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» LymeNet Flash » Questions and Discussion » Medical Questions » CNN: Mom with ALS finds way through long goodbye

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Author Topic: CNN: Mom with ALS finds way through long goodbye
Dave6002
Frequent Contributor (1K+ posts)
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http://www.cnn.com/2007/HEALTH/01/26/moms.long.goodbye.ap/index.html?eref=rss_topstories

Wish anti-pathogen therapy would help her.

Posts: 1078 | From Fairland | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
psano
LymeNet Contributor
Member # 7785

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Can't anyone get in touch with the family and suggest they check out Lyme? Who was the reporter? I didn't see their name listed there.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Parisa
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Member # 10526

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She has a website and encourages people to get in contact with her.

website: www.askaboutaimee.com/id24.html

e-mail: www.askaboutaimee.com

Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
bettyg
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i just emailed her and provided info on testing at igenex for western blots igm/igg.
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humanbeing
LymeNet Contributor
Member # 8572

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Here is my e-mail to her...

Hi Aimee,

I recently met Dr. Martz (see a little bit of his story below). He was given 3 years to live due to ALS diagnosis but is beating this by treating with antibiotics--for lyme diseae...he now runs a practice for ALS patients who want to get proper tests and try this treatment. He is a wonderful doctor...here is his contact info:

David Martz, MD

Rocky Mountain Chronic Disease Specialists

3010 N. Circle Dr. Suite 120

Colorado Springs, CO 80909

Phone: 719-264-1500

E-Mail: [email protected]

http://www.canlyme.com/martz.html

Bethesda MD September 2, 2004 - The International Lyme and Associated Diseases Society (ILADS) strengthened its impressive membership today with the addition of Dr. Dave Martz of Colorado Springs, who joined ILADS 15 months after being diagnosed with Amyotrophic Lateral Sclerosis (ALS).

In April of 2003, Dr. Martz began suffering weakness and pain in his muscles. Dr. Martz soon lost much of his mobility. His condition worsened forcing him to retire from the medical practice he loves.

After six frustrating months with hope fading, Dr. Martz discovered the work of Dr. Gregory Bach of Colmar, Pennsylvania. Dr. Bach, who is a member of ILADS, suggested a link between ALS and Lyme disease. IGeneX Reference Laboratory of Palo Alto then confirmed Lyme bacteria in Dr. Martz.

Dr. Martz then sought out a local ILADS physician who started Lyme disease treatment based on the recommendations of Dr. Bach. The results were dramatic.

"Before I found Lyme "literate" professionals, I could only function at a level of about 20 percent," says Dr. Martz. "But now that I'm in expert hands, I am up to 75 percent of full function and I hope to return to work soon as a physician, helping others with Chronic Lyme Disease."

An internist, and Past President of the Colorado Medical Society, he is committed to giving others opportunities that have been given to him''.

Good luck Aimee...I had similar symptoms to you, I am 43 with two teenagers. After several negative lyme tests, I got a positive test through Stonybrook Lab in Long Island...13 months into treatment, and I am recovering!

--------------------
We are spiritual beings on a human journey...

www.ruggierogallery.com

Posts: 906 | From CT | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Dave6002
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You are all good-hearted people.

Hope we'll have her responses soon.

God bless you all!

Posts: 1078 | From Fairland | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by Parisa:
She has a website and encourages people to get in contact with her.

good job, Parisa!!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lymedesign
LymeNet Contributor
Member # 8791

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Thank you Humanbeing for contacting this women. I read this story in the Asbury Park Press, a New Jersey paper. It was an associated press article and didn't give any contact info., other than her name and town. I felt funny calling 411 to get a phone number. It is a funny thing, you feel like you are invading someone's privacy, but if it was me teaching my kids about my life ending diagnosis, I would want to be contacted.

SO, I thank You for helping Me sleep a little better tonight!!

Posts: 263 | From Georgia | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
   

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