savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Hi everyone,
Lately I have been experiencing burning feet, and fingers but only at night. It seems to get worse when I just lay still and then try to fall asleep. I have also been waking up with the sweats but I don't think they are babs sweats. Could this all be from lyme? Or am I missing something.
Thanks everyone.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Yes I experience burning feet as well as burning palms and stinging all over my body. It is a daily occurrence and very difficult to live with. When I am busy it is not as disurbing but when you lie still is becomes more pronounced.
I used to think it was from the antibiotics but it gets worse when I come off of them. It appears to be neuropathy from the disease and there is medication for it but I have enough side effects to deal with from the antibiotics. Hope this helps!
Posts: 425 | From NY, United States | Registered: Mar 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Have you been tested or treated for Bartonella?
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Yes, I was tested for bart several times.
Although I always tested negative I took levaquin for four months, septra, ketek, and IV zithromax.
My doc currently has me on mino for the burning sensations, but I haven't noticed a decrease in symptoms.
Maybe this is just permanent damage? Will our nerves eventually heal by themselves?
Thanks again everyone.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
My feet actually burn from feeling cold like they are on dry ice.It is terrible at night or any time I'm still. Sometimes an electric blanket helps mine.
-------------------- Hugz, Tugz and Health to you! Greg/bubbear http://centralfloridaresearch.com Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino Posts: 109 | From Central Florida | Registered: Mar 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Could the burning be an autoimmune response? Just a thought.
Thanks for your responses everyone.
Posts: 1603 | From ny | Registered: Aug 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Sorry to post about this again, but this symptom is really making me crazy.
Last night was just horrible for me. I had really bad burning and both my hands and feet turned almost a purplish red. They were also hot to the touch and I had the sweats with it.
I am still beating the babs back and really thought it was gone. I took lariam, mepron, zith, ketek,art, septra, and now malarone.
My concern is that this is babesia once again. Although I know lyme can cause sweats and burning sensations.
Any thoughts would be greatly appreciated.
Thanks again everyone. Posts: 1603 | From ny | Registered: Aug 2006
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posted
You might research erythromelalgia. My mother has this condition and does not have Lyme disease (as far as I know). The painful, red-purple color to the feet and hands is main symptom, I believe. She gets relief from lidocaine patches. Her symptoms wax and wane.
Posts: 164 | From USA | Registered: Jul 2005
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