posted
I have an 8 year old son with autism, and we have tried many different biomedical and nutritional strategies with him over the years with varying success. He has made improvements but is still moderately autistic.
A recent course of the antibiotic Septra for a tooth infection produced major gains in my son, and many of his autism symptoms diminished greatly while on this antibiotic. When the antibiotic course was finished, he regressed again.
I have noticed this antibiotic "honeymoon" before with penicillin (several years ago for a respiratory infection) and with Septra for a different infection (a GI pathogen) several years ago.
With this information in hand, I began to get suspicious of Lyme or some other persistent bug. Ultimately I wound up calling Dr J's office in CT to ask what tests he normally orders when diagnosing a patient, and I immediately ordered these tests thru my son's reluctant but willing pediatrician. I got my son's Lyme and co infection tests in yesterday.
This is all new to me and I am in real need of some help here. Any feedback would be most appreciated.
The pediatrician said that the IGM in this case is a false positive. He gave me a copy of a textbook page that says he does not have the right bands to be positive.
Although he is not CDC positive, I can see from the lab test sheet that he is considered Igenex positive, and I would think Dr J. would consider him positive, correct?
We are following Dr Amy Yasko's protocol for the treatment of autism. To complicate matters, her view on Lyme seems to be that we all probably have the organism on board and only those who have a greater exposure to it or whose immune systems are impaired will have it overgrow. It is not the organism she approaches first because it is hard to eradicate and can have a rocky detox. She advises first addessing the total body burden of abnormal organisms, especially in the gut, lower them, and then you have a better immune system and a better shot at the Lyme organism, plus a less problematic detox.
Since we are following Yasko's protocol I am just not sure what to do or who to believe.
I have an appt scheduled for Samuel to see Dr Jones later this month, yet I am not sure he is really positive, and even if he is, should it be treated or could we be causing worse problems for him down the road.
I am obviously torn. Any advice for me in considering how to move forward with my 8 yo son?
Also, what about other treatment for Lyme besides the Dr J antibiotic route? Herbs, homeopathy, rife, Lyme specific transfer factor, etc? What is the best route of treatment for a child with autism? I understand autism can mimic Lyme and if you get rid of the Lyme maybe the autism will be treated too.
Thanks so much foryour time and help,
Beth
[ 06. May 2007, 03:49 PM: Message edited by: starfish1995 ]
Posts: 15 | From PA | Registered: May 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
If Igenex says it's positive, it's positive! False negatives are common, not false positives. Pediatrician doesn't know his Lyme Find a LLMD.
I just saw that you have an appointment with Dr. Jones. He's the best! You're in good hands!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Can you tell me if you have ever treated his autism with hbot?
The reason that I ask is that autism responds relatively well to a lower pressure 1.5 ATA
A child that has lyme related autism will not see those gains. However, he will respond to higher pressures, It can be telling.
It is something that has not been studied however among clinicians that offer HBOT we are starting to notice this trend.
You will find a link on my web address to lyme related autism. There you will find parents that have way more knowledge than I do... I have treated both but it is relatively a new area for most.
If you where to ask me what would the best approach be I would say low dose long term antibiotics and HBOT. But then again I am bias
Your best bet would be to speak with other parents. Find a really good LLMD/pediatrician and go from there.
I hope this helps,
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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Read the Western Blot link above at least twice! Lots of excellent information. Also read the replies to that link!! Very important!
18: An outer surface protein.
22: Possibly a variant of outer surface protein C.
23-25: Outer surface protein C (osp C).
28: An outer surface protein.
30: Possibly a variant of outer surface protein A.
31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).
37: Unknown, but it is in the medical literature that it is a borrelia-associated antibody. Other labs consider it significant.
39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.
41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
45: Heat shock protein. This helps the bacteria survive fever. The only bacteria in the world that does not have heat shock proteins is Treponema pallidum, the cause of syphilis.
58: Heat shock protein.
66: Heat shock protein. This is the second most common borrelia antibody.
73: Heat shock protein.
83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi.
"In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis:
The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93." (Dr C of MO)
=====================
"Many would say the " +/-" equivocal ["IND"] bands are not significant. The problem I have with that, is that there are "-" negative bands. The lab has no trouble calling some bands negative. So they must be seeing something when they put "+/-" at some bands.
