Yes it does get better. I used to ask my kids questions over and over (within hours/minutes of the first question) and they would say "you just asked that mom, don't you remember?" And I didn't remember asking it.
Now I don't that nearly as much I would say once in a great while and usually right after I take my abx and I'm herxing. But the majority of the time I can say I don't do that anymore.
Now if we could only get my mom to stop asking me the same questions over and over.... But my mom will say to me first "stop me if I allready told you this" We all laugh about it.
Your family and friends will have to learn and understand about your disease, and give you a break! Don't stay in the house over this.
I guess when I was at my worst and I had to leave the house and go to social functions with my husband I did alot of listening to other people and didn't talk much. Funny thing was most people will talk about themselves forever without asking you anything. So I learned how to still socialize without looking like a total idiot. It worked well.
But again, eventually it got better, and everyone is different. So you never know when that moment when you will stop doing that.
posted
I understand how you feel. I forget names of common objects, who I spoke to and about what, I often can't remember how to spell words I've known for the past 30 years. Basically, I feel stupid!
If you can, ask family and friends to help you out. Perhaps asking them to let you know (politely) when you start repeating yourself. Keep a little notebook with you to remember decisions and discussion (especially with children, as they may take advantage of your memory loss!). I hope it gets better for you soon, I've been this way for awhile.
I just keep praying.
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
After Iv Rocephin I haven't done that since!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi sick
My memory was completely gone before treatment. I would forget everything.
It is MUCH better now after 3 plus years. But it's never going to be perfect & this I have to try & work with.
Stick with treatment. It may take a long time but it is so worth it.
hang in there, it will get better over time Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Memory gone and doing stupid things sort of go hand in hand for me.
I also repeatedly ask the same questions. I think sometimes it's because I'm not really paying attention when the person answers, so I have to ask again.
My poor mom used to have a hard time remembering who she told what to - but she had TEN kids to keep track of!
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
posted
I can't remember too and it scares me. I just keep telling myself it's going to get better. I looked right at my favorite Aunt and couldn't remember her name.
I get up at work, walk down the hall, and then can't remember what I got up to do. I try to cover by going to get water. It happens a lot so at least I'm hydrated.
Posts: 237 | From WV | Registered: Mar 2007
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posted
I have memory problems. My kids have adjusted to this ... if I have to pick them up at school, they leave a note on the kitchen counter, then call me an hour before pick-up to remind me.
I also have trouble with word retrieval and remembering what I'm talking about.
I've noticed that my LLMD's assistant checks to be sure I have a pen and paper before she even starts our phone consult!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
First timer: This is a good day and I'm so grateful that I signed into this site. I've been clinically diagnosed with Babesia and am in my 3rd year. I was not treated for about 6months. During the first year, a psychologist asked me how old I was and it took me 15 minutes to reply.
I've done doxycycline, mepron/azith, tetracycline etc. etc. etc. My doc is a DO and amazing! I've seen specialists - psych,neuro,infectious,pulmonary (initially hospitalized with acute respiratory dysfunction), ENT (have had a normal voice about 50 days during the last three years). Also saw Dr. D - Boston/Falmouth, who concurred with my DO that it was lyme/babesiosis and laughed and said it is all in your head - but not the way all the other specialists indicated - the rest basically said I was crazy.
I am still on tetracycline and am into about my 6th week with an acupuncturist. I'm taking chinese herbs on top of the meds - artemesia etc. This has been amazing. Since my symptoms have been overwhelmingly cognitive dysfunction etc., minor joint pain in comparison.
Last two times I arrived at his office, my speech was on an incredible delay (can't retrieve at all), left side of face does not work the same as right, left eye will not open, unless I shut the right eye, left leg is almost dragging and will buckle, incredible fatigue, disorientation, tremors - full body etc. etc. etc. I am able to walk out of the office and carry on a conversation. This 'doc' was considered primary care in CA, but PA treats them like they are 3rd rate citizens.
My DO is supportive of the alternative care in conjunction with the meds. I've had rocephin, while hospitalized this past November, and I believe that this was a turning point - my temp has been on the low side 97.0-97.4 for most of the three years, malaria like chills that last forever, never a temp (didn't reach 98.0 until February this year), yet after 3 days on rocephin, I chilled (96.5) and then sweated profusely and that cycle went on 5-6 times that night.
I think that my 'black hole' language experiences, as I call them, frighten my kids (even though they are 22,24,26), It's not the person they once knew.
I've challenged myself every day to do something that engages my brain - quilting (you'd be surprised how many executive functions are challenged in this activity), reading, soduko. I've come a long way from a time when I wrote myself a post it note in the LR so that I'd know why I went to the kitchen.
I still have not driven again - tried it once, it it brought the symptoms on severe - this from a person who would drive from PA to Boston for the weeken to visit family with three kids. I'll revisit that in the future - now I am fortunate to have a bus system - and that forces me to organize my day, get more exercise etc.
Don't give up. Even though my children were older, there have been some real teaching moments - making sure my voice is heard with something as simple as asking them to let me ask, now matter how 'lost' I seem for words.
Hang in there, Annpa
Posts: 4 | From PA | Registered: Apr 2007
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