If insurance covered the testing I would go right ahead...but it doesnt so im trying to get an idea of how helpful this will be.
Any other comments about testing/repeating tests from anyone?
[ 01. March 2007, 12:45 AM: Message edited by: santa_pax ]
Posts: 58 | From Planet Earth | Registered: Nov 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Don't know how long ago your western blot was...
I can imagine an LLMD wanting a fresh look at the state of your antibodies.
Certain bands are known to be evident in late-stage lyme.
He may want to see how many +++'s you have, or indeterminates, etc... these will help him determine how strong your immune system is.
And by the way, IGeneX co-infection tests are definitely a must.
I skipped them (too broke!), only to find a year into treatment that I had babesia WA-1 (though very atypical signs). So I would definitely get that done.
That's MY best guess!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Do you mean you had been getting the wrong treatment prior to doing the co-infection testing? Ie, either because you didnt know you had babesia at all, or because you were being treated for the wrong strain?
Posts: 58 | From Planet Earth | Registered: Nov 2005
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posted
I have had an Elisa and two western blots - both came back "absent". None of mine were done at Ingenix, they were completed at a lab in South Bend, Indiana. I don't have the money to pay for Ingenix. I have no doubt I have a form of lyme or co-infection. I have all the symptoms, started with a bout of flu, chronic fatigue that comes and goes on a minutes notice, sharp stabbing searing pains all over my body, searing pain in my feet where It hurts so bad I can't put pressure on them. The docs here are of the mindset that if you don't show positive - you don't have it. Go home and ignore it.
Posts: 32 | From INDIANA | Registered: Sep 2006
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