posted
Anyone doing the Marshall Protocol and getting better? Looks interesting. Thanks, Nikki
Posts: 129 | From NYC | Registered: Sep 2006
| IP: Logged |
ByronSBell 2007
Unregistered
posted
I dont know if I agree with trying to reduce all the vitamin d possible from the body, other lyme disease doctors strongly recommend against it and my doctor has given it a try and 99% of the patients responded negatively
IP: Logged |
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Nikki,
I wanted to do it, but can't at this time. I did restrict my Vit D intake and start wearing the NoIR glasses. These glasses REALLY helped me a LOT with the brain fog and other neurologic symptoms. I also try to keep my exposure to light down--tough, since I live in a very open plan house in Southern California, but I do keep the curtains closed and the lights out as much as possible. I also use Ketazo (whatever) cream when I go out during the day.
I'm doing the Buhner protocol for handling the critters.
People on the Marshall protocol hang out there and don't contribute on this site much. Mostly, people here are doing long-term antibiotics. Some are on herbs, but the Buhner folks have a separate support email list (kind of like the Marshall Protocol guys), so only the dedicated ones who want to answer questions from people who are interested hang out here, I've noticed.
There is a situation with the MP, in my opinion, in that it doesn't directly address any co-infections, especially Babesia--which is a parasite. Dr. K puts the MP at the end of his handlings AFTER all the co-infections, mycoplasma, herpes, etc., are done in his article on Beyond Antibiotics.
However, the MP addresses other types of infections than Lyme--anything that hijacks the Vit. D immune response.
There is some flack at this site from people who felt cut off or put down by the moderator at the Marshall Protocol site. He tries to keep things the way he puts it out, and not experimented with, which is fine with me. If everyone just does what they want, you have no baseline at all. So, you can particpate or not.
All that said, if I successfully handled the co-infections and still had the 1,25 D marker above 25 and had symptoms, I would do the Marshall Protocol if I could. However, I am not in a position where I can be herxing all the time.
Love,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
| IP: Logged |
I check in every now & then to say ``hello'' and update people on my progress with the MP. I was very, very sick before I started it 5 months ago. Now I am entering the 3rd phase and feeling like a new man! (Caution: most people do not progress this fast!)
My earlier posts, along with some insights as to why (perhaps) MPers do not post much, can be found here. For what it's worth, I tried many other natural remedies before I started the protocol including heavy, extended doses of doxycycline.
Any way, I have late stage Lyme and mycoplasma pneumonia. In the fourth month of phase 2, all the ``tools'' of the protocol helped my body ``find'' the mycoplasma pneumonia that was embedded in my throat for more than two years. I understand that some MPers experience ``acute'' infection like this in the first few phases of the protocol. Since getting through this difficult phase, I have nap-free, pain-free, productive and lucid days!
A few other observations:
- I was very cynical about many of the MP claims, particularly the vitamin D thing. First, it's interesting to note that, finally, MOST people agree that it is not a vitamin --- spend some time researching through the Net - but find the credible science pubs and you'll see that D is a hormone and a secosteroid. And most of you know what steroids can do to your immune system!
- Strict avoidance of D served me well. As my D levels dropped, taking Benicar and the other antibiotics, the herxing was dramatic. It doesn't take a brainiac to ``do the math,'' in terms of understanding the ``cause and effect,'' but it does take much discipline to follow the protocol. It's not for woosies!
- I've experienced many other dramatic changes in my health; and know that I am getting a bit better each day.
Cass, you don't have to be ``herxing all the time.'' There is a surprising degree of latitude one has in managing the dosing; as well as quelling the IPR (herxing). As well, I found tremendous relief in frequent detoxing with saunas - thought to rid the body of inflammatory endotoxins. I also noted that since I got through this rough period of healing, my BO changed from odiferous (ammonia?) to non-existent/normal. This healing is real!
Byron, where did you get your 99% statistic? Early on, the drop-out was thought to be higher. Whatever the case, if any of you are tired of ``trying'' herbs, rife machines, et al and spending money on alternatives that don't work - read up on the MP.
If you have questions feel free to PM me.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
| IP: Logged |
posted
The MP is the only thing that has made me feel like a human being. I'm not at the total remission point but I can see a bright future for once in my life.
I do know of others on this board that have left such as Lonestartick who was on the MP she has her life back and came back negative on Igenex for lyme and all coinfections. Another name that comes to mind is Semper Fi who no longer post as he is well.
The biggest tip I can give anyone that my Dr. has all her Mp patients using is Ambrotose a glyconutrient. You will not found it mentioned on the MP site as they do not want to add any supplements. You can only start out with a tiny bit but it really increases your energy. Not trying to sell the stuff just letting people know that it can speed up the healing process.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
I was really interested in MP but my llmd says no. She said it goes against everything she was taught in medical school about Vit. D.
If abx don't work, I might give it a go with another doc. It's kind of my backup plan at this point. I'm *very* uncomfortable without a backup plan.
Also, I was just tested for vit d and was an overall 6 (they like to see 40-50 on their scale). I guess my Vit D isn't doing much to hide the lyme at this point anyway.
Have you had your D levels checked?
Sarah
Posts: 91 | From East TN | Registered: Mar 2007
| IP: Logged |
posted
Sarah, my D levels came down nicely by avoiding foods with D. As I mentioned earlier, the whole D thing didn't make sense to me. But sure enough, as they came down -- whammo! My 25D is 11, here's the rest:
JarJar, thanks for the Amrotose tip. If you can provide insights or links, that would be great.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic