bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
How common is it for kids to be born with Lyme? Has anybody had that experience?
I seem to have had it for 30 years. It they have it too, that would explain alot.
Tell you the truth, I am a bit scared to have them tested. I'm worried about subjecting them to the medical system.
Any suggestions or warnings on what to look for and what to avoid?
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Please get your kids tested by a llmd especially if they are experiencing symptoms. Lyme disease only gets worse if it is ignored.
I am planning on starting a family soon and I will have the blood and placenta of my baby checked right after birth, so if something is wrong I can address it immediately.
Posts: 1603 | From ny | Registered: Aug 2006
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
We don't seem to have an LLMD in Utah, although I have a good naturaopath.
My ELISA and WB are negative, but my Q-RIBb is sky high. I have not been able to get anyone familiar with long term antibiotics to treat me yet, after two months of appointments and waiting. If my kids test the same, I am pretty sure I'll end up with more pats on the head, and a referral to a sychotherapist.
I may have to recruit and train my own LLMD to get my kids and myself cared for with abx. I have started to have conversations with MD friends to see what's posible.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
I don't know how common it is, but it does happen. I have a child that I infected during either pregnancy, birth or lactation. I didn't know at the time that I had Lyme.
Please test your children and treat them, they improve a lot, mine has and makes progress everyday. My child's Lyme diagnosis explained every single medical problem that he had since he was born and they were a lot. This kid was seen by at least 12 different specialists since the time that he was born until he was 7 years old.
Best wishes for you and your fam, Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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posted
lymster, Could you describe some of the symptoms your little one was having.
I believe there are a few on my husbands side of the family that have had lyme for years and the one nephew and his wife just had a baby in Nov. .
I would just like to be on the lookout for any lyme related symptoms and make them aware of it.
Not that they'll listen, because I see at least 4 people that I've been talking to about it and not one of them seem to want to doing anything about it. "You Can Lead Them To The LLMD, But You Can't Make Them Go In".
Posts: 158 | From PA. | Registered: Jul 2006
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- he missed every single milestone, rolling on the side, crawling, walking, talking and all fine motor skills. He has them now, but he was late developing them. - vomitin immediately after every feeding - either asleep or screaming constantly, not even crying, but like he was on pain - hard of hearing, at some point we and the docs believe he was deaf. - red eyes- all the time- and extreme light sensitivy - unexplained bruises (perfect circles, the size of a penny) all over his legs, one time the stupid, arrogant and ignorant pediatrician ask me if I was abusing my child. - surgical removal of two unexplained cysts on his face, he was born with them. - unbearable knee pain, he would roll on the floor and hit his knees, kicking and screaming on the middle of the night since age two - continuous urgency to urinate since age two - dry eyes - a lot of cognitive problem, brain fog
This is what I remember the most, but his medical file is about 12 inches wide; however, things are improving, the road isn't easy but we are making progress and things will get better.
Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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posted
My daughter was born with LD. She is almost 8 years old now. I did not know I had LD when I was pregnant with her or after she was born. I breastfed her for 16 months unaware of the situation. We were diagnosed when she was 3 years old after going through alot of medical problems her first 3 years. It is very hard, but she holds her own most of the time.
posted
My friend with Lyme infected her 4 y/o son in utero. Then, she found out about her Lyme and had him tested - he was positive with Lyme and Bartonella.
Until age two he developed normally. Then he got this triple vaccine and from then he regressed in development. Stopped talking the few words hew new (Mama, Papa), stopped understanding, etc.
At age 3 he got diagnosed with Autism. There is a link between Lyme and Autism. There is even a Yahoo-Group for it.
As nobody wanted to treat him here with abx the mother found a therapy for autistic children (gluten- and casein-free diet, gut healing, supplementation and most important: heavy metal detox).
In the last year he has made tremendous progress. He came out of his brain fog and all his docs and therapeuts are amazed about him. A few times he made a diet mistake and all hell broke loose. He went completely mad and disappeared in his fog again. Takes him a few days then to recover.
He doesn't seem to have any pain or other typical Lyme symptoms - so maybe he can do without abx. Hopefully! He is expected to become a normal kid in a few more years.
Gabrielle
Posts: 767 | From Germany | Registered: Feb 2004
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posted
Both my boys were born with lyme, altho they were not diagnosed until ages 9 and 7. We struggled with many neurological disabilities since birth. Gross/fine motor delays, speech delays, auditory processing, sensory processing and the list goes on. You can read our story on my website www.NikasToys.com
Contact Dr J in New Haven, THE pediatric lyme specialist in the country. He'll gladly work with a local Utah doc, if you can find one. If you need his info, contact me at [email protected].
Don't delay; the longer you wait, the worse it gets. I've been infected for at least 15 years.
Posts: 52 | From silver spring, MD | Registered: Jan 2005
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posted
I had Lyme and coinfections during at least my second pregnancy with my second son. I got an offical diagnosis on me when he was 2 1/2 years old. I tried to get my regular LLMD to test him for the Lyme. All he did was PCR's- nothing came up. It wasn't until I called Dr. J's office in Connecticut and had the Igenex kit sent to my home- then we did Western Blots. Both of my boys tests came back CDC positive through Igenex. Treatment was immediately started but by this time my son was 5. SO much lost and wasted time!
Now my first son had been bit twice but I almost know for a fact my younger son had never been bitten. We do believe he had it since the birthing process since I defintely had symptoms back then.
He reached all of his milestones but was also a high energy kid. He did get crabby alot and had a lot of sinus/ear infections. He just wasn't your normal kid- he would just run away and sometimes we thought he had ADHD. Talked to pediatricians- nothing could be completely diagnosed ever. He talked late but then when he talked it was complete paragraphs. He was very bright. He never seemed to have joint pain. He did have some rashes when he was little and oozing eyes. I do believe the Lyme can effect every child differently. He does have some auditory and sensory issues and doesn't like sweet things or certain tastes.
I truly feel a child can have a spectrum of symptoms associated with these diseases and 9 out of 10 pediatricians would never think Lyme is in play. I think this is a big problem we have in the US because I do believe thousands of children have this and are not diagnosed. And unfortunately, many of them may have gotten it from their mothers.
I urge you to get the Igenex testing done and watch symtpoms. As we all know the symtpoms come and go and you need to keep a complete log- also monitor the child's body temp. IF I had it to do over and someone had told me to do the Igenex testing I wish I would have researched it and started treatment earlier for my kids.
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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