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» LymeNet Flash » Questions and Discussion » Medical Questions » back to the start - now what ?

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Author Topic: back to the start - now what ?
mag
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hi everyone,

i am trying to figure this out - could us some help from you all ( the ducks don't help)
don't know what happened - the last week

i spent about 4 days in bed
- trips to the bathroom were a necessary...
the pain in my spine was the worst i have ever felt.
Every muscle in my body was on fire and
for a change I had a temperature.
Brain fog was back

Well to mak a long nightmare -short - Thank God
i am alive
but not better

I am wondering if this is about those cycles for babesia (120 days) and Lyme D (28 days) and candida....
or do i have another co infection ??

the only difference this time from when i started with the symptoms is that --- I had lots of pain in my feet. sharp pain in my head - that felt like brain spasms and walked like a zombie - hunched over

doing the herbs ( buhner and dr k )

I have had only three doses of abx too sick with them-- Babesia and lyme CDC +

help - not again


thxs
mags

Posts: 259 | From California | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
Jill E.
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I hate to even mention this, but I have some similarities with those symptoms in terms of Bartonella. Do you think it's worth re-testing you for that?

My Bartonella test did not turn positive until I began Bartonella treatment, although my central nervous system symptoms were always consistent with Bart.

Jill

--------------------
If laughter is the best medicine, why hasn't stand-up comedy cured me?

Posts: 1773 | From San Diego | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
mag
LymeNet Contributor
Member # 8920

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hi jill,

are you taking
abx for the bartonella

yikes
- i thought i had enough bacteria
to last me a life time

thanks
mags

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Dave6002
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Hi, Mag, like Jill's post implied, it could be Bart.

I had overlooked it and I had a relapse last month.

I had been on Buhner's core herbs and Babs treatment, which ddin't help and I got worse and worse and my sole pains came back, which reminded me that my problem might be Bart, so I stopped all herbs and Babesia treatment and take 600mg of Rafampin each daily and immediately felt improvement.

Now after a week or so, I have regained the ground and keep improving.

So for me, probably, I don't have Babesia but Bart.

The sole pain did get away when I was on Levaquin.

I'd like to stay on Rifampin for a while and see how it go.

My tests for Bart. and Babesia were negative.

Dave

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bejoy
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I have some of those symptoms, mild. DC tested me via kinesiology and put me on homeopathic Bart remedy from Deseret Biologicals. Just started. I'll report if they help.

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

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Jill E.
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quote:
Originally posted by mag:
hi jill,

are you taking
abx for the bartonella

yikes
- i thought i had enough bacteria
to last me a life time

thanks
mags

Mags,

I'm on Rifampin, but had to start at a less-than-pediatric compounded dose because I'm very sensitive. I've been ramping up extremely slowly. I made it to almost 300 mg. a day, developed such a bad reaction I didn't know if it was a herx or toxicity or what. So I went off a few days but my LLMD put me back on and I'm starting slowly again.

Rifampin can be hard on the liver so I may have to stay at this low dose.

I was on the quinolones (Levaquin, etc.) a year ago but they damaged my tendons. Now, a year later, I'm finally recovering from that.

I rarely herx with Lyme medications but I think Bartonella is turning out to be the big problem for me and is causing herxing.

Do your feet hurt on the soles? Mine did once I started Levaquin. Prior to that, they had not. But I have central nervous system symptoms that far outweigh my other symptoms, which often happens in Bart.

Jill

--------------------
If laughter is the best medicine, why hasn't stand-up comedy cured me?

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mag
LymeNet Contributor
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hi
thanks everyone

helps so much to hear everyones's challenges

jill, some strong abx you are taking - hope it gets better for you - Yes the soles of my feet
hurt - i often wake up with them hurting.

dave, how strange - even the buhner protocol does not address bartonella.

bejoy, good to hear there is a herb that works for bart

i will call my llmd to talk about it - before the bart causes more problems in my brain --
the spasm like feeling in my head is really bizarre

thanks
mags

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mag
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jill,

what are the cns symptoms...

I read a bit more on bart about encephalopathy
and seizures. Thats enough to stop a marathon.
Virginia S. has a good article about Bart and Lyme and the relation to the gut.


mags

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Dave6002
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What's the tile? Where I can find the article.

G.I problem has been one of my major TBD symptoms.

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mag
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hi dave,

tough stuff right!!


"Bell Palsy of the gut"

http://www.thehumansideoflyme.net
go to featured articles written in April 2006

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Dave6002
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Thanks, Mag.

Yes, it is.

However, my stomach symptom has been improved a lot after I started taking garlic juice, which, in retrospect, might be effective for Bart.

Dave

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mag
LymeNet Contributor
Member # 8920

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dave,

if i eat the fresh garlic - though less in amount
same effect right ?

what do you think ?

mags

Posts: 259 | From California | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
   

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