i am trying to figure this out - could us some help from you all ( the ducks don't help) don't know what happened - the last week
i spent about 4 days in bed - trips to the bathroom were a necessary... the pain in my spine was the worst i have ever felt. Every muscle in my body was on fire and for a change I had a temperature. Brain fog was back
Well to mak a long nightmare -short - Thank God i am alive but not better
I am wondering if this is about those cycles for babesia (120 days) and Lyme D (28 days) and candida.... or do i have another co infection ??
the only difference this time from when i started with the symptoms is that --- I had lots of pain in my feet. sharp pain in my head - that felt like brain spasms and walked like a zombie - hunched over
doing the herbs ( buhner and dr k )
I have had only three doses of abx too sick with them-- Babesia and lyme CDC +
help - not again
thxs mags
Posts: 259 | From California | Registered: Mar 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I hate to even mention this, but I have some similarities with those symptoms in terms of Bartonella. Do you think it's worth re-testing you for that?
My Bartonella test did not turn positive until I began Bartonella treatment, although my central nervous system symptoms were always consistent with Bart.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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yikes - i thought i had enough bacteria to last me a life time
thanks mags
Posts: 259 | From California | Registered: Mar 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
Hi, Mag, like Jill's post implied, it could be Bart.
I had overlooked it and I had a relapse last month.
I had been on Buhner's core herbs and Babs treatment, which ddin't help and I got worse and worse and my sole pains came back, which reminded me that my problem might be Bart, so I stopped all herbs and Babesia treatment and take 600mg of Rafampin each daily and immediately felt improvement.
Now after a week or so, I have regained the ground and keep improving.
So for me, probably, I don't have Babesia but Bart.
The sole pain did get away when I was on Levaquin.
I'd like to stay on Rifampin for a while and see how it go.
My tests for Bart. and Babesia were negative.
Dave
Posts: 1078 | From Fairland | Registered: Apr 2006
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I have some of those symptoms, mild. DC tested me via kinesiology and put me on homeopathic Bart remedy from Deseret Biologicals. Just started. I'll report if they help.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
quote:Originally posted by mag: hi jill,
are you taking abx for the bartonella
yikes - i thought i had enough bacteria to last me a life time
thanks mags
Mags,
I'm on Rifampin, but had to start at a less-than-pediatric compounded dose because I'm very sensitive. I've been ramping up extremely slowly. I made it to almost 300 mg. a day, developed such a bad reaction I didn't know if it was a herx or toxicity or what. So I went off a few days but my LLMD put me back on and I'm starting slowly again.
Rifampin can be hard on the liver so I may have to stay at this low dose.
I was on the quinolones (Levaquin, etc.) a year ago but they damaged my tendons. Now, a year later, I'm finally recovering from that.
I rarely herx with Lyme medications but I think Bartonella is turning out to be the big problem for me and is causing herxing.
Do your feet hurt on the soles? Mine did once I started Levaquin. Prior to that, they had not. But I have central nervous system symptoms that far outweigh my other symptoms, which often happens in Bart.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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I read a bit more on bart about encephalopathy and seizures. Thats enough to stop a marathon. Virginia S. has a good article about Bart and Lyme and the relation to the gut.
mags
Posts: 259 | From California | Registered: Mar 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
What's the tile? Where I can find the article.
G.I problem has been one of my major TBD symptoms.
Posts: 1078 | From Fairland | Registered: Apr 2006
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