A good many results are back and I'm not sure how to process it all:
Bloods, thyroid, sed rate: normal range.
Cholesterol: 250!
SPECT: "Moderate, Global, Cortical Hypoperfusion with heterogeneity, this perfusion pattern is consistent with encephalitis or vasculitis, such as from infections e.g. Lyme Disease, autoimmune causes or secondary to som medications. Involvement is bilateral frontal lobes is possibly due to superimposd depression."
QUEST: no erlichiosis (HME); no Babesiosis; no HGE.
Stony Brook Labs: no Lyme w/negative western blot IgM and Indeterminate IgG.
IGeneX: Negative Babesia FSH & PCR Screen [Was positive year ago & Babs has not been treated]
SO... After 11 months of treatment, I DO AND DO NOT have lyme and co-infections! So clear...NOT.
Yet, I feel bad most of the time and the brain stuff continues to get worse.
My question remains: does reality = herx? OR do I just keep getting worse?
Taking doxy... up to 300 mg and working my way towards 400 mg. In two weeks (after kids' school vacation) I start malerone.
In the meantime, I'm supposed to see a neuro-surgeon for my herniateds discs in my neck. I'm supposed to see someone about my high cholesterol AND I'm supposed to start small doses of Prozac. Oh yeah, and then there is the neuro-cog 2-day appointment...
For someone who never ever took abx muchless something else, the prospect of all these chemicals are scaring me half to death! Then again, death is scaring my half way to all these chemicals!
I'm just a girl-person trying to figure out what to make of all of this...and how to pay for all of this..
Am I blue?
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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posted
You do have Lyme. A positive Igenex shows you do. And judging by the band 31, you've had it a long time.
The babesia test, especially if you had it before, could be a false negative. It's a clinical diagnosis and needs to be treated before the borrelia.
My LLMD is convinced I have babs and is treating me for it even though the test was negative. They only test for one kind of babs, and there are other kinds you can get that don't show up in testing.
I'd be concerned about babs if it's never been treated and you've tested positive before. We'll see what the more experienced people around here say!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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WildCondor
Unregistered
posted
You have to go by how you feel! Lyme is a clinical diagnosis, and you can only rely on tests as much as you believe in them.
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