function is checking out normally perhaps you are hyperventilating?
Are you on any anti anxiety meds?
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
No, I don't smell a troll at all...I spent at least an hour on the phone with Eric.
The poor guy has a family and employees and is just beside himself and bewildered wondering if he can keep up. lots of us have been in the same spot. I didn't detect any interest in disrupting this site.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
No Pain? I know that one.....try an oven burn 2" long, smoke coming off of it..........and not feeling a thing. (and I never tried Art !)
Hopefully you are in close communication with your llmd and following his protocol. If you are unhappy or concerned, it is not unheard of to change to another.
However, everything you are experiencing......the "forgetting to breathe", sternum pain, lack of awareness of muscles (I could not lift a bag of groceries with hand because it would have pulled the wrist and finger joints out of their sockets), wondering whose alien hand was shampooing my head, etc......all neuro stuff.
Hang in there, it does take a while, but you will improve. Check the supplements I recommended, to help repair.
Yes, lyme is not just a rash or swollen knee, true? That's what people have been trying to tell the medical world.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
sounds like aniexty attacks , with associated paranoia, and manic depression
need psych help asap.
the more you worry the greater the symptoms become. once stable the docs can find what is wrong if anything.
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
Eric, Years ago I took a drug at prescribed dose that left me with many strange and scary neuro symptoms, similar to yours . I think the drug disrupted acetylcholine level and I also wondered if my symptoms were permanent damage . They lingered a little while, then slowly dissipated as my body REGULATED itself and the acetylcholine level .
I think you are having temporary symptoms due to an intense herx , and perhaps the herx caused anxiety .
You will get back to baseline normal again , but probably need some anxiety med help . I did.
It is highly unlikely that this could have permanent consequences .
Tell your doc you are having anxiety , and if you treat that , the rest will not seem so formidable.
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
docdave was not kidding but serious. with increased aniexty comes increased epinephrine levels(fight or flight mechanism) this shuts down peripheral functions and only allows autonomic functions. along with this comes increase acetylcholine production also. seritonin levels go out the roof .
all these increse with more the more attacks you get.
you need 2-3 meds initally to lower these levels. 1) antianiexty meds clonopin works fast and doesnot make you have a hangover. 2) sleeping pill ,poor sleep, reduded rem and viola more attacks. clonopin can also be used in a higher doe to help with sleep thru night. 3) ssri SELECTIVE SEROTONIN REUPTAKE INHIBITORS paxil, zoloft, prozac. problem with these are they take 2-3 weeks to start to work. they level serotonin, norepinephrine and dopamine.
your pcp should not give you these ,but a psychiatrist with advanced knowledge with chronic diseases. you can usually find them with cancer group and usually very good.
once your brain chemicals are normal you will find a big difference and many symptoms will go away.
many symptoms at this point may be psycosomatic.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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posted
I have problems that point to toxicity of art..It was over three weeks to get where I am now..now there is not pain response and I dont feel pain..I am losing wieght and when sleeping have problems with sleep and breathing.. this is all after taking art..i am beside myself trying to figure out how this happened..also I have brain stem problems no sweating,blood pressure..I am not in good standing..all my nerves feel wierd..what to do now... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I told you, to try hyperbaric. It will restabilize your body and your sympathetic/parasympathetic nervous system. You'll see.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
will it restore my neurological problems?there is alot of problems..I think that it may work...hyperbarrick... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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posted
also would it restore the function of the brain stem neurons..eric
Posts: 593 | From long island ny | Registered: Apr 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
quote:this is all after taking art..i am beside myself trying to figure out how this happened..
Eric, you stated it better than any of us could have. You are driving yourself crazy over this. Stop trying to figure it out - you can't. You had a bad reaction. Period.
Time to think about getting better, and the things that people have suggested you try.
And go easy on the abx!!! Hopefully, you have learned your lesson about going slow with any kind of treatment! Most of us have had to learn this just like you did.
All the best, Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
truthfinder the reaction I had to artemisinin was not the same as everyone else...when I stopped the art I thought well I will just wate and see..then the tingling started all over the body..then two week later I cant feel pain..my blood pressure is no longer controlled ny the brain...it has its own mind..I cant sweat anymore..sexual function gone..auditory reflex on hyper alert..eyes like looking thru snow..feeling cold all the time..eating like a horse and losing weight..so ther is alot on the table..I am stuck on trying to figure how I went wrong..was the dosage to high..etc. this to me looks like an overdose condition..when taking the meds on the first day i was just very emotional and the second day I awoke freezzing my *** off..and the third you know the story..now to get better...how to do this..a guarranty you there is damage and as if I did not have enough already with the wurst spect scan around...so this is why I act like I do..looking at what is in front of me is not good... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
quote:...the reaction I had to artemisinin was not the same as everyone else...
