posted
My husband got disabling fatigue about 2 weeks after starting cholestyramine. He still has the extreme fatiuge, 1 1/2 weeks later. We were wondering if it could be from the cholestyramine, or from his HHV6 suddenly getting worse, or from something else.
When I started cholestyramine I felt better instantly, so this is very disappointing to us. But if he knows it is a herx, at least he'll know it will get better.
Posts: 311 | From CA | Registered: Jul 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Like your family... one in mine did well, the other did terrible. It sucks being the one on the bad end of the deal... especially watching the one doing well prancing around while you are laid up.
Once the reaction hit.. it never stopped even after stopping the cholestrymine. It just went on and on for months.
I would not give up on the protocol yet though. There can be a period like this and you do come out of it happier.
Also... some folks who are coinfected don't do so well on this protocol. Gotta treat the infections first from what I've seen and noted in patients here in the past.
Just to note- and I don't know why... but the ONLY thing that stopped the bad reaction to the Questran (months later) was taking doxy.
It doesn't make sense to me.. but that is what turned things around.
Good luck to him!!!!
PS. I am NOT a doctor and this is NOT medical advise.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Q: Can cholestyramine cause extreme fatigue herxes?
YES. First, though be absolutely certain that your product does not contain ANY aspartame/Nutrasweet/Equal. Some of the pharmaceutical companies put this is some varieties.
That is a neurotoxin that, alone, and even in a trace amount, can create some severe symptoms.
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Also be sure that you are still getting all your vitamins and minerals. This stuff can deplete the body of necessary nutrients.
You might need to go over your timing of your supplements to be sure you still get adequate nutrition, especially magnesium.
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Either way, even plan, with nothing added, I simply could not tolerate cholestyramine. Some can. Some cant'.
But, you simply might need to make some adjustments - go slow. Be sure to drink LOTS of water and take extra flax meal, etc. so that you do not become constipated.
Personally, I think that any herx needs to be addressed by going more slowly. A herx is not necessary and can be too much of a toll on the body.
I did find that, when I was on this, that Milk Thistle helped. Your husband might want to go back over his liver support as well as his adrenal support measures and make some adjustments.
And, again, depending on the timing of supplements, they need to be taken at a time when they can be absorbed and not captured by the cholestyramine.
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