Topic: Doctor requiring info on Lyme rage management skills
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Anyone have any good medical literature or sources for controlling or managing Lyme rage? They need tips for coping skills or other information?
Any help will be appreciated!!!
I am sending the doctor this post directly.. so they can see your responses... as I am still tied up like the kangaroo that I am, sport.
posted
Hi -- I usually find it useful to have a really private place to yell and scream for a while -- it helps!
I think helping to acknowledge someone's feelings is initially very important, as in identifying anger, pain, grief, fear. When I hear someone say, sounds like you are feeling upset/unhappy/fearful/angry, that can calm me down initially, because it helps me locate my experience.
Then working out the best solutions we can for the issues at hand. We have to know we are living with extraordinary limitations, and it would be really useful if others understood that too about us.
I see us as having to make constant accomodation, since we don't get to have normal living like everyone else. This experience can be very upsetting.
I suggest having a good therapist to help with developing more awareness about how to handle feelings and attitudes about options, since we go through so much loss.
Now, if Lyme-rage is med-related, as in the efficacy of the meds treating Lyme, then I guess also the meds would have to be checked and monitored. Is this so, that Lyme rage can also be due to how the meds treating Lyme are working or not working out?
Posts: 13116 | From San Francisco | Registered: May 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Well, it's not literature I'm referring to, but I shall vent a bit here too...
It sure would be easier to not freak out if everything weren't booby-trapped...shall I tie my shoes myself? If I do, will I be able to make it down the block without having a seizure?
Yea, right...my poor partner!
I guess what I'm saying for the sake of you doctor friend who is reading this, is that the more aware you are of what is at the root of your upset, the more likely you are to not entertain the emotion when it arises. Once I realized I was upset because everything everything is potentially a booby-trap, I started asking for help finding things, and responding to my world in a way that I could better manage, rather than do things that provoke anxiety in me.
For example, I am completely incapable of multi-tasking. I used to feel anger arise when someone spoke to me while I was doing a task. Now I stop, breathe, and explain I am incapable of listening while I'm doing XYZ. If they respect it, all is good.
But it's hard and unreasonable to ask people around you to treat you with such constant care. So when they don't, I sometimes still get upset, and then apologize later.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
Lyme rage seems to be rapid in onset, brief and intense, then just as rapidly disappearing. Having experience mild forms of it, I used to tell those around me, "Listen to what I'm saying, not the intensity with which I'm saying it."
I would suggest trying to prevent an overload of sensory input (bright lights, loud sounds, multi-tasking, emotional stress) that contribute to emotional overload when sick.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
What works best for me is to: 1. Take a dose of Xanax, then 2. Go outside, and curse under my breath at whatever set me off, while throwing a softball against the wall of the house until I am exhausted. This uses up the extra adrenaline, and gets me away from my DH, so I can't take it out on him. 3. Listen to Enya's music.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey tinnie
I don't have too many brillant ideas other than treatment for the TBI's that bring on the rages.
When a lyme rage happens the aldrenaline starts pumping. & the only thing to get rid of the pumping adrenaline is excercise or medication.
1/2 valium can help & also going on a brisk walk~ It can sometimes just take a short walk.
If a lyme patient is too tired to walk punching some pillows is a great way to let it out the anger safely. Visulizing the pillow as what you are angry with can help.
...so punch away untill it pass's. This can really tire ya out. Sounds like a too simple solution to a big problem but it does help.
Couseling can help but when the rages come on & if they are happening because of brain & neuro damage personally I don't think councelling can do the whole trick to erase the problem. Can't hurt but the only permanet help is treatment treatment treatment for TBI's.
posted
Sound sensitivity used to be a major problem for hubby -- especially unexpected sounds like someone knocking at the door or a phone ringing. He still sleeps with cottonballs in his ears.
Dealing with insurance people and anyone in customer service is almost always good for a rant. It is a crazy world when sick people have to tell others how to do their job.
I think magnesium defiency can also be implicated in rage issues. Also serotonin deficiency -- natural things worked much better for hubby than drugs. SAM-e, 5-HTP and the absolute most important for him was resveratrol -- otherwise the serotonin converted to quinolinic acid which is a major neurotoxin (was elevated on MetaMetrix lab test before Lyme diagnosis or treatment).
The unexpected outbursts are the hardest for me to cope with. Sometimes IV glutathione helps if it is a toxic reaction.
Another major contributor is poor sleep. The best thing hubby has found for sleep is Relora -- a proprietary compound of Magnolia and Philodendron which helps regulate cortisol. However, the magnolia can bring babesia out of hiding (used to treat malaria).
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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