posted
Check out www.roadback.org. It is a website devoted to the treatment of rheumatic diseases with the antibiotic protocol (AP). They can give you the name of an AP doctor in your area.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
Oh, by the way, they also treat some of the more severe cases with IV antibiotics.
Posts: 984 | From San Diego | Registered: Nov 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
There is a U.S. Patent, "Magnesium for Autoimmune". It is by an Italian doctor from a cancer hospital. Romanian doctors ALSO found a "significant" drop in Mg levels at the outset of lyme FOR PROTECTIVE REASONS. They gave IV Mg and the patient was CURED. Research Dr. Pierre Delbet and magnesium. We do NOT learn from history!
It can work from MULTIPLE angles! (Mg pyrophosphate and sub(lingual) B6. At least intially before many other nutrients take a dive (esp. vitamin E). Documented.
The likelihood of that patent being followed?
NIL.
Pharm. countries (misspelling intentional) cannot, by law, market nutrients. They try to alter them to pass the guidelines and mess it up.
Prime example: Foxamax (a different bisphosphate) and Nexium (playing with Mg). Nice try too with AZT...chemical formula is the same, but the molecular structure is NOT.
Keep an open mind and learn as much as you can. Listen to those who have said "this works". Figure out WHY. Then you will see.
Keep moving. WALK every day. USE your joints. It is very, very important. Be gentle...exercise in a pool,etc. but KEEP MOVING.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
So you think its ok that my llmd is sending me to a rheumy before starting the IV abx? I was
on orals and he said in this late stage of the game with my Lyme that oral abx is a waste of
time. (I know that is HIS opinion) I have
tried a number of llmds and they all do things different. Now, I won't be on anything for a
couple of months while checking out this autoimmune thing, except the usual supplements
that I have taken all along on my own to boost
my immune system.....
Posts: 70 | From essex fells, nj | Registered: Jul 2006
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
bugged,
The rheumie will put you on immune suppressing drugs. period. If you have bacteria like lyme, suppressing your immune system has already occurred. Suppressing it further seems suicidal to me.
With that thought in mind, I have rejected the methotrexate the rheumie wanted to give me one year ago and have sought mostly alternative treatments but also an antibiotic protocol found at www.roadback.org. You really need to check out this website.
It believes in an infectious cause to autoimmune disorders and is more in line with lyme treatment.
I am really surprised that LLMDs would send us to Rheumies knowing they only use immune suppressing drugs.
Rheumies do not believe in an infectious cause although they concede some infection might have set it all in motion. But they feel the infection is now gone and you are simply left with the runaway immune system. Kind of a stuck-on-go theory.
For me personally, the very first most effective thing I did was really simple and cheap. I changed my diet to simple whole foods. Whole foods mean they grew that way. They haven't been processed or altered and when cooked, they are either plain or very few seasonings added.
To date, this simple change of diet created the biggest improvement. I then found a doctor well versed in Leaky Gut, Nutrition and Heavy Metal Chelation. Working with him I nearly went into full blown remission for many months.
During the past 3 months, I have roller coasted some and am trying to regain ground. I do believe this is due to successful business my husband and I began 1 yr ago. My return of pain has correlated with the longer hours which forced us to eat out more and more as no time to shop and cook. Additional stress equals additional pain.
Be careful of rheumies. They only know how to drug the illness and they admit right up front that their drugs do not cure, just slow down the progression of the disease.
I have very successfully accomplished that myself with methods not harmful to the body.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
There is the occasional lyme literate rheumie, including one in your state. Don't know where you are going, did he recommend anyone? (Not asking you to post any names.) It may be that your doc feels the need to practice defensive medicine to the inth degree, giving that NJ is death on lyme docs. So, whether he thinks this is lyme related or not, he may want back up, to be able to say he had not overlooked anything.
Not to say that everything is lyme related, can have more than one thing going on at the same time. But I still have a lot of trouble with the autoimmune theory of disease, think that they just have not figured out the real cause for autoimmune markers in a lot of cases. OK, maybe there really are some autoimmune diseases, but my feeling is that the number has been exaggerated.
I have heard that thyroid autoantibodies are quite common in lymies. So, what is going on with this? Makes you wonder, don't it!
Posts: 8430 | From Not available | Registered: Oct 2000
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Sometimes there is an overabundance of monocytes and neutrophils in the synovial fluid and sometimes too much synovial fluid. In some RA patients, there is too much iron in the joints.
Here's an important abstract:
Interleukin-10 (IL-10) is a potent stimulator of B lymphocytes in vitro.
In vivo dysregulation of IL-10 gene expression was therefore analyzed in patients with rheumatoid arthritis (RA), primary Sjogren's syndrome (SS), and systemic lupus erythematosus (SLE).
METHODS. Spontaneous production of IL-10 by peripheral blood mononuclear cells was measured using reverse transcription polymerase chain reaction and enzyme-linked immunosorbent assay in untreated patients with either RA (n = 10), SS (n = 10), or SLE (n = 10), and in 15 normal control subjects.
RESULTS. IL-10 production was dramatically higher in RA, SS, and SLE patients than in controls. In each group, both B lymphocytes and monocytes, but not T lymphocytes, produced IL-10.
***CONCLUSION. IL-10 production is increased in RA, SS, and SLE.***
It may play a role in B lymphocyte hyperactivity and in the development of autoimmunity.
PMID: 7980676
PDE4 inhibitors (rolipram and/or cilomilast)
reduced the release of the proinflammatory cytokine TNF- and
Your body is trying to reduce the massive inflammation that has been triggered by upregulating IL10.
"Low free histidine has been found in the serum of some rheumatoid arthritis patients. Serum concentrations of other amino acids have been found to be normal in these patients.
L-histidine is an excellent chelating agent for such metals as copper, iron and zinc.
Copper and iron participate in a reaction (Fenton reaction) that generates potent reactive oxygen species that could be destructive to tissues, including joints."
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