posted
I've searched threads on this topic and, certainly, not everyone herxes, but in that stupid, masochistic way, I'd like to herx to know that I have a big kill off. HOWEVER, it's been noted elsewhere that perhaps because I may have a good system to clean out the toxins that this may be the reason why I don't herx. I feel cruddy a fair amount, some days better than others, but certainly no major herxes. Not like the ones I've read about.
I exercise a lot. I just rode my bike for 2 hours. I usually do a lot of aerobic stuff. Could this be aiding my detox?
Anyone have any thoughts on what (not meds or herbs) can or, is, done to minify herxes? Do you think that regular exercise (if you're able) can be accomplishing the lymph detox needed?
BT
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
posted
I exercise 3-4 times per week, sauna daily, coffee enemas daily, Cholestyramine, healthy diet, etc. I'm definately detoxing, but definately herx, too.
Some people don't herx, from what I've heard, but I detox well and still herx.
When I had been on the same dosages of meds, my herxes diminished, but when they increased them, they got harder again. Are you on strong enough meds?
I understand the "desire" to herx ... you just want to know it's all working!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
When I started 400mg Doxy, no herx, then added 500mg azith, no herx, removed doxy, felt worse, but no herx, stopped azith, started clarithromycin, no herx. I will add plaquinil in 3 weeks.
I want to herx because, yes, this will show that things are working, however, I do not want to because it'll mean down time from work. Double edged sword.
BT
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
frakktured1
Unregistered
posted
could be your lyme disease load level is very small. could be, you are just suffering from coinfections not the BBSpirochete.
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
BT,
I do not want to appear rude, but have you gotten a positive Lyme test. Did you see the tick? I know not everyone gets a rash. I am hoping that you do not have lyme!
How do you feel if you do not take antibiotics? Maybe you could discuss that with your LLMD.
I know a man who was diagnosed with Lyme and did 30 months of picc line antibiotics. As soon as he dropped the antibiotics he felt great. Now the antibiotics may have cured him, but he is questioning if he even had Lyme.
God Bless. Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8880 | From Illinois | Registered: Aug 2004
| IP: Logged |
posted
Hiker, that's a legit question. I did get bit, found the tick, imbedded. No rash. My WB came back positive for only Band 41 which is a vague type of finding to some, but some research ties it directly to Lyme.
Still waiting of the herx.....
BT
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Eye
I did not herx for the first 4 months of treatment -I just started feeling better-
After 4 months Bam herxed almost non stop for 8 months or so-- I had been sick for Many years before treatment--
I have done Lots of detox stuff -Jay-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
posted
Love ya Joe, you did pretty much hit it there, especially with your last thoughts.
I will start Plaquinil in 3 weeks. The combo of Biaxin and Plaquinil (one of D's two protocols) is known to be much more powerful. So maybe I herx then? Who knows?
I am worried. I am not happy. I should worry less and be happier. Advice taken.
BT
[ 03. September 2007, 07:08 AM: Message edited by: EyeBob ]
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
quote:Originally posted by EyeBob: Hiker, that's a legit question. I did get bit, found the tick, imbedded. No rash. My WB came back positive for only Band 41 which is a vague type of finding to some, but some research ties it directly to Lyme.
Still waiting of the herx.....
BT
So, did the tick bite make you ill?
I'm on a heavier load of abx than that, so that might explain it. I'm also treating babs.
Are you feeling better on the meds? My daughter was clinically diagnosed with band 41 positive and band 34 IND. She has seen significant improvement on meds ... she also herxes, but nothing like I do because she was not nearly as sick as I was/am.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
EyeBob, It doesn't work that way for me but I have heard quite a few people say they don't herx and just get slowly and steadily better.
If your bite wasn't very long ago. (I'm sure you've said... I just can't remember. ) The load might not be as high as if you waited 10 or 12 years. In which case you might just continue to improve and never herx and it would might not take very long in the grand scheme of things.
I would think the excersize helps as well. Are you noticing any sx resolving? That would be a clear indication without all the nasty herxness.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
hi EyeBob
Are you feeling better? Any releif from your symptoms? Do you see any real progress?
I think this would say alot. Herx or no herx
hugs & healing Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi EyeBob
Forgot to ask one thing...how long have you been on abx?
Some people don't herx till later into treatment
Take care Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
started doxy 400mg late June, added Azith late July, stopped Doxy early Aug, stopped Azith late August when I switched to Biaxin. This would make about 2 months of ABX treatment in total, none of the drugs for more than a month. All were taken at high doses.
I am feeling better. a few days after starting the Biaxin I dipped a little, it seems to be making symptoms a little worse, not herx-like like I've read about.
Thanks for all the replies.
BT
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi EyeBob
Quote from EyeBob: "I am feeling better. a few days after starting the Biaxin I dipped a little, it seems to be making symptoms a little worse, not herx-like like I've read about. ----------------------------------------------------------------------
Glad to hear your are feeling better
When you had a dip & felt a little worse a .... This IS a herx. A herx is a worsening of symptoms..it doesn't always have to be horrible.
I think the fact that you are feeling better, in itself is very significant. Some very lucky people just don't herx. You may be one of them.
I was wondering why you don't stay on one abx for more than a month? Some people don't herx till month 2, 3 or 4 .
Wondering also if one of the reasons you are not herxing as much as most peolple is because you are not staying on one ABX for very long?
Just throwing another question out there again.
Take care
and hope you can continue to feel better Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
just wanted to add that my hubby pulled a tick off himself & was on high doses of mino. He only felt worse for 2 days then was fine. He told me the rest of the time , it was a walk in the park....lucky!
take care Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
Dana, you pose a good question. I have not stayed on a single ABX for more than a month because in the beginning of my treatment, I had to diagnose and prescribe for myself. Hence Doxy, then adding Azith. When I saw my LLMD he replaced both with Clarithromycin.
I may herx more if I stay on the ABX longer, this is true.
I exercise as much as I can. Riding my bicycle has, perhaps, given me the most physical and mental benefits during my early treatment. I am planning on adding Plaquenil in 2 weeks, I'll let you know what happens then... bt
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
frakktured1
Unregistered
posted
Thanks Cavey that was really good stuff...
Eyebob, I doubt very seriously if changing your abx has anything to do with why you're not herxing. If any of these medicines were killing any of the TBD's we can get from ticks then you would have herxed. What may be more accurate is as someone posted earlier. Your bacterial load may be minimal.
Using a llmd's name by the way is verboten...kindly edit his name out of your previous post.
having said that I thought he only like tetracyclines?
three times a day?
So you diagnosed yourself, like many of us do, how then did you prescribe for yourself? Are you an md or eye doctor as your monogram suggests?
My LLMD has this planned for me, he consult's with Dr. D in boston quite a bit.
biaxin/plaq for a few months, then switching to tetra/imantidine for a few months.
I just assumed that this was a Dr. D, thing, though I know that Dr. D is heavy into the tetra. I've spoken with other Dr. D patients and they have recieved the same treatment.
BT
Posts: 299 | From New Hampshire | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/