The only thing that makes sense, is that there is a little bit of that antibody present in your serum. If the "+/-" equivocal is reported on the borrelia associated bands, it is usually significant, in my clinical experience. This is a strong clue that I am on the right track."
(Dr C of MO)
***refresh your screen***
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I never understand why some doctors order the tests and then dismiss them when they come back positive. I think you are on the right track pursuing the possibility that your son's autism may have a Lyme component and your experience with the antibiotic improvement seems to also support infection as a major factor.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi starfish1995,
The tests results say positive to me too. Dr. Jones is a wonderful doctor, your son will be in good hands. He has a gift with children.
I am taking Bactrim for Babesia,(along with Malarone and Zithromax) so the bactrim could be helping Babesia as well as Bartonella?
My son's autistic behavior did not get better until he was treated for Babesia. He took Malarone and Zithromax and he completely turned around. He started to look everyone in the eye and his anxiety was greatly reduced. He finally started to learn how to read.
Treating co-infections play a big role in getting better, along with treating lyme.
Good luck to you and let us know how the appointment goes.
Posts: 6638 | From Michigan | Registered: Jun 2001
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quote:Originally posted by SForsgren: I never understand why some doctors order the tests and then dismiss them when they come back positive.
Good point.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Starfish..
Bless your heart and hugs to your little one. I've got to say how absolutely wonderful it is to see someone who goes the extra mile to help their children. You are a real treasure.
Here is a real simple explanation that should make sense.. even to your mule-headed doctor.
You have positve bands showing a reaction to "pieces" or "parts" of the spirochetes. If you don't have Lyme.. then why would that happen?
You can compare what mule-head is saying about the results of the IGM test... to be like showing someone is a little bit pregnant.
HUH? A LITTLE BIT PREGNANT?
You seem to be a very intelligent person.. with a good heart.
Follow your heart. It will lead the way even when the brain is being pumped full of things that just ain't so.
When in doubt.. Beverly is an excellent resource and has helped many many people. And she has a lot of experience too.
As for your "reluctant but willing pediatrician"...
If he has missed the Lyme boat over the years... he will NOT be happy that you are looking elsewhere and finding better information. His jump to the "false positve" explanation is a common direction they go and a "write-off used by doctors who have misdiagnosed someone.. and a commonly used cover-up that we see quite a bit.
Some doctors go as far as saying the labs doing the tests would show a bottle of coke to be positive. They don't like being proven wrong.
And.. they can get VERY ugly when they find out they ARE wrong.. so do be advised. I have even known these mule-heads to go back and alter their records to say they asked the patient about ticks and Lyme and they denied being exposed.. etc.
You MIGHT want to get a copy of your records so no "funny stuff" will occur.
As for the negative PCR's.. VERY common. If a PCR test picks it up... you've got it.
BUT.. they have a reputation of being too sensitive and they miss many who are infected.
I think you are on the right track.. so do keep going until your questions are answered to your satisfaction.
Can you do me a favor?
When you go up to see Dr. Jones.. please tell him Tincup sends her love and thanks him for helping yet another child.
He IS the best!
Please keep in touch so we can provide any info you may need.
Oh.. I just sent this out on an email.. so maybe you'd like to see it too?
Keep on going mom... you are doing a good job!
`````````````````````````````````````````````
Dr. Alan McDonald and others have photographs of spirochetes in various forms at the following link. Be sure to run your cursor over some of the pictures to see other forms. Also .. there are links to click on for more information. Excellent work.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
One more point!
Your observation of the antibiotics helping in the past will be important info to share with Dr. Jones. Be sure to tell him that and what kinds worked in the past!
I hope you keep educating yourself and doing research....and please, at the end, become a lyme advocate/activist so you can help other mothers....
Posts: 983 | From The sky | Registered: Feb 2005
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posted
Thanks everyone for your encouraging replies. Okay, so now I know I am onthe right track, my son has lyme, now how to treat it.
Julia, you asked if I have done HBOT, and the answer is no, we have not. Dr Yasko whose holistic treatment protocol we have been following the last 2 years for the treatment of autism, has some concerns with HBOT early on.
I think Yasko feels that until the aerobic pathogenic organisms have been dealt with, one should avoid HBOT because of the potential for the oxygen enabling the aerobic organisms to overgrow. I think she prefers to defer this treatment until her final step of healing - remyelination (Step 3 of her program).
