LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Recommend lab for lyme testing..

 - UBBFriend: Email this page to someone!    
Author Topic: Recommend lab for lyme testing..
panicbegone
LymeNet Contributor
Member # 10760

Icon 1 posted      Profile for panicbegone     Send New Private Message       Edit/Delete Post   Reply With Quote 
I received a negative Elisa test through Kaiser
I received a positive test through IGENEX.
My doctors refuse to take that test result seriously.
Im DEMANDING i get another outside test done through Kaiser and need yet another lab to go to.
Which is the next best lab aside from Igenex!

Also...

I had negative Elisa
No memory of tic bite
No bullseye rash
Negative on co-infections and
although i have a laundry list of symptoms..i have NO arthritis (only full body pain)
clean MRI (Neuro suspected MS)

Is it possible I dont have Lyme and seriously just have CFS and Fibro??

Thx

Posts: 160 | From california | Registered: Dec 2006  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
I don't believe in CFS or Fibro as conditions but as names given to syndromes that doctors don't know how to identify or don't take the time to do so.

Check into MDL or Immunosciences. Both have good Lyme tests.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by SForsgren:
I don't believe in CFS or Fibro as conditions but as names given to syndromes that doctors don't know how to identify or don't take the time to do so.

Check into MDL or Immunosciences. Both have good Lyme tests.

Ditto....I agree totally!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95252 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
panicbegone
LymeNet Contributor
Member # 10760

Icon 1 posted      Profile for panicbegone     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thats a big 10-4. Thanks kindly~
Posts: 160 | From california | Registered: Dec 2006  |  IP: Logged | Report this post to a Moderator
timaca
Frequent Contributor (1K+ posts)
Member # 6911

Icon 1 posted      Profile for timaca     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been tested at the following 3 labs...all good labs...and I've had different results from each lab.

Igenex lab www.igenex.com

Medical Diagnostics Lab www.mdlab.com

and SUNY at Stony Brook www.path.sunysb.edu/labs/ticklab/TICKLAB.htm

It is suggested that one orders an IgG and IgM Western Blot test, at the very least. Ask the lab to report ALL bands.

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
valymemom
Frequent Contributor (1K+ posts)
Member # 7076

Icon 1 posted      Profile for valymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Follow Timaca's excellent advice word for word.

I have been told that Kaiser tries to pride itself on prevention.....atleast that's what a neighbor says who is covered by them and likes them. (Although I read negative things about them here.)

Instead of you coming back constantly with your pain and waxing and waning symptoms......having the western blot done at multiple labs would be preventative. If only you could talk your doctor into doing this. Do you have a good relationship?

Posts: 1240 | From Centreville,VA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
panicbegone
LymeNet Contributor
Member # 10760

Icon 1 posted      Profile for panicbegone     Send New Private Message       Edit/Delete Post   Reply With Quote 
Why do we get different results at different labs?! And why do we only rely on Igenex?
Posts: 160 | From california | Registered: Dec 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by panicbegone:
Why do we get different results at different labs?! And why do we only rely on Igenex?

1) Could be dependent upon what's in your blood that day, the expertise of the lab tech, the amount of time the blood sat around in the post office, etc, etc.

2)It's been found to be the best!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95252 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would recommend Immunosciences. Hubby produces very few antibodies or at least they don't show up in the standard tests. Immunosciences tests different strains of bacteria than other labs use.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.