cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Anyone else have this symptom occasionally? Is it connected to any other symptom for you? Maybe fatigue?
I've had intermittent problems with feeling that I'm drooling, along with slight numbness in my lower lip & to the right of my chin, when overly exhausted (first noticed this in college after pulling all-nighters - thought I was just overtired). It generally went hand in hand with numbness and tingling in extremities.
It was one of my main problems when I was misdiagnosed with MS a few years ago, too.
Since I've been in Lyme treatment, it has not been an issue, & I had almost forgotten it, but today it's cropped back up.
Recently I've been very fatigued, and now the drooly feeling has returned, along with numbness of my lower lip & just below, to the right of it. Numbness in hands and feet, too - as opposed to the usual burning/tingling pain.
I feel completely disconnected from my body, and as though I'm pushing through water with lead balloons tied to my arms and legs. Noticed a strange rash this morning, too - but not sure if it's connected.
Anyone else experience this? Does anything help?
Thanks for your thoughts on this... Cactus ...trying not to drool on the keyboard...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Cactus,
Although I have not had this symptom, since Lyme causes Bell's palsy (paralysis of Cranial VII on one side of the face) it would seem as though this symptom wouldn't be atypical.
Try this. I am a Speech Pathologist and I've used this with stroke patients with numbness and paralysis to their face.
Take a washcloth. Wet it slightly. Put an icecube in it.
Take the washcloth and brush it gently on the numb areas of the face in an upward motion.
Just brush up for a couple of minutes, then stop. Then repeat for a few minutes.
This technique is called brushing and icing and may help restore some sensation as well as tone in affected facial areas.
If your skin is sensitive, follow with mild face cream again massaging upward.
Try to do this 2-3 times a day. I sure hope this helps.
Merry Christmas. Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thank you, Geneal - great suggestion. I'm going to try it right now.
I had wondered if this might be a Bell's Palsy type symptom, in which case it would make sense.
It seems to have progressed from numbness to tingling/burning sensations on the right side of my face now - ugh. Makes the ice sound all the more appealing, though.
Have a great holiday, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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bettyg
Unregistered
posted
geneal, thanks for sharing your experitise here!
would you copy your comments and paste to TREEPATROL'S NEWBIE LINKS ... replies. ask him to add it to anything he has on BELLS PALSY; thanks! it's too good not to be archived.
i drool but only while in bed sleeping! i love cough drogs to help me with my DRY mouth, but it goes all over pillow cases!
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi cactus,
Yeah I have had this symptom, it can be embarrassing too. I still sometimes wake up drooling on my pillow, but at least I am not doing it in front of anyone. I have had the numbness /tingly stuff also. It does get better with treatment. Great info above.
As far as your rash, could you possibly have gotten re-infected?
Posts: 6638 | From Michigan | Registered: Jun 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Beverly, it sure is embarassing. I'm glad to hear it'll get better with time and treatment.
Hadn't considered re-infection. Uh oh. I think it's unlikely, at least I hope it is. The rash isn't anything like a bulls eye, but... I'll take a photo and show my LLMD in Jan. Thanks.
Betty, I'm glad you only drool on your pillow! The daytime drooling is really no fun!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Here is some more information, from Tincup.
Sometimes during research you may find reference to a specific cranial nerve that has been affected by the Lyme, such as with Bells palsy.
Since I can't remember all of the individual nerves and their individual functions, I found this site and cut and pasted them all together from different areas and pages so we could have an easy reference list here.
1. Check the list and match it with your symptoms if neuro Lyme is your problem. It will indicate which nerve has been affected. This hopefully will explain symptoms and problems better for you! It does for me.
Cranial nerves: Nerves that emerge from or enter the skull (the cranium), as opposed to the spinal nerves which emerge from the vertebral column. Cranial nerves come directly from the brain through the skull. There are 12 cranial nerves each of which is accorded a Roman numeral and a name:
Cranial nerve I: The olfactory nerve, Cranial nerve II: the optic nerve, Cranial nerve III: the occulomotor nerve, Cranial nerve IV: the trochlear nerve, Cranial nerve V: the trigeminal nerve, Cranial nerve VI: the abducent nerve, Cranial nerve VII: the facial nerve,
Cranial nerve VIII: the vestibulocochlear nerve, Cranial nerve IX: the glossopharyngeal nerve, Cranial nerve X:the vagus nerve, Cranial nerve XI: the accessory nerve, and Cranial nerve XII: the hypoglossal nerve. The cranial nerves are nerves of the brain. Cranial nerve I:
The cranial nerves emerge from or enter the skull (the cranium), as opposed to the spinal nerves which emerge from the vertebral column. There are twelve cranial nerves.