HBOT aside, I am really torn on how to go about treating lyme in a child with autism. I am scared that anitbiotics may just drive the lyme infection deeper and not deal with the underlying cause which is a faulty immune system.
I am scared by several stories of kids with autism being treated with antibiotics who wind up worse than before (some moms have e-mailed me privately with their stories).
What about more holistic approaches which include homeopathy, herbs, while simultaneously providing natural means of immune support, organ support, and metal detoxification?
I am just afraid Dr J's approach is too heavy handed for the delicate systems of our kids with autism who usually have a whole lot of other issues going on, and too targeted and not comprehensive enough in supporting the child's entire system. Is this an unfair assessment?
What about approaches like Dr Cowden's protocol, or the Stephen Buhner protocol, or Amy Derkson's holistic appraoch or Dr Bergeron's approach? I am sure there are others I have not even heard of yet. I am just scratching the surface the last few days.
I have been on the autism lyme yahoo group, but truthfully have not seen many success stories - maybe just one. It seems that folks there are just still in the proces of trying to figure out the best way to approach lyme with our kids, and no one has it sorted out yet.
I wish I felt more confident about what I am doing, I feel so confused by the array of treatment options and opinions.
Thanks for any help.
Beth
[ 06. May 2007, 10:00 PM: Message edited by: starfish1995 ]
Posts: 15 | From PA | Registered: May 2007
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posted
Hi and Bless You for all you have gone through. I have an eight year old son too, and I worry about him having lyme every day, because I do. But we have not dealt with Autism.
My non-medical but Motherly opinion is to look first at the fact that he made gains on antibiotics, and then reverted when off them. That alone would make me want to try at least a six month regimen of antibiotics and just SEE if my son progressed. If there is no progression, maybe that is your answer.
I know that Igenex is controversial, I don't know why. My lab report was positive there and it was negative through my ID doc, although my ID doc actually said they didn't do an IgM western blot, only an IgG and different bands were positive than the Igenex result. But my IgM was positive through Igenex, so why didn't the ID doc order that test? To this day I think he was lying and hiding positive results to not treat me. I went through hell with doctors telling me this was "all in my head" until I found an LLMD to consult with by phone, and the antibiotic regimen he put me on saved my life. The bottom line is that if you pursue a lyme diagnosis, ONLY go to an LLMD. Save yourself a huge hassle and avoid the ID docs.
I agree with all the other ideas you have, immune support and herbal remedies, but if you first try antibiotics and your son improves, you can at least be sure it is an infection that is causing his problems in part.
I can tell you how I know I have lyme (or some unidentified infection that we all suffer with). Besides the horrible migrating progressive neurological, skin and joint symptoms over the past decade . . . they all go away when I take Biaxin (antibiotic). Now THAT is all the proof I need.
My heart goes out to you and all the parents dealing with autism. Best of luck on this journey. I think you'll find this place a great resource.
Posts: 69 | From Washington | Registered: Jan 2007
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi again starfish,
I had the same problems with my son, he could not tolerate high dosages of abx. Share your concerns with Dr. Jones, he will work with you, he did with me. He loves children and the only thing he cares about is healing them, he is the one of the most humble doctors you will ever meet. And he is so very brilliant!!
It will be okay. Keep us posted.
I wish I could comment on Dr Amy Yasko's protocol, but I don't know anything about it.
Posts: 6638 | From Michigan | Registered: Jun 2001
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posted
I did antibiotics for several years and now I'm on Cowden's as a maintainance program it even helps you with dotox and heavy metals.
years ago my two kids were succesfuly treated by Dr J. .
Anyway you need to keep educating yourself even if Dr J start treating your kid.
The more you read/research the more you would know how to "handle" this highly complex disease.
Do you know that many people with lyme test positive for heavy metals.....? specially mercury..like my self and many others on this board....
Is not only about antibiotics , is about detox, the right food, REST, and avoiding stress.
Posts: 983 | From The sky | Registered: Feb 2005
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Would you please elaborate on the proper diet for lyme? My son eats pretty healthfully, but maybe there is something diet wise about lyme I do not know.
Thanks,
Beth
Posts: 15 | From PA | Registered: May 2007
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I can appreciate your concerns with regards to your sons delicate system. I guess that is why I believe in low doses and in oxygen for myself.
As to treating lyme solely with a holistic approach, I would not choose that path for myself. Now that I believe BB is too aggtessive.
