~Px. John.
Posts: 123 | From Seattle, WA | Registered: Oct 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Is the infection still an issue? If so, the infection must still be treated.
Coinfections? Were you assessed not just for other tick borne infections but also other chronic stealth infections like Cpn, HHV-6, etc. Could you be assessed for XMRV? There could be more to this than just lyme.
While rehab certainly has benefits, in varying degrees all along the way, if ANY stealth infection is still at work it could be an exhaustive waste of time and money.
If the infection(s) not an issue but damage repair the only consideration, you can see how far rehab can take you.
Mitochondrial damage from lyme is a real concern, though, so if rehab pushed too hard, back off a bit and be kind to your body. It would be best if EVERYONE you work with is lyme literate so that they will not push beyond the point of safety.
Lyme changes everything about a person's body. Everything. Most health care professionals have no clue that even someone who may be over the infection part but needs rehab needs a different approach than someone else who did not/does not have lyme.
Gait/balance issues often involve the vestibular system (inner ear) for lyme patients. Would whomever you work with be aware of all that? Have you been assessed by an LL otoneurologist (an ear specialist with extra training in neuro.)?
Have you tried Qi Gong and Tai Chi, as a start? These can be adapted in so many ways and they often work very well for everyone. There is also kind of Tai Chi done in the water with a therapist. Very nice, I hear. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Qi Gong folks have lots of people in Seattle. Soaring Crane Qi Gong is the style most suitable but there are also many other styles. A certified instructor is best. They can then suggest practice sessions led by those certified to teach - or DVDs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Mitochondrial damage? WAY too extensive topic for me to get into -I'm very tired right now. But it is a very important issue to learn about in relation to lyme.
Sorry. Someone else?
Not at all about how LYME affects mitochondria, but some general detail:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/