LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » what does a month of rocephin do?

 - UBBFriend: Email this page to someone!    
Author Topic: what does a month of rocephin do?
danielb
LymeNet Contributor
Member # 8522

Icon 5 posted      Profile for danielb     Send New Private Message       Edit/Delete Post   Reply With Quote 
just wondering if just putting in a month of rocephin 2g-4g a day may help much?

i tried amoxy 6mg for a month, glimmer of improvement temporarily,

tried biaxin/flagyl, was clearer soon after earlier on, but after a week or two i had a crazy reaction and had to stop.

may being serious and going for the rocephin (for neuro), if just for one month, help expedite improvement... or would i need more?

i'm pretty convinced IV is what i need.

i have also tried mino.

Posts: 244 | From Ottawa | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
Why only a month?

Just so you know there are other IV meds besides rocephin.

What a month will do will vary between individuals...

but I can tell you that I did not have any improvement till the 7th week.

Also rocephin can cause gallstones and some people (including myself) loose their gallbladders due to rocephin.

You should be aware of that before you and your dr decide on rocephin.

Best wishes

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
For some people in our local group 1 month of Rocephin means a great deal- for me it did notihng- I needed 9 months- the first 6 months nothing happened that I could see and then every day was a new miracle!!!!!!!!!!!!!!!!!!!!!!!
One person in our group needed 2 years and she went into full remission after 9 years very ill!
I am 99.9% but not in full remission. Some people it really helps in 1 month. SOme it doesn't. Depends on sick oyu are & how long sick- one suggestion- make sure you have been treated for ALL co-infections PRE Rocephin because they may impede progress!!!!!!!!!!
Take care,
Sincerely,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
lyme4
Member
Member # 10723

Icon 1 posted      Profile for lyme4     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

My daughter, 14, is on IV, first Rocephin for 3 months, now she is on Claforin, because she developed gallstones.

The first month she herxed. She started in the summer so that was good for school.

She wants her PICC line forever. A teenage girl who knows this is what brought her back to life. However, she is almost done with her 4 month, and I would say she will go beyond 6 months. She is not cured at all. She had to be off the IV for 5 days until her liver functions were fine and when she went back on IV, she major herxed.

She still has far to go but is she getting better, definitely.

I asked that questions too. How long? I got the answer when you feel good for two months then maybe your ready.

Lyme4

Posts: 60 | From RI | Registered: Dec 2006  |  IP: Logged | Report this post to a Moderator
danielb
LymeNet Contributor
Member # 8522

Icon 1 posted      Profile for danielb     Send New Private Message       Edit/Delete Post   Reply With Quote 
the goal is to basically treat my neurolyme with the most proven evidence based technique following the columbia-fallon strategy, 1 month because:

-it is best to fly under the radar of our province insurance's investigational powers; he doesn't need any crap, he treats a lot of patients. i already claim like 10 meds via the odb plan, and they have audited me before (mostly to verify my rxs were not forged, trying to use their plan to cover uses not covered in formulary,) they totally have friendily cleared me, but they may check me up again

-gallstones are a serious concern given my high incidence of stomach complaints with abx meds; ursodiol will be a must, this is a huge insurance very high visibility flare gun charge to them, despite our govt departments general incompetence

-i herx like bananas, i almost wonder if my herxing is capable of permanent damage they are so severe, i imagine since i have had this congenitally likely, i have burrowed cysts galore, i should go easy on myself i think...

-i have taken a lot of abx now, not a lot compared to you guys, but taking biaxin/flagyl practically had an immediate clearing effect on my mind, and my pdoc started thinking i was going manic (bah,) unfortunately i got violently and agonizingly sick soon after and had to stop the meds, and it took a while after stopping for the sickness to stop and i could eat again. i believe taking the high amoxicillin beforehand primed this immediate mind-clearing effect i got a blessful taste of before the sickness tho, so i will prolly take another neuro abx soon after, likely a mino/plaquenil/tinidazole combo.

sorry too long, and needlessly unfragmented.

i will also prolly be taking magnesium galore along with ceftriaxone IV. IV will be a huge plus, so i dont deal with mag clearing much abx out of me, i gather.

Posts: 244 | From Ottawa | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
caat
Frequent Contributor (1K+ posts)
Member # 2321

Icon 1 posted      Profile for caat     Send New Private Message       Edit/Delete Post   Reply With Quote 
I did one month of rocephin. Added flagyl at week 2 of it, followed that month with 4 or 5 weeks of high dose ceftin and tinidazole. Also used flucanazole (for the yeast). Had to use flucanazole for another month to get rid of all the yeast. I think I got rid of the lyme itself and am now working on coinfections.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
Travlr1
Member
Member # 9681

Icon 10 posted      Profile for Travlr1     Send New Private Message       Edit/Delete Post   Reply With Quote 
danielb,

ALS/neurolyme for 2 years(almost wheelchair bound). 2 months Rocephin 1 gram per day I.V essentially stopped the 3-4 pounds / month of muscle wasting and ever increasing weakness. I gained back 15 pounds(of the 30#)of muscle that I lost just with activities of daily living.

I still am definitely not "cured" and continue to battle other symptoms, but I'll take the above anytime(the results). I had previously failed on orals.Would have gone on it longer,but lost my Picc line and have developed some hypersensitivity issues.


Hope this helps. [Smile]

Travlr1

Posts: 66 | From West Coast | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
caat
Frequent Contributor (1K+ posts)
Member # 2321

Icon 1 posted      Profile for caat     Send New Private Message       Edit/Delete Post   Reply With Quote 
danielb,

I added flagyl and later tinidazole on my own. My old ID doc wouldn't rx it. I guess he does now with new lyme patients after I sent him some studies. I found flagyl MUCH easier to add after 2 weeks- before that it was intolerable- I think the bbb had to heal some before it could be tolerable.

If you get the rx's Flagyl is cheap, and I got the tinidazole even cheaper from Mexico. Costco has a special deal on 36 tabs of 200mg flucanazole for around $49 I think.

If you buy drugs yourself I don't beleive it's in any insurance company's audit. If you have an rx and you are paying for it out of pocket it's none of their business.

I went for ceftin because it's a cephalasporin that crosses the bbb better than omnicef. Ceftin is expensive though...

Yeast buildup is BAD on this therapy. Very bad- can be nuerologically bad. So- I used fluconazole. Yeast is BAD on biaxin/flagyl too, I wonder if that's why you got so sick...

best of luck!

Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.