A holistic approach is best once you are stable or have reached a peak in wellness. However not in my opinion for an active infection.
Whether your child has lyme, autism or both does not mean that he will respond to the same treatment another autistic child would. Each child has a different set of symptoms.
You will have to cater his therapies to what works best for him in either case. In both cases you would have to treat for heavy metal, allergies, and toxins.
I would like to see more success stories as well. I know that they are out there and each is different. This is a newly seen phenomenom and there is poor if any communication between DAN and LLMD hopefully there will be and soon.
Blessings,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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quote:Originally posted by Searching4Answers: My lab report was positive there and it was negative through my ID doc, although my ID doc actually said they didn't do an IgM western blot, only an IgG and different bands were positive than the Igenex result. But my IgM was positive through Igenex, so why didn't the ID doc order that test? To this day I think he was lying and hiding positive results to not treat me.
I'm sure you are right!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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quote:Originally posted by starfish1995: Hi Lymeblue,
Would you please elaborate on the proper diet for lyme? My son eats pretty healthfully, but maybe there is something diet wise about lyme I do not know.
He needs to eat sugar-free, yeast free foods. Low carb, basically....but especially no processed sugar.
and go easy on fruit too.....and any high glycemic foods, such as white bread, pasta, white rice, etc.
You may want to look into high dosage niacin therapy. It has been used for autism and Lyme. It has to be the type that makes a person flush, not time releases or no flush, or niacinamide, or NADH. If you look around on the internet, you can find more info on it.
Farah
Posts: 208 | From New Mexico | Registered: Dec 2005
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posted
I have been on the autism lyme yahoo group, but truthfully have not seen many success stories - maybe just one. It seems that folks there are just still in the proces of trying to figure out the best way to approach lyme with our kids, and no one has it sorted out yet. ----------------------
This is exactly the truth. Sad, but true. I don't know anyone cured of lyme, and whenever someone says "there are people who have been cured" I really doubt it. If it is true, please tell us what they did to be cured, and we'll do it!
Don't give up hope, if your son can be made better, then it is worth the journey. You sound highly intelligent, and you are going to figure this out for your son!
Posts: 69 | From Washington | Registered: Jan 2007
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posted
I just found out that I have lyme and I have a 5 year old son who is autistic. You are about 3 weeks ahead of me in that we just got the Igenex kit in the mail and will have our son's blood drawn this week.
I'm still educating myself, but I *do* know that if your son is gluten/casein free like mine, the anti-candida diet is much easier because he won't miss many things other people might, like all that bread!
My son has only been on antibiotics once for an ear infection when he was just 15 months old, so I don't know how he reacts to them. (Just so you know, because you're probably wondering.) If he had responded as your son did, I'd be convinced of lyme without ever testing.
Do you believe your son got it from you, or were you aware of a tick bite?
Oh, and I've been told by three docs now (one new llmd and one who's been around for years) that antibiotics should be used first if possible (before Buhner's, especially) because the majority of people respond to antiobiotics. I definitely understand your concerns about gut issues, but llmds are VERY informed about and familiar with leaky gut, candida, etc. and will protect against those things.
I hope some of your concerns are alleviated when you see Dr. J. Until then, hang in there and focus on the fact that you've found a possible treatment avenue for your son.
Sarah L.
Posts: 10 | From Knoxville, TN | Registered: Apr 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
My daughter had Lyme & Babesiosis and an autistic presentation and she is 100% normal. We did Doc Jones protocol through our LLMD. She was on abx for 3 years with no ill side effects. She has been well for 5+ years now, in full remission. She is a happy, healthy, wholesome child- horseback rides, does voice, piano, Girl Scouts, has tons of friends- and is just great-
I would stick with Doc J!!!
Many people are blood negative because the tests suck-~~!!!!!!!!!! There are many kinds of Babs and different strains of Lyme and Anaplasmosis. My daughter was lucky enough to be positive- but MANY are negative and still have TBDs- Best wishes, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Thank you everyone for your feedback. What a wonderful supportive list! This is going to be one of my favorites, I can tell.