The first cranial nerve is the olfactory nerve which carries impulses for the sense of smell from the nose to the brain. The word "olfactory" comes from the Latin "olfactare", to sniff at and "olfacere", to smell.
Cranial nerve II: The second cranial is the optic nerve, the nerve that connects the eye to the brain and carries the impulses formed by the retina -- the nerve layer that lines the back of the eye, senses light and creates the impulses -- to the brain which interprets them as images.
In terms of its embryonic development, the optic nerve is a part of the central nervous system (CNS) rather than a peripheral nerve. The word "optic" comes from the Greek "optikos", pertaining to sight. Aside from the optic nerve, the eye has a number of other components. These include the cornea, iris, pupil, lens, retina, macula, and vitreous.
Cranial nerve III: The third cranial nerve is the oculomotor nerve. The oculomotor nerve is responsible for the nerve supply to muscles about the eye:
The upper eyelid muscle which raises the eyelid; The extraocular muscle which moves the eye inward; and The pupillary muscle which constricts the pupil.Paralysis of the oculomotor nerve results in drooping eyelid (ptosis), deviation of the eyeball outward (and therefore double vision) and a dilated (wide-open) pupil.
Cranial nerve IV: The fourth cranial nerve, the trochlear nerve, is the nerve supply to the superior oblique muscle of the eye, one of the muscles that moves the eye. Paralysis of the trochlear nerve results in rotation of the eyeball upward and outward (and, therefore, double vision).
The trochlear nerve is the only cranial nerve that arises from the back of the brain stem and it follows the longest course within the skull of any of the cranial nerves. Cranial nerve V: The fifth cranial nerve is the trigeminal nerve.
The trigeminal nerve is quite complex. It functions both as the chief nerve of sensation for the face and the motor nerve controlling the muscles of mastication (chewing). Problems with the sensory part of the trigeminal nerve result in pain or loss of sensation in the face. Problems with the motor root of the trigeminal nerve result in deviation of the jaw toward the affected side and trouble chewing. The term "trigeminal" comes from the Latin "trigeminus" meaning "threefold," referring to the three divisions (ophthalmic, maxillary and mandibular) of this nerve.
Cranial nerve VI: The sixth cranial nerve is the abducent nerve. It is a small motor nerve that has one task: to supply a muscle called the lateral rectus muscle that moves the eye outward. Paralysis of the abducent nerve causes inward turning of the eye (internal strabismus) leading to double vision. The word "abducent" comes from the Latin "ab-", away from + "ducere", to draw = to draw away.
The abducent (or abducens) operates the lateral rectus muscle that draws the eye toward the side of the head. The abducent nerve is also called the abducens nerve. Cranial nerve VII: The facial nerve is the seventh cranial nerve.
The facial nerve supplies the muscles of facial expression. Paralysis of the facial nerve causes a characteristic picture with drooping of one side of the face, inability to wrinkle the forehead, inability to whistle, inability to close the eye and deviation of the mouth toward the other side of the face. Paralysis of the facial nerve is called Bell's palsy.
Cranial nerve VIII: The eighth cranial nerve is the vestibulocochlear nerve. The vestibulocochlear nerve is responsible for the sense of hearing and it is also pertinent to balance, to the body position sense. Problems with the vestibulocochlear nerve may result in , (ringing or noise in the ears), vertigo and vomiting.
Cranial nerve IX: The ninth cranial nerve is the glossopharyngeal nerve. The 12 cranial nerves, the glossopharyngeal nerve included, emerge from or enter the skull (the cranium), as opposed to the spinal nerves which emerge from the vertebral column. The glossopharyngeal nerve supplies the tongue, throat, and one of the salivary glands (the parotid gland). Problems with the glossopharyngeal nerve result in trouble with taste and swallowing.
"Glosso-" comes from the Greek "glossa", the tongue and "pharynx" is the Greek for throat. So the glossopharyngeal nerve is the nerve that serves the tongue and throat. Cranial nerve X: The tenth cranial nerve, and one of the most important, is the vagus nerve.
All twelve of the cranial nerves, the vagus nerve included, emerge from or enter the skull (the cranium), as opposed to the spinal nerves which emerge from the vertebral column. The vagus nerve originates in the medulla oblongata, a part of the brain stem. The vagus nerve is a remarkable nerve that relates to the function of numerous structures in the body.
