posted
Hello everyone, my name is Francine and I am 29 years old. I have had symptoms of Lyme for the last 2 years. My doctors kept telling me I had Fibromyalgia. I have facial muscle spasms that make me look like I have Bell's Palsy and I get muscle spasms in my legs that make me unable to walk. These spasms are not always painful, but sometimes can be. I get this weird sensation in my spine that makes it difficult to concentrate. I could go on and on with more symptoms but I wanted to see if anyone else has had these symptoms. I am also searching for a LLMD in So. Cal area (San Bernardino County). Any info that you may have would be greatly appreciated.
-------------------- Francine Posts: 2 | From Rancho Cucamonga, CA | Registered: Mar 2007
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posted
Welcome!! I'm sure someone here has similar symptoms. Lyme runs the gamut of symptoms.
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
mags Posts: 259 | From California | Registered: Mar 2006
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bettyg
Unregistered
posted
hi francine, i sent you my 46 pages of newbie links/advise..
just block copy your entire story here and start a NEW POST IN SEEKING DR.; paste it there in the body text.
be specific in title post showing the county/state.
then for people like me who have no idea where these cities are located, etc. LIST THE LARGEST CITY IN THE COUNTY YOU ARE LOOKING FOR LLMD FOR OK!
THEN I'LL CHECK MY LIST for these city names.
otherwise, check left hand side; SUPPORT GROUPS BY STATE, click on closest to where you area. read their info whether to email or call them for help PER THEIR REQUET.
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E ! ! ! ! ! !*!)*!)!*! !*)!*)!*)!)!*)!*)!*!)*!)*!)*!)*!*!!!!
Don't let anyone tell you there is no Lyme in CA- or only 2%!!! In a 2003 study they found 17.8% MIR (Minimmum Infection Rate) in ADULT ticks in SC County, CA. And you should be aware that most people with TBDs in CA have more than one- we have a few TB Diseases in CA including Bartonella "cat scratch fever" which was found to be a TBD a few years back- and Anaplasmosis which was formerly named Ehrlichiosis- there are 2 kinds- HGE and HME- and Babesiosis- WA1 strain. All of these can be blood negative!!!
A great SO Ca Lyme person is Barbara B at [email protected] She should be able to help you find help!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! & she's super nice*)!*! Welcome again, Best wishes, Sarah in Aptos, Santa CRuz, CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Fatigue has been a real big symptom for me. In a 'change my life' sort of way. I used to be very productive.
Very hard to explain to anyone... I couldn't even grasp it myself. Kept telling my self to 'buck up'.
I looked normal. Doctors thought chronic fatigue, depression.
The only doctor that believed me, and thought I was not just a head case, said "I know that you are not feeling well, but your just gonna have to have more symptoms."
Very frusterating.
I didn't ever get bell's paulsey in my face, but I did get it in my gut.
caat
Frequent Contributor (1K+ posts)
Member # 2321
posted
francineg, welcome!! those are very classic symptoms. Magnesium does help the spasms. I hope you read everything you can- you will need it. I'm very glad to hear you're looking for an llmd.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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