To answer some questions, regarding:
Diet:
My son is basically an (almost) gluten free, casein free diet, that is a very whole food based - low or no sugar, no artificial colors, low/no glutamate, etc. He was on the specific carbohydrate diet (no disaccharides) for 2.5 years in an attempt to heal his colitis (probably measles vaccine induced colitis) The diet helped him a great deal, but now he has graduated to more foods. He eats a lot of vegetables and high quality protein as well as fruit and nuts, and I do allow him a little bit of whole carbs like rice, potato, and gluten free oats, and occaisionaly sprouted grain tortilla (Ezekial). I try to avoid flours. He also tolerates butter and a little cheese. He seems to tolerate this diet well, and I do give him enzymes with every meal to help digestion.
Niacin:
I have not heard of this for lyme induced autism, but I will check into it. What is the mechanism of action, i.e. why does it work?
Re Antibiotics, then Naturals:
Is this the approach most people take? Maybe a combination of Dr J. and Dr. D. in WA?
How he got Lyme?
I have no idea. I do not remember a tick bite or bulls-eye rash.
Minocycline:
I have a final question, about Minocycline. Dr. Yasko recommended Minocycline in low doses for 6-9 month after hearing Samuel's response to Septra. She was not convinced at the time, that he had lyme, but thought it would be useful to address the body burden of pathogens.
I actually got my son's pediatrician to prescribe Minocycline 12.5 mg. twice a day. I am thinking of starting it. Will not see Dr J until later this month. Any thoughts on minocycline?
Thanks so much!
Beth
Posts: 15 | From PA | Registered: May 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Minocycline can have side effects but many peopple find it effective as well!!! I would give it a try- or ask for CEDAX!!! Cephalosporin comes in liquid form for kids- that is what brought my daughetr out of it within a couple weeks- and then she stayed on amoxi to maintain it-
diet- my daughter ate a high fat/frequent sugar diet and is doing great thanks to abx- never needed to go there- she responded so well-
I would just stick with Doc Js protocol- he is an angel- Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
I am not a dr but have read many of the autism posts out of curiosity. My oldest daughter is a learning resource teacher and we have had many discussions regarding lyme may be a big player in the recent higher numbers of autistic children.
She is a non believer. But has no great answers. However I keep sending her the info.
I have listened to one of Dr.K's cds and he mentions Mercury as a big player.(It is also very dangerous to remove and must be done with professional help)
I personally wonder if it could be any neuro toxin. They are all treated the same way by our immune system, wheter it be Mercury, Lyme, co-infections, or other infection, mold, other metals, pesticides, other environmental toxins, etc. Our immune system often goes haywire.
I would think you must temper your choices..Check the protocols out with Dr. J or a pediatrician that is somewhat lyme literate. Some choices may be too strong for a child. With our own lymie, she can not tolerate the stronger doses needed for the kill.
She did have IV meds for a few months and she is currently better but I am sure there are spirocetes remaining. I will celebrate the day we can just say remission.
Good luck..lymemomtooo
ps, our lymie has never been CDC positive. The tests are ridiculous. It is a clinical diagnosis!!
Posts: 2360 | From SE PA | Registered: Mar 2004
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Hope I can help with more info on the Ronald McDonald House or Miracle Flights.
Best wishes, lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
In lyme, Bb uses (our) sugar and leaves the cells "energy-less".
Soooo...the body says, "Hey, these cells have very little sugar and not a whole lotta oxygen either. Help!"
When oxygen and sugar intracellular levels are low....
Our body says, "Hey, send in some glucose will you please to keep this cell alive while I figure out the multiple paths to destroy this incredibly complex pathogen."
Bb breaks down sugars...many of them (but not all). It triggers the use of the short chain fatty acids...Omega 6s.
Glycolysis triggers our body to make glucose from a non carbon source.This is called gluconeogenesis.
(Our cells NEED GLUCOSE!!!)
Upregulating *gluconeogenesis*.
In the case of lyme, glycolysis(breakdown of sugar)triggers gluconeogenesis (glucose from non carbon sources).
I'm repeating this to be sure you see what's happening.
Glucagon is being upregulated along with insulin too! Insulin is one thing that carries glucose INTO the cells. There are FOUR Glut receptors.
This seems contrary until you realize glucagon has another function...
it INhibits HMG CoA reductase and halts VLDL release from the liver! Mg can do this, if enough is available...it's not.
VLDL is rich in choline...which is one thing Bb needs. This is the cholesterol pathway. We can MAKE cholesterol from nutrients stored or from foods that we eat.
All of our cell walls as well as the myelin sheath that surrounds our nerves need cholesterol.
Bb's outer cell wall proteins are "cholesterol-like".
