SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
HEMEX Labs can do some testing. Often, it can be assumed that people with chronic infections have some form of hypercoagulation. You can sometimes tell just from looking at the color of the blood as well (dark black and thick vs. bright red and flowing).
Nattokinase, Lumbrokinase, Rechts-Regulat are options as is the RX drug Heparin.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Hemex labs does what is called an ISAC panel.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Is heparin the only drug that will help this condition? Also, what are the symptoms other than thick blood? Thanks
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
posted
The systemic enzyme products (vitalzym is the one I use) help.
Also many entries in the rainforest herb book have notations about helping the blood be less thick.
-------------------- When I lost my grip on Faith in the maze of illness, Hope gently clasped my hand and led on.
RuthRuth Posts: 478 | From California | Registered: Jan 2007
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I was thinking omega-3 fish oil? Just a thought.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Heparin is the best drug for the fibrin that builds up. Heparin breaks down the fibrin. Things like aspirin won't work, it works on platelets. There are different parts of the clotting cascade, this form of hypercoagulation has to do with fibrin. Fibrin forms even in normals when they are sick. The problem that occurs is that it should stop when the illness goes away.......we are chronically ill, so there is a chronic buildup of fibrin.
Other symptoms are cold extremities. A bluish lace like webbing on the skin. Your feet may turn bluish black because blood is to thick to be pumped back upwards and it pools. Headaches, brain fog from lack of oxygen. Hypercoagulated blood does not carry oxygen well.
Hypercoagulation due to excess fibrin also causes your viens and capillaries to become narrowed as the fibrin coats them like teflon. This coating also prevents nutrients, oxygen and meds from reaching their targets, it's a barrier that is difficult to pass through.
One last thing, fibrin harbors pathogens. I have posted quite a bit on hypercoagulation. One topic with a lot of scientific info was intitled, "You say you aren't getting well" or something like that.
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Doesn't having a low sed rate indicate hypercoagulation? It seems I remember reading that somewhere last summer when tested.
My sed rate was 4. Also can't remember if that's really low or just low normal?
posted
I tested negative for hypercoagulation. But when the nurse was taking my blood and trying to figure out the test to order, she said there were several different tests for hypercoagulation.
So, is there more than one test for hypercoagulation? Or just one single test?
Posts: 310 | From TN | Registered: Jan 2007
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
The only test that will give you a "for sure" is the ISAC panel from Hemex. The ISAC panel is not foound in mainstream medicine yet. It's been several years since this test first came out, so there may be some others now who can run this panel.
There is a test in the mainstream that my doc ran that can be a good indicator if you should proceed with the ISAC panel. It is the PTT, Partial Thrombin Time I think.
It will tell you how thick your blood is. My doc described it as a viscosity test, compared it to thick oil. My blood, as was mentioned earlier was dark and more brown then red. It was also very thick, it glubbed rather then flowed.
The PTT test showed my blood was pretty viscous/thick and we then did the ISAC panel and my hypercoagulation was pretty bad.
I was then treated with heparin for the next 3 1/2 years or so.
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
I was in the hospital with a blood clot for 10 days ( 2 days before my PICC line was to be removed).
My Dr sent me for tons of blood coag tests, all normal......told me to take 1/2 aspirin a day.
In the meantime I've been told by my foot doc that he thinks I have Raynauds. My feet and toes and some fingers turn blue and purple, even when it is not cold. Then they get warm and sting. My legs even look blue after sitting for a while,.....Looks scarey
If your doc won't use Heparin what the next cocktail of choice.
My new Doc gave me a supplement called Endozym which contains Nattokinase 25mg, Bromelain 90mg, and White willow bark. The bottle states it supports blood flow.
Any other suggestions........... I been on Antibiotics and various supplements for 1 year and my feet and hand have never hurt worse.
Any more suggestions on enzymes or detoxing for this one !!!!!!!!!!!
Thanx friends.............
Posts: 116 | From state of lyme | Registered: Oct 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Heparin might be the best "drug" but in my opinion it is not always the best "option". Lumbrokinase, Rechts-Regulat, etc. are often good directions.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
My cardiologist just put me on pindolol for the blue feet and fingers. Now I am thinking that this is the wrong med for me. Going to have to ask my llmd about this one.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
posted
My doc also put me on a capsule to "open the blood vessels". I'm not going to take it. It had a lot of side effects.
All I know is when they draw my blood it takes forever because it is sooooo dark and thick. I remember thinking, Geez my blood must be really healthy cause it's so dark..... WRONG !
Posts: 116 | From state of lyme | Registered: Oct 2006
| IP: Logged |
posted
In terms of anti-fibrin activities, there are a number of enzymes that can be taken. I think in order of effectiveness (and cost?) they go something like this..
Wobenzym can be found at vitacost, iherb etc.. for a pretty realistic price. Recht-Reglat is only from biopure in the USA, and costs a small fortune.
Posts: 690 | From East coast, USA | Registered: Jun 2006
| IP: Logged |
posted
I am glad to see this topic tonight. I just received the new Bryan Rosner book "The Top 10 Lyme Disease Treatments" in the mail today. Vrey interesting book. So glad I ordered it. Anyway, there is a whole chapter on Systemic Enzymes and the benefits associated with Lyme disease treatments. He recommends Wobenzym.
-------------------- Corinne Posts: 529 | From Raleigh, NC | Registered: Jun 2006
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Ugh, my doctor's nurse hates to see me coming!! she's the only one that can get blood out. It's so dark it's almost black. Others have tried three times and gave up. She can nail it every time.
She claims I'm not drinking enough water and that my veins are deep. And also it's like glue, but they've never done or mentioned doing anything about it.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Does anybody know if Dr.H in Hyde NY treats hypercoagulation? Thanks
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/