posted
For many years I have had cold hands and feet.
For the last year after many antibiotics and supplements for Lyme and Babs (FISH test now neg for Babs) I am getting more symptoms realated to Lupus. Last June I had a test for Lupus , Smooth Muscle Anti, I think, and it was neg. But this past winter I have had purple toes, rash on face, (once in a while) sore joints, hard to breath at times. All my adult life I have had neg and pos ANA's.
After a year of treatment, can these symptoms pop up and get worse ????
I've stopped all antibiotics for about 1 month and have since been on Samento and Enzymes,Probiotics, and Diflucan and Nystanin. The oral antibiotics and 6 weeks of IV Roceph took a huge toll on the gut. After 1 year of Doxy, Omnicef, Zithromax, Amox, Mepron my system has had it. During most of that year, I did not do my research and was not detoxing.
Has anyone else had Lupus symptoms after antibiotic therapy ? Please convince me this is Lyme related. Hope it is just part of the Lyme thing....can't imagine dealing with something else.
Posts: 116 | From state of lyme | Registered: Oct 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
When I was 21-
They kept telling me for a whole year they thought I had lupus when I was 21 and kept checking my ANA but thank god it was negative. That "lupus" went away with longterm abx for "walking pnemonia" (given for whole year!).
8 years later when clearing brush at my new house in Aptos, Nisene Mark State Park, CA, I got bit and got a rash at bite site and came down NOT just with Lyme, Babs, Ehrlichiosis but with TERTIARY stage Lyme. So I believe the "lupus" was aLyme eruption as at the time I was spending a great deal of time drawing in the oak woodland, would spent afternoons reading, drawing, painting and studying IN THE GRASS (agh!) up at UCSC...
ANYWAYZ- with my tertiary stage Lyme I recognized MANY symptoms as ones I had had before-
MALAR RASH butterfly rash- spoltchy all over body rash sensitive to heat/sunlight personally I think lupus is a Babs/Lyme crossover manifestation-
Make sure you are treated for Babs!!! Convincingly*)@! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Thanks Sarah....... I was treated for Babs for 5 months and had a FISH test which is suppose to be the end all of all Babs testing and it was negative. I've also been reading yesterday and today that hypercoagulation can cause a lot of these symptoms.... Who knows ?????
I just get discouraged because after all the treatment I have had in one year, I would think some of these things would get better and not worse.........
Thanks and hope you are doing well...... Take good care.........
Posts: 116 | From state of lyme | Registered: Oct 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I was on Babs tx for 2 years!!! Mepron & Zith & Artemisia for the last year-!!!!!!!!!!!!!!!! It can take a while- I hope your symptoms go away!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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