I understand that.
No two people on this board will have the same reaction to the same dose of anything. And some people have very bizarre reactions to certain things.
Why do you think you should be special and NOT have a bad reaction to something?
I have seen several posts here where people have had neuro symptoms similar to yours, some taking Art and others not taking it.
Try to let go of the question of WHY it happened. I know that might not be easy, but try to do it anyway. I think the answer is that the Art didn't agree with your unique Lyme Disease state at this point in time.
You are putting all your mental energy into the wrong place and probably making your own symptoms worse. I said that before, and the ER told you the same thing. And others have expressed this opinion, also.
Obsessing about this is your enemy. Do your best to stop that cycle. It is nothing but a downward spiral and you don't want to go there.
I've got to get to bed.
All the best, Eric.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Eric, You said, "I am stuck on trying to figure how I went wrong..was the dosage to high..etc."
Looking at this situation from a more objective point of view, I'd say you are approaching this in entirely the wrong way.
What's done is done, and even if you knew for sure that it was too high a dose of the artimisinin, there's nothing you could do.
Right now, in addition to your various symptoms, you are having some mental health involvement: very high anxiety and obsessing about the cause of the symptoms.
Actually, I think this is understandable, because your symptoms came on suddenly, they are weird, and you don't know what to do. Plus, Lyme can cause anxiety.
When you're in the middle of a crisis, it can be difficult to evaluate all your options and choose the best one.
Yes, you're being a pain in the butt. However, that's a good thing, because now people are paying attention to your pleas for help.
If the artemisinin caused a big die-off of Lyme bacteria, you would have a large number of neurotoxins circulating in your body.
It may take a while for the liver to detox all of this. It seems to be causing autonomic dysfunction.
I don't know how to treat autonomic dysfunction. It makes sense, though, that giving your liver some support in doing its job would be a good idea.
The liver uses glutathione to detox. It seems the best way to supply glutathione is to give the body the things it needs to make the glutathione.
Full Range and Highest Levels of Naturally Occurring Glutathione Precursors: Covalent Bonded Cysteine, Lactoferrin, Immunoglobulins, and Active Peptides.
This is one idea to help your body repair the damage.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
I dunno, polar.......you sure sound like a pain. lol
Wishing you the best of luck...but you really need to read through the responses you get. Lots of good advice there. If you don't take it, and try to learn from it.....well, i just dunno.
Take care.
Posts: 1366 | From Southeast | Registered: Sep 2005
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tailz
Unregistered
posted
Hey guys, ease up on polar. Lyme affects each one of us differently. I know I'm up posting and not always reading replies - I'm lucky if I remember my name some days.
Polar, though I don't have the sensations of not feeling pain that you describe, I do believe you. I believe anything at this point. I would recommend researching food allergies though.
I know a lot of my feelings of panic and psychiatric symptoms got worse when I ate even tiny amounts of certain foods - namely wheat, gluten, corn, soy, and eggs - so pretty much anything I was eating on a daily basis.
I don't know about your other symptoms, but I hope you do get to the bottom of them and feel better soon.
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yo Nobody is REALLY picking on igloo boy...
cept a couple who think he's a little stinker!
The overidding issue here is that the symptoms he is presenting don't necessarily have to do with any type of overdose of anything...
Lyme alone caused me to have the same symptoms....a few years ago...
I was cleaning candle holders for my church.... I put parts in the oven to heat them up and melt the wax on them.... Then took them out and rubbed them up with BRASSO!
Made them real shiney....afterward I found I had burned my hands and fingers pretty bad...they were blistering....never felt a thing.
What I would'nt give to have no pain in lotsa places now!
Anyway.... The oxygen gulping,OCD,manic/depression,heart palps,numbness in face and or extremeties,lack of weight gain(I wish I had that again)
Whatever else you said....and no abnormal tests...except the pet scan...not enough blood in your brain....which is probably all of us...
You said all this crap started AFTER YOU STOPPED TAKING THE ARTEMISININ....
Well then dear boy...it cannot possibly be a reaction to the art....Do you see....???
IT's Just Lyme neuroborreliosis(JUST)/////
But you go ahead and keep believing what you want.... you seem like you want to anyway...which is PTSD the fear fight or flight syndrome and common with this disease...
I would suggest what stymie says and get on an SSRI...I like Lexapro....it is the only one after trying a lot of others that keeps me from obsessing or getting too depressed....
I do not know what else to tell you....dude!
All the things you are experiencing...
Are ALL NORMAL FOR LYME DISEASE......relax and enjoy the ride.....you will get better...
You just have not been on the right abx yet!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Carol --
Thanks for posting about the whey.
