posted
I started malarone with zith 2 weeks ago. Been waking up every am with nausea. This morning I threw up. How do others tolerate it?
Any suggestions for the nausea?
Also-what are babs herx's like? I also have increased fatigue, and very mild SOB. I'm acually not sure if I still have babs. My 2nd titer came back negative, but when I called Igenex, they said the titer test wasn't very accurate at lower levels. (first test was positive)
Thanks
Posts: 561 | From eastcoast | Registered: Aug 2006
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi shoney,
Yes, it can be very hard to tolerate, I feel for you, I know the nausea is no fun at all.
I have had stomach problems for a long time, but when I started treatment for Babesia that was the worst. I had nausea pretty much most of the time during treatment.
Ginger tea helped and for some odd reason, chicken soup.
I hope you find something that helps, you will get through this, hang in there.
hugggs.. Posts: 6638 | From Michigan | Registered: Jun 2001
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi again...
I herxed right on 4th day of taking Malarone and had lots of symptoms, but my symptom list after starting is very long, so here are *some* of them.
Fatigue, facial pain, numbness, teeth pain, some night sweats, loss of appetite, insomnia, dry eyes/ mouth, shoulder pain, hard time swallowing pills, arms and legs were stiff, emotional stuff, toe pain, depression, nausea, and chest pain.
hope this helps some..
-------------------- God Bless You! Everything..is just my opinion. Posts: 6638 | From Michigan | Registered: Jun 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Shoney,
I've been on Malarone and zith.
I guess I am lucky as at times I felt very nauseated before going to bed, it would pass during the night.
Are you taking your malarone with food or milk?
I didn't know any better and didn't for the first full month of treatment.
I also took my zith with dinner, but then found it upset my stomach a lot. Started taking it about two hours after my meal. No problems since.
Initially, I had increased air-hunger, increased night sweats, increased joint pain (especially at night) and some headaches.
Hang in there. I hope you are feeling better soon.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Hi Shoney, I'm sorry about the nausea, I found it worst with Aremisinin than anything so far.
Have you tried taking meds at different times to see if they make you less nauseated in the morning?
I know it's weird but sometimes if I can eat something nausea gets better. Ginger helps some as Beverly suggested.
I've only been trying to treat Babs for a short time (in the larger scheme of things).
Some of my symptoms from Malarone and Amoxy, presently, are: extreme tiredness, chills, sweats, mild air hunger, palpitations, loss of appetite and food being gross, clammy hands and feet, increase in muscle and joint pain... and did I mention extremely tired?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
I am extremely tired too, although it doesn't help much with night-time sleep. I still wake up early am. I can't even think about eating, although I've lost 20 lbs, I'm down to 100 lbs-I can't afford to lose anymore.
I hope I make it thru this round
Posts: 561 | From eastcoast | Registered: Aug 2006
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posted
I started Mepron & Azyth 6 days ago. My sleep is totally affected. I wake up very early even though I take 2 Benedryl at night. I am not tired fortunately.
Two days ago, I vomited after taking the Mepron. I think the trick is to eat my food and fat before taking the Mepron. When I added something AFTER I took the Mepron, I violently threw up.
Today seems like an okay day after rage herxing the past few days with the new Babesia protocol. We will see.
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Hi Shoney,
Sorry to hear about your stomach upset. I am also taking malarone and find that if I take it with a full meal I feel much better. Good luck with your treatment.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Anyone else experience extreme fatigue with malarone? I'm dizzy, really really tired and more depressed. Is this a herx, or reaction to the meds
Posts: 561 | From eastcoast | Registered: Aug 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Shoney,
My LLMD said a reaction from malarone is unlikely as it made mostly of inert ingredients (not likely to cause an allergic reaction).
However, my fatigue was definitely more pronouced on malarone/zith combo.
Not sure if it was a herx, or Lyme creeping back into the picture.
Started back on doxycycline about two weeks ago, and I am twice as fatigued as I was on malarone.
Herx, maybe?
Maybe the zithromax is causing some of those symptoms.
I started the malarone without zith to make sure I wasn't going to have a problem with it.
It is when I added the zith, I had herx-like reactions.
Not sure if this helps. Every body seems to tolerate meds and med combos differently.
Hang in there.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Geneal-Now that you mention it, when I take zith, I feel tired. I don't know if it's lyme, because I just finished 12 weeks of rifampin/doxy and zith on weekends, which would of also hit the lyme. I see my llmd next week.
Posts: 561 | From eastcoast | Registered: Aug 2006
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
My babs came back with a vengeance when I was on IV Doxy...watch out.....I have read where that happened to others also.
TYrout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I know my babs symptoms are coming back while on doxy too!!!!
Frustrating as heck to try to figure out how to hit every infection/co-infection without killing yourself from the herxes.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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quote:Originally posted by shoney: Anyone else experience extreme fatigue with malarone? I'm dizzy, really really tired and more depressed. Is this a herx, or reaction to the meds
--I think it's (extreme fatigue) more likely from the diseases. I do not recall having a "herx" from malarone. I also took artimesia anua, when I went after the babesia.
I don't remember for sure, but I think I took the 'malarone' with a small amount of food, (malarone is an atovaquone combi-- atovaquone is what ..'mepron'.. actually is.-note the similarity in color). In my case I had no kind of herx, and this sequence was the turn-around point; it was all up from then on in; getting the babs was the key. I hope it does it for you; I'm sorry to hear you are having difficulties. As someone said, ginger tea may help. Also, don't forget to replenish your acidophilus , as "between" doses as you can get. If you're still having trouble you might try a little yarrow-- yarrow tea-1 tsp yarrow steeped in a cup of just-boiled water for 5 minutes, before a small "pre-med meal". Yarrow seems to be incredibly healing for the digestive tract. (the taste is NOT great, (better than atovaquone though, in my opinion!), but for me it was incredibly powerful for healing my digestive system.)
One more thing-- gingko biloba helped me tremendously with depression, and helped with other aspects of lyme, too. I think it is a very good herb to take with lyme, unless you are on any kind of blood thinner. I would NOT take gingko, if I were taking other blood-thinners (heparin, for example) as I have heard that it is known to also have a blood-thinning effect.
DaveS
DaveS
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