posted
just thought I would let you all know that the test results last week are profound bartenella and moderate babesia all living within rd blood cells..I am going to try to post my pictures of my blood work and the arrows that show the infection and the type of bart and babs..I now know that we are not only fighting lyme..we are fighting the co infections..and that is I guess why the immune system is idle..it cant see the bart or babs in the red blood cells...also most tests for co infections are done by a machine and cant see into the red blood cells..they need to be done by a tech using a special stain to show what is within...If anyone needs the lab for there own tests let me know and I will email you with the numbers..when taking this test you will have to use a diabetic pin finger pricker..if you dont have one you can get one at the local drugstore..you take 6 slides from the package and put them on a counter..prick your finger and smear on the slide between the two pluses on the slide..then wait till it dries and sent the whole thing back to the lab..then you will get results that may astonish you..so let me know who needs the numbers... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Thanks for posting this polar blast.
Hope you can get treatment & feel better soon.
I sent you a pm
Blessings Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
Hope this info will help speed your recovery! And better direct your treatment!
My IGENEX posisitive lyme daughter has a clinical diagnosis of bart and babs, but I want the evidence! Not for us, but for all the naysayers (ducks and unmeaning relatives). We have to get pain meds from a local doctor and I think this type of info can only help!
Since Bb is about the size of the width of a human hair I figure it can't be too hard to get picture evidence of the spyrochete. Do you know if it can be seen with just magnification?
What kind of imagination (and time)would we have to have to make this kind of stuff up! Can they argue with lab pictures?! Can't wait to see yours!
MommaK
Posts: 242 | From Mississippi | Registered: Oct 2006
| IP: Logged |
I know you posted some other lab results before, but I was wondering with this new info what some of your blood work showed.
I am wondering if yours might be similar to my daughter's:
Low RBC, hemoglobin, hemocrit High MPV (mean platlet volume) Low Folate RBC, hemocrit Low B12 Low CO2
This makes sense now!
Bart and Babs invade the RBC and alter the cell membrane. They are then removed and destroyed by the spleen and liver.
The body responds by increasing the rate of new RBC production. New RBC platelets are larger, explaining the high MPV result.
Hemoglobin carries both O2 and Co2, if there aren't enough to go around, bingo low Co2 and air hunger!
Low co2 can cause blood vessels in the brain to constrict causing dizziness, another symptom!
Still working on the low B12 and folate part. Is it because the RBC's can't carry enough (like CO2, or because the bart and/or babs took up residence in the intestine and are effecting the absorption of them. Or does it have to do with the manufacturing of intrinsic factor.
Hope someone knows!
MommaK
Posts: 242 | From Mississippi | Registered: Oct 2006
| IP: Logged |
posted
I dont think that the spleen is removing it..or amaybe at a sluggish pace..there is alot in my blood so it remains to be seen.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
Did the test use FISH - (Fluoresence In Situ Hybridization) technique to identify bartenella and babesia?
If not the results wouldn't be convincing. Without FISH, you don't know which is which.
Your pictures may help clear the clouds.
Posts: 1078 | From Fairland | Registered: Apr 2006
| IP: Logged |
posted
I asure you they know how to test for bart and babs as that is there specialty..it is the stain they use that make it show up.. eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
Can you send me that information. I believe you sent it to me in the past but I can't seem to locate it.
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
It was this doctor's lab who was able to tell us my daughter was positive for two strains of bartonella. Nothing else has shown up, so far.
Check out the pictures on the last page of Public Health Alert this month.
I have referred people to this doctor, but they leave ticked off that he ONLY finds bartonella. That's not the case, but what he is finding is that bartonella is present in almost every chronic and autoimmune patient.
He has found it the most difficult to treat, and doesn't promise a cure, only a chance for remission. But, that's why he wants to start a research institute...to find a cure. He was just granted funding to begin.
This LLMD is also a microbiologist, which is why he is firm about supplementing with magnesium. (you can't completely irradicate it, you have it in bottled water and food.
The red bartonella streaks that were once covering her body are now almost gone. I'm taking that as a sign that the load is diminishing.
posted
I just received paperwork from this lab to have hubby tested. The cost for a babesia test is $250. The complete testing is $450 which includes tests for babs, bart and ehrlichia all through bloodslides and also a Lyme Western Blot I think.
Basically the testing is discounted almost 50% if the complete panel is done for $450. Hubby's LLMD signed the requisition and hopefully the test kit will come in the mail by the time we get home sometime next week.
The requisition form includes all the diagnosis and procedure codes so we plan to file with insurance -- they should pay something although it will probably be a minimal amount. The lab does not accept insurance -- payment must be made at time of testing.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
posted
Polarblast, please pm me the info. Thanks
Posts: 925 | From California | Registered: Sep 2004
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Kelmo,
What exactly are the red streaks associated with bart?
My LLMD believe I have bart as well. Treating for babs right now, going back on doxy for Lyme.
I have funny reddish vein looking lines on my legs.
My daughter even asked me last night what that was.
I guess I thought it was just old age, or something left over from my last pregnancy (2003).
I have the swollen gland thing for sure.
Just curious about that symptom. When I've seen my LLMD, I've always been dressed for cold weather.
I don't think he has ever seen my legs.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter had these all over her abdomen, back and back of knees. We thought it was stretch marks due to the rapid weight gain she also had at that time (80 pounds in six months).
But, when I saw these photos, I fell out of my chair...literally.
Bartonella symptoms overlap other bacterea in the tick borne illness family. I don't think the "cat scratch fever" list does it justice.
Unless she has more going on, she is affected in every system, and in pain all the time. She even has flashing in her brain on her MRI.
Even though our LLMD has his own lab, our insurance doesn't cover it, so he has been very kind to send out what he can to our insurance provider. She must be loaded with bart, because she tested positive for bartonella from Labcorp.
posted
Eric, Bea, could someone PM me with the name of the lab if it cannot be posted.
Thanks.
Posts: 465 | From New York, NY | Registered: Aug 2005
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
I really don't know what all this means, but my husband had one bad really bad thing on his leg. I think it was when he was taking the Zith. Anyway, it was an open looking sore on his leg, about two inches long. He had it for about two weeks.
I don't a clue if that relates to anything, can only say that's what he had.
Best wishes to all.
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
posted
Man, I've got those stretch mark things on both sides of my waist, and some in my armpits.
I'll need to tell my LLMD when I see him to treat me for Bartonella as well.
I do have what looks like strawberry tongue. I've read that's a symptoms of Elricha (spelling?).
Posts: 310 | From TN | Registered: Jan 2007
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic