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» LymeNet Flash » Questions and Discussion » Medical Questions » Chronic Lyme 10 year anniversary

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Author Topic: Chronic Lyme 10 year anniversary
momquixote
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Hi-

I just past my 10 year anniversary for Lyme. I began treatment about 3 months post-tick bite, and am still on maintenance abx & herbal support ten years later. Although I am no where near as sick as I was at first, I'm currently experiencing a lot of headaches, body aches & fatigue. According to most things I read, I should be over this---wondering whether I anyone else has a similar experience, or if I'm just whiny. ;-)

Posts: 6 | From Texas | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
sickpuppy
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10 years is a long time. Doesn't seem right to me. Is there any way to get to a new llmd or something?
Posts: 702 | From North Eastern USA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
kidsgotlyme
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It depends on what you've been reading. Lots of people on here have been on treatment for years and are not totally better.

If you are still having symptoms, you need to find another doctor who will treat you until your symptoms are totally gone.

You are not being whiny. You are sick! I'm sure someone will come along soon and give you some good advice and information.

Christie

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1470 | From Tennessee | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
lululymemom
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It's good that you're feeling better but did you treat co-infections at the onset? 10 years ago Lyme treatment must have been alot different than it is now. Now we know that if co-infections aren't dealt with first Lyme treatment can be ineffective.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2026 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
momquixote
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Lulu--I did test negative for babesia, but I took Mepron anyway and improved substantially---so either I had babesia or the Mepron really helped with the Lyme.
Posts: 6 | From Texas | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
txgirl09
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Are you going to an llmd? Its important you find a good doctor who treats properly.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
sutherngrl
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I think 10 years is longer than average; but I do know someone that treated 8 years before reaching complete recovery.

From what me and hubby can tell, we have noticed the average treatment duration to be anywhere from 2 to 5 years. This seems to be the most common time frame.

Maybe you are dealing with more than just tick borne illness.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Keebler
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-
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

=====================

http://www.thefreelibrary.com/Heal+the+hormones+to+heal+from+Lyme+disease.-a0231544999

HEAL THE HORMONES TO HEAL FROM LYME DISEASE - by Connie Strasheim

From The Townsend Letter - July 2010

Excerpt:

In summary, treatment for chronic illness involving Lyme disease requires a multifaceted approach. In addition to getting rid of infections, other aspects of healing must be addressed.

Balancing the endocrine system is one of these, and protocol should involve strengthening the endocrine glands and balancing hormonal production through nutrition, bioidentical hormones, and vitamin, herbal, and other supplements.

Identifying any potential hormone allergies is also key, as is treating the Lyme disease infections, since Borrelia, the organism that causes Lyme, destroys endocrine gland tissue.

Also, and according to some practitioners, addressing hormonal imbalance in Lyme disease is so crucial that some patients may not fully recover unless hormonal deficiencies and imbalances are adequately addressed and treated, because the hormones play a vitally important role in immune system function.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
sutherngrl
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What Keeb says about the hormones. I had to start addressing my hormones recently. Just started to go through peri-menopause and doc says you can't do menopause and lyme at the same time. So I started on hormones.

I also had to address a mood disorder that was triggered by LD.

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momquixote
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Thanks, everyone. The hormone idea strikes a chord...I'm in active menopause, taking replacements, but currently out of balance. Maybe that's all it is. I'll ask my LLMD about the other tests, though. You guys are great!
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Lymetoo
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Maybe you need another round of mepron?? Could be that the babesia never went away completely.

--------------------
--Lymetutu--
Opinions, not medical advice!

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lou
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This disease may not be curable, even by the best LLMD.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

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