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»	LymeNet Flash » Questions and Discussion » Medical Questions » Lyme groups and links to them?

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Topic: Lyme groups and links to them?

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

We need a list of the various Lyme chat groups, email lists, sites to post Lyme related things.

If you could.. can you post any links to sites where there are email lists and/or chat groups?

THANKS!!!

[Big Grin]

PS.. If you are a member.. and could post some info on them once in a while.. can you let me know? Double thanks!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

MariaA
Frequent Contributor (1K+ posts)
Member # 9128

posted

www.groups.yahoo.com/group/lyme_aid_buhner

This is the discussion list for the Stephen Buhner herbal protocol- I think the biggest place on the 'net for discussion of this treatment. MOst of the more vocal herbalism users from Lymenet post there frequently. One advantage of Yahoogroups is that once you're a member, there is a cool 'files' section of the Yahoogroups website which most groups use for archiving useful information and organizing it.
I recently joined and post there frequently (I post there as 'Girl Mark', for what it's worth)

I think there's a Yahoogroup called lyme_aid also which is a more general Lyme iist.

californialyme yahoogroup (associated with CALDA I think). THere are also others for many different states - the moderator of Californialyme started a bunch of regional groups recently, and is trying to get the word out about them and about the Lyme Disease Association. The Cal one is very good for you californians.

http://lymecommunity.com/forums/ubbthreads.php/ubb/cfrm is a forum apparently run by the Rife Machines book author (???), not much going on there but there could be.

PLanetthrive.com, while not a forum exactly, is somewhat interactive once you join- it has a lot of links and an 'ask the experts' column for various health topics, including a column answered by Stephen Buhner of the Healing Lyme book. Several other forums and descriptions of several alternative Llyme treatments (Salt/C etc) are linked there.

I just discovered this one, dont' know much about it yet:

http://www.healingwell.com/community/default.aspx?f=30

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

Posts: 2552 | From San Francisco | Registered: Apr 2006 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Maria...

Thanks so much for taking time to post these. I'd never have known of them.. so it is VERY helpful!!!

I will share them with the others who are doing the actual organizing.. and let them know you provided this for all of us to use!

Thanks again for sharing all of the links and names.

Would you be interested in being on a list to post notices on the ones you belong to as the notices are issued? We really need to get more folks to help get the word out.. because often it needs to be done quickly.

Please let me know. You can email me at

[email protected]

Please write Lyme in the title for me so you don't get deleted as junk mail.

THANKS again!

:S

Anyone else can add to the list. Please do.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

posted

Here are 5 of the larger Lyme forums/discussion groups.

Canada Lyme Forum
http://www.canlyme.com/forum

EuroLyme
http://health.groups.yahoo.com/group/EuroLyme/

Brain Talk Communities Lyme Forum
http://brain.hastypastry.net/forums/forumdisplay.php?s=&daysprune=-1&f=175

Morgellons
http://lymebusters.proboards39.com/

Health Boards Lyme Forum
http://www.healthboards.com/boards/forumdisplay.php?s=9372aec055648083652f13a631d759cc&f=82

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004 | IP: Logged |

Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

posted

LymeTimes:
http://www.lymetimes.org/

California Lyme:
http://health.groups.yahoo.com/group/CaliforniaLyme/

Lyme Chat:
http://www.lymediseaseaudio.com/lymechat.htm

Teen Chat:
http://silverfeldman.net/iweb/iweb/Welcome%20.html

Lyme Warriors- Online support for young people:
http://health.groups.yahoo.com/group/Lyme_Warriors/

Public Health Alert:
http://www.publichealthalert.org/

BetterHealthGuy:
http://www.betterhealthguy.com/index.php?option=com_frontpage&Itemid=1

Canadian LD Foundation:
http://www.canlyme.com/

EuroLyme
http://health.groups.yahoo.com/group/EuroLyme/

Brain Talk Communities Lyme Forum
http://brain.hastypastry.net/forums/forumdisplay.php?s=&daysprune=-1&f=175

Health Boards Lyme Forum
http://www.healthboards.com/boards/forumdisplay.php?s=9372aec055648083652f13a631d759cc&f=82

LymeSite:
http://www.lymesite.com/index.htm

Lymenews:
http://lymenews.proboards58.com/index.cgi

Stephen Buhner:
www.groups.yahoo.com/group/lyme_aid_buhner

RIFE:
http://lymecommunity.com/forums/ubbthreads.php/ubb/cfrm

North Carolina LD Foundation:
http://www.nclyme.org/index.html

Lyme Disease News ,com:
http://lymediseasenews.com/

Action Lyme:
http://www.actionlyme.org/

TOFU:
http://www.tickedoffandfedup.com/

Oregon LD Network:
http://www.tickedoffandfedup.com/

Robynn's List:
http://health.groups.yahoo.com/group/Robynns_Lyme_List/

LDA:
http://www.lymediseaseassociation.org/

LDF:
http://www.lyme.org/

ILADS:
http://www.ilads.org/

Lyme Induced Autism Foundation:
http://www.lymeinducedautism.com/

Morgellons Research Foundation:
http://www.morgellons.org/index.html

Turn the Corner Foundation:
http://www.turnthecorner.org/index.htm

LDA of Southeastern PA:
http://www.lymepa.org/index.html

Lyme Info:
http://www.lymeinfo.net/

Spanish:
[email protected]

Netherlands:
www.lymenet.nl

France:
http://www.yahoogroups.com/group/lyme-fr

I am sure I am leaving many out here and may have repeated a few too.

And then of course there are various state and local groups. Bless them all!

Melanie

Posts: 7052 | From Colorado | Registered: Mar 2003 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

You guys are GREAT!

And fast too!

One more question...

Do you do dishes too?

[Big Grin]

THANKS so much!!!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

PS...

Keep up the good work. You actually are doing the impossible...

You make ME look smart!

HA!

I KNOW the boss will give me a raise now!

[Big Grin]

Oh.. and who do we have that belongs to these groups... who might post as needed?

ANYONE out there?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

I think Phyllis Mervine of CALDA has just set up action sites for most states. You can reach her at [email protected].

Posts: 13117 | From San Francisco | Registered: May 2006 | IP: Logged |

MariaA
Frequent Contributor (1K+ posts)
Member # 9128

posted

I just forwarded Phillis' 'state of the union' email about these groups, to Tincup.

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

Posts: 2552 | From San Francisco | Registered: Apr 2006 | IP: Logged |

trueblue
Frequent Contributor (1K+ posts)
Member # 7348

posted

I do dishes but not so much groups or cooking. I had no idea all these things existed.

To the top for more. [Smile]

--------------------
more light, more love
more truth and more innovation

Posts: 3783 | From somewhere other than here | Registered: May 2005 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Good info.. and thanks! Great help... except for True not wanting to do LOTS of dishes!

[Razz]

Now.. who belongs to these groups that can post things once in a while for us... as needed?

Don't be shy...

Email me if you are shysillyshy...

[email protected]

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

posted

Lyme Disease Action: http://www.lymediseaseaction.org.uk:80/

Posts: 7052 | From Colorado | Registered: Mar 2003 | IP: Logged |

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