AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I have been feeling worse since- well basically most of 2007.
At first I was hoping that it was just because people had been sick around me and there was a ton of stress and some of it really serious concern
Then I had a period where I couldn't get enough sleep and was way overexerting myself.
I was hoping all these things had just put a little too much pressure on my immune system.
But I am certain I am getting worse. Been through this enough times to know. I am hoping that I can go back on IV.
I am so tired of waiting to be able to actually live I am hoping that maybe IV will actually let me live and finally get back to the career I got a degree for that has gone unused so far.
My list of cant's is growing and it doesn't really help that I apparently don't really look sick at all anymore
Although I am a mess - fatigue and everything that accompanies it (weakness, Loss of balance, memory problems, speaking problems etc)
Its just taking so much of me away - again... taking significant portions of the parts and pieces I had managed to reclaim - again.
If anyone knows what Medicare actually covers as far as IV meds/ picc line insertion I would appreciate it if you would let me know...
Tried calling medicare and they really don't give any concrete answers ...
most answers are ``well, if it is medically necessary then it is covered''
And as we all know medically necessary has different interpretations and usually rather unfavorable when it comes to lyme.
I also have Medicaid but medicare is primary so I figured I have to find out what they cover first.
(Mom is helping me with the phone calls or it would take eons for me to find anything out ... hold - they have no idea - transfer and hold for another 30 min or so - they don't understand what a picc line is - and on)
I am very grateful for my mom cuz at this point I wouldn't be able to find out a thing... phones are hard sometimes especially long lulls where I can sleep.
Sorry I am so whiney. Its just I am so tired and sick and every little stupid thing is going back to being hard - AGAIN.
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Boy, I know how you feel. My doc had me on ceftin twice a day, a small dose. Then said since I had been on antibiotics for a year and a half, stopped everything.
I started getting worse within weeks of stopping the antibiotics. All symptoms came back with a vengence: facial twitching, night jerks, eye twitching, red face, foot pain, you name it.
I tried the herbal for a while and had bad reactions to them (could have been a herx, I don't know).
But I ended up going back to doctor and he put me back on ceftin. Now about a month later, I think I'm getting worse, much worse.
I'll just hang in here tho. Somethings got to give.......
Lord give me patience and I want it right now..............
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I'm sorry Azure Wish, that really sucks. I hope you get tx again soon and get into remission quickly.
You're lucky to have a helpful mom. Wish I did.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Thank you for your replies..
Randibear - if you are getting much worse after about a month do you think it could be a herx.
In my opinion As a lyme patient I wouldnt want to come off of abx till alll my symptoms are gone.. definitely not because I hit some arbitrary amount of time on abx.
DLL - Actually I am in treatment it just seems like its not helping any more. I have been in treatment and disabled since 2000.
sometimes better than this sometimes worse than this. I am greatful its not worse than it is but still getting worse is not moving in the right direction.
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