Topic: Lyme Rage - Herx / Inflammation of the Brain
canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Hi guys,
I had a terrible terrible case of Lyme rage last night....eesh
I have never been that ridiculously rambunctious since I was, say, 2? years old. Blech!
Anyway, I was a real pill all morning and most of the afternoon. I started getting angry with the lovely young girl who has been helping around the house, and I said,
"I've got to warn you [very angry tone]...that I'm having REAL brain problems right now...I got massive inflammation in my left temporal lobe, and I am a right B*tc*, so I'm going to try to do this calmly, and I apologize but I'm warning you..."
Anyway...the weirdest part about it was it lasted about 18hours...and then, that was it.
I was speaking with my boyfriend about it after, and I remembered that similar weird things had happened last time I was on abx for Lyme (a couple of years ago). I would go through these various emotions, and then they were *gone* - vanished!
It felt distinctly like when the angry episode was over, that there had been a physical pressure in my brain that is now gone.
Last time, it was like the inflammation was just moving around my brain, affecting different regions...
It's week 4 of Bicillin for the first time...I'm hanging onto the rollercoaster...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Whenever I am trying a new med that is really going to work. I get a build up of so much pain in my head that I cry so hard my eyes pour tears.
My llmd thinks lyme is in my eyes and tear ducts because when lyme gets out of control for me I start to lose my vision.
If I am on an abx that is going to work my eyes will just pour tears sometimes even without a big emotional herx.
I also get the angry head pain too. Those days I am very quiet because I can't even stand myself. I have children so am I careful about what comes out of my mouth. On those days I just say "you know what guys I feel really cranky today" everybody in my house knows not to make to many demands on me because I can't emotional or physical take it. Usually my family can tell by my physical appearance because my eyelids get so heavy when this happens.
I also have a spot on my front temporal lobe.
Somedays I feel like I have a split personality because of pain.
For me I think babs is the source of my head pain. I just started treating it two months again and have seen huge improvements in how I feel. However, the herxes are the worst ones I have ever had.
As far as losing it with that girl. Maybe when your feeling better you could apologize.
Tomorrow is always a fresh start.
Posts: 175 | From Pa | Registered: Aug 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Katcon,
I really want to thank you for relaying about your head pain. I think now that I realize what "angry head pain" feels like, I'll recognize it, and hopefully practice detachment when it arises.
The girl - oh I apologized - in fact, that warning was a partial apology because she asked a question and I started getting angry - "what am I doing??" I was thinking to myself.
It's interesting that there's an "observer" part that oversees all the rest objectively.
I've been apologizing all over the place. I've started apologizing to my immediate neighbours who must have heard the yelling at 11PM...I was so humiliated...
Anyway, it's all about the experience, right?
With best wishes, peace and happiness for us all,
canbravelyme.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
I get the same thing ... nothing will please me at the beginning of a herx. My family is very understanding and recognizes it right away. Hubby will hold me to calm me down no matter what I just said to him.
It's usually the first sign a herx is coming on.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
So what can I expect next? eesh...
I have to say, my partner is such a trooper; he held me said it's going to be OK; come on, let's go to bed...oh gosh! This is just so terrible. Anyway, we know what to...expect? I'm feeling a little overly teary now - great.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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