posted
Somedays I think if I don't die from this disease the so called cure will kill me or make me psychotic.
My current regimen is Adoxa and Tindimax. I have been on Adoxa for the last 2 months, and added Tindimax about 20 days ago.
Over the weekend I developed a sinus, throat, ear infection. My llmd added Biaxin I could only take that it for 2 days because it made me nauseous but it started to cure the infection but not completely.
Yesterday I called my llmd and told me I could not take the Biaxin and I needed something else.
He added Avelox. I took it and my 10 year old son was home with me. Within 1/2 hour I got surging pains in my head. For those of you that are reading this and are women, it felt like labour pains in my head. As it would build up I would just start crying so hard I could not stop. My eyes just poured tears.
It felt like something was moving. The pain was on the top of my head toward the back, and I had severe right ear and temple pain. It lasted for about 30 minutes, and was terrifying for me and my son.
After it was over my son and I sat on the couch and held each other and cried really hard together, and I kept telling him I was sorry.
I have put my husband and children, and mother thru so much. It has been 5 years now, and I have had some really great years, but when it's bad it's really bad.
My family has witnessed my seizures in the past, not being able to walk, breath, severe fatigue, memory problems that have affected all of us.
Somedays this seems like a bad dream, or cruel joke. I just pray that I don't scar my children with these memories.
Please give me some insight, I think it might have been a herx.
My heart breaks for my family.
Posts: 175 | From Pa | Registered: Aug 2006
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi Katcon,
I understand, it's very difficult to go through lyme treatment. A lot of people do not understand because in many ways it's like fighting cancer.
I have a 10 year old son and we went through this together. One memorable time was went we both had bad stomachs. My son threw up for two years on a weekly basis, then I started in.
We were taking turns puking in the toilet....and we looked at each other..and we cried.. then we laughed.. My son and I made it and we have a special bond..... and you and your family will get strong and you will make it through this together.
I completely understand your feelings, I have been sick my whole life and I have also put my family through much, but you will get stronger and it does get better with treatment even if it doesn't seem possible right now.
Hang in there. Posts: 6638 | From Michigan | Registered: Jun 2001
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The first time I did Biaxin xl and Flagyl (similar to tini)....I literally thought someone was drilling into my head.....
Posts: 983 | From The sky | Registered: Feb 2005
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No surging pain this time. However I have a pain at the top of my head towards the back which is tolerable.
Now I have joint pain and skin tenderness. Wrist and ankles hurt bad.
Bad jaw and right ear pain.
I see my llmd on Monday, and I am going to give him an ear full.
I wish he would of warned me of this. I tested negative for Bart, but he was assuming I had all coinfections.
Would of been nice to have a warning. I never want this to happen again when I am home with my kids.
Today I am wondering if I am loaded with Bartenlla. I have never herxed so hard and fast.
I had no idea Bart herxes could be so bad. It was a close comparision the reaction I had to Rocephin the first time.
Posts: 175 | From Pa | Registered: Aug 2006
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