I just started taking a product I had accidently purchased. It had whey in it and I thought I would be allergic to it (dairy sensitivity), so it sat on the shelve for a few months. Finally I tried it and over the last few weeks I have felt really good! Now I understand why. And no problems with the whey/dairy connection.
I was taking things for my liver before... but this certainly has had the most impact.
Z -- hope your writing a book, or something. Too much creativity.
Posts: 1111 | From Colorado | Registered: Oct 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Clairnote...
Just what do you mean?
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
Not to hyhjack this thread - but can someone please explain to me the purpose of the WHEY?
What is it for and what does it do?
Thanks
Posts: 374 | From NJ | Registered: Aug 2006
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Z --
Like the way you write. Very creative. Do you not see it?
Posts: 1111 | From Colorado | Registered: Oct 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I guess I don't "see it"...being "creative"....
By creative do you mean fictional???
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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But what I see is more like a light arey kinda way with words, great strength and wonderful attitude behind the words!
Postive thinking and all! Posts: 374 | From NJ | Registered: Aug 2006
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Well... it could be, if you are so inclined. Or non-fiction.
You have a very unique way of expressing yourself.
I write (as yet unpublished) and took some literature classes... it is hard not to notice the different qualities of writing. There are others here who also have a lot of talent.
Better get back on track though. Don't want to minimize Polar's plight. Hope I didn't throw you off by the compliment.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Ladylee,
Not sure I have enough information to provide you with about whey. I just know that it seems to be a really good source of protein and that it has some glutathione precursors, which help the liver do it's job better. And we all need that here.
Taking the glutathione precursors is somehow better than taking actual glutathione, according to my practitioner. Again, cannot say exactly why.
I really feel a difference energetically, since I have been taking it. But it also might be in the formulation, too. Carol had a link for a product. I use Paleomeal from Designs for Health. It has a lot of enzymes, fatty acids in the form of flax, etc. It is a really nice formulation.
Perhaps someone else will come along with a better answer, so maybe another thread should be started about it.
Claire
***Glad someone else is observant too, about the writing.
Posts: 1111 | From Colorado | Registered: Oct 2006
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LOL - that's the word I was looking for to express what I saw and you see in "Z's" posts -
"A very uniqie way of expressiin himself"
His posts are very injoyable to read.
PS - I thought of that too about starting a new thread on the "Whey" - thanks for the suggestion.
Posts: 374 | From NJ | Registered: Aug 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I was'nt sure if I should thank you or cuss you out! LOL
Thank you....I just shoot from the hip with my writting... I was told in college that I could'nt "just write descriptively" with no rough drafts etc etc and so on...
But I managed to squeak out A's....
But I really suck at punctuation or prescriptive writting...like...proper sentences etc....
and I always told my prescriptive profs that my runon sentences were my style...
pre-Salmon Rushdee....not appreciated...ahead of my time I guess....LOL
I tend to use punctuation in an emotional poetic liscense kinda way....
Let's get together sometime and write a REALLY good book on this dang disease...
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
I am sure you could make a dark subject like Lyme, much more colorful and interesting. Because we certainly don't need another dull book on the subject.
There is a lot more flexibility in writing these days, with regard to grammar. Your punctuation is your trademark... keep it. Part of the creativity.
Perhaps you could alternate chapters with facts and real life stories... borrow some of the threads here if you can get permission. Not sure. Just throwing out ideas.
At any rate... there is a lot of good energy behind your words, etc.
Signing off now... have to pick-up a child.
Claire
***Oh yes... thanks for not cussing me out. That is the last thing I need today.
Posts: 1111 | From Colorado | Registered: Oct 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
who is his llmd? what does he say? in ny you have the pick of a bunch of good ones
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Thanks Claire and others...
I have a book in me somewhere...or an episode on law and order...
about lyme dummies...ducks...or something...
Like criminal negligence of a duck causeing a lymie to die...
And then maybe his child sending that duck some ticks in a letter...
A few twists and turns...and such...like when ole John Boy became a psycho killer because his brain was infected with syphilis...
If you get inspired with this anyone...you have my permission to use it...
for literary purposes only.......
By the way Claire...my wife would love to have a house with a picture window view of the Colorado mountains...
Got any dirt cheap there?
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
Sounds like a great episode for law and order. Do you think the child would get a lighter sentence?
My husband told me that there have been a few episodes of "House" that have featured Lyme. I don't watch a lot of TV, so I am not sure what that series is about.
There are plenty of properties here in Colorado with lovely mountain views, but not dirt cheap, unfortunately. Ours was taken away by our neighbors growing trees. Who would have ever thought I might hate trees?! Well, just those trees... Tell your wife I am sorry, nothing cheap.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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