The vagus nerve supplies nerve fibers to the pharynx (throat), larynx (voice box), trachea (windpipe), lungs, heart, esophagus and most of the intestinal tract (as far as the transverse portion of the colon). And the vagus nerve brings sensory information back from the ear, tongue, pharynx and larynx. The term "vagus" (Latin for "wandering") is apt because the vagus nerve wanders all the way down from the brainstem to the colon, a long wandering trek. Complete interruption of the vagus nerve causes a characteristic syndrome. The back part of the palate (the soft palate) droops on that side. The capacity to gag (the gag reflex) is also lost on that side.
The voice is hoarse and nasal. The vocal cord on the affected side is immobile. The result is dysphagia and dysphonia (trouble swallowing and trouble speaking).
One of the best known branches of the vagus nerve is the recurrent laryngeal nerve. After leaving the vagus nerve, the recurrent laryngeal nerve goes down into the chest and then loops back up to supply the larynx (the voice box). Damage to the recurrent laryngeal nerve can result from diseases inside the chest (intrathoracic diseases) such as a tumor or an aneurysm (ballooning) of the arch of the aorta or of the left atrium of the heart. The consequence is laryngeal palsy, paralysis of the larynx (the voice box), on the affected side. Laryngeal palsy can also be caused by damage to the vagus nerve before it gives off the recurrent laryngeal nerve.
Cranial nerve XI: The eleventh cranial nerve is the accessory nerve. The accessory is so-called because, although it arises in the brain, it receives an additional (accessory) root from the upper part of the spinal cord. The accessory nerve supplies the sternocleidomastoid and trapezius muscles. The sternocleidomastoid muscle is in the front of the neck and turns the head. The trapezius muscle moves the scapula (the wingbone), turns the face to the opposite side, and helps pull the head back. Damage to the accessory nerve can be isolated (confined to the accesssory nerve) or it may also involve the ninth and tenth cranial nerves which exit through the same opening (foramen) from the skull . Accessory neuropathy (nerve disease) can sometimes occur and recur for unknown reasons. Most patients recover. Paralysis of the accessory nerve prevents rotation of the head away from that side and causes drooping of the shoulder. Cranial nerve XII: The twelfth cranial nerve is the hypoglossal nerve. The hypoglossal nerve supplies the muscles of the tongue. (The Greek "hypo-", under and "-glossal" from "glossa", the tongue = under the tongue). Paralysis of the hypoglossal nerve affects the tongue. It impairs speech (it sounds thick) and causes the tongue to deviate toward the paralyzed side. In time, the tongue diminishes in size (atrophies). [This message has been edited by Tincup (edited 08 March 2001).]
-------------------- God Bless You! Everything..is just my opinion. Posts: 6638 | From Michigan | Registered: Jun 2001
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Dopamine connection.
2 major neurotransmitters are present in the body AND brain (many more in the brain):
acetylcholine and norepinephrine.
In lyme, acetylcholine is being made rapidly, broken down, made... as Bb has in its genetic code C-acetyltransferase - the enzyme we need to make acetylcholine from the breakdown of sugars and fats (acetyl CoA) and choline. Bb cannot breakdown acetylcholine.
The body is trying to "counter", IMO.
Ethanol is impacting the neurotransmitter receptors too. This is alcohol. All spirochetes ferment sugar to ethanol.
posted
beverly, thanks for finding this valuable info on the cranial nerve broken down 1-12 by tincup!
i just added this link to my newbie links/advise; will come in very hand for others.
beverly, where did you find this? in treepatrol's newbie links?
if not, would you copy/paste what you posted from tincup to treepatrol's newbie links; very valuable info! thanks.
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cactus
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Member # 7347
posted
What a wealth of information. Thanks so much, Beverly and Marnie.
Still drooling... Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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i was in san jose ca a few weeks ago and was able to watch a tv show. a naturopath was on discussing parasites ( babesia) and how they affect our saliva.
she stated that the parasites are more active at certain times - especially at night and - expect to drool at night because of their increased activity ( more active during the full moon phase). she must have experienced this with her husband who had lymes for 3 years - (he recovered!!)
cactus, i have not researched this - but it certainly makes sense to me
i do have less drooling now then a year ago.
are you taking any thing to slow down nerve damage from the toxins
doing that helped me immensely. those spirocytes- they are so hungry for the myelin sheath. fool them and then kill 'em
take care mags
Posts: 259 | From California | Registered: Mar 2006
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