The first step to get rid of any pathogen is to destroy the cell wall or prevent its formation in the first place.
We respond to Bb as if it was an "allergen".
Bb has, like HIV, "zinc fingers". Cysteine and histidine bound to zinc.
Our neutrophils, most abundant WBCs bind that zinc via calprotectin.
The destruction isn't complete.
Yes,(1) mercury can play a part in autism (bile acids NORMALLY chelate if one has the nutrients to MAKE the bile salts), but so can (2)pathogens crossing the placental barrier (bacterial OR viral) as well as (3)genetic malformations (extremely small vertebral arteries...making it hard for nutrients to reach the frontal lobe).
My son has the latter form. Can't be fixed.Will never correct. Always a struggle. Learning helps a LITTLE. We actually make more neuroreceptors when we learn. Hence the need to keep exercising our minds!
This all has to do with which receptors are being impacted. There is more than one!
Glutamate is up...rapid firing. Really rapid firing. Brakes don't work. Acetylcholine down. Epinephrine up (cortisol). HPA axis is off. Rebalance these.
Bb has a PKC inhibitor. It looks to be PKC DELTA.
Now...figure out which sugar will help.
As a kid, he's at an advantage. Children have far greater stores of minerals to utilize in order to fight.
Your little man may have a problem with levels of secretin (low).
To get lyme on top of this...my heart goes out to you and him!
Really adds to the complexity!
Not impossible, but very very complex.
Here is a tiny amt. of information:
"Diseases associated with excessive or deficient secretion of secretin are not recognized.
The sequence of the mature peptide is related to that of glucagon, vasoactive intestinal peptide and gastric inhibitory peptide.
Hormone of the duodenal mucosa that activates pancreatic secretion and lowers the blood sugar level.
Secretin is a gastrointestinal hormone that stimulates insulin secretion and enhances the insulin response to glucose.
The mechanism by which secretin acts on the beta-cell has not been extensively studied.
Knowing that glucagon's major effect is to increase blood glucose levels, it makes sense that glucagon is secreted in response to hypoglycemia or low blood concentrations of glucose.
Two other conditions are known to trigger glucagon secretion:
� Elevated blood levels of amino acids, as would be seen after consumption of a protein-rich meal: In this situation, glucagon would foster conversion of excess amino acids to glucose by enhancing gluconeogenesis.
Since high blood levels of amino acids also stimulate insulin release, this would be a situation in which both insulin and glucagon are active.
� Exercise: In this case, it is not clear whether the actual stimulus is exercise per se, or the accompanying exercise-induced depletion of glucose.
In terms of negative control, glucagon secretion is inhibited by high levels of blood glucose. It is not clear whether this reflects a direct effect of glucose on the alpha cell, or perhaps an effect of insulin, which is known to dampen glucagon release
Many diabetic patients with hyperglycemia also have elevated blood concentrations of glucagon, but glucagon secretion is normally suppressed by elevated levels of blood glucose."
Mg (works with B6)is needed to make all enzymes, all proteins and it controls a number of them too!
Mg is attached to ATP...our energy transporter.
It can be displaced by Al (malic acid will chelate).
In a pinch, the body will use Mn to substitute for Mg. Bb uses Mn....and many, many other nutrients.
It is truly a "parasite".
In lyme..."alpha" is upregulated significantly.
There are many, many imbalances that happen as a result.
Do you have access to a very, very, very good up-to-date neurologist and a very, very, very good endocrinologist who would be willing to work TOGETHER?
HBOT reduces nitrogen. A "catch 22".
We need the arteries to be flexible...dilate...and we need to keep the blood "thin-ish".
He likes cereal...lots...doesn't he? Potato chips for the Na+Vitamin C too?
Instinctive.
Good luck. God Bless.
P.S. Niacin can come from Tryptophan. Tryptophan plummets....I should say serotonin...in time.
Hello depression.
He needs a really, really good balanced diet. NO JUNK FOODS OR JUNK BEVERAGES.
Complex carbs, some protein, some fats.
BALANCED nutrition.
Probiotics to keep yeast at bay...or use coconut oil.
Our brain cells, our WBCs, all of our cells MUST HAVE GLUCOSE. Glucose triggers serotonin release.
You think you are keeping glucose away from Bb...
He's getting it from several things...including the amino acids. Not good.
How to build a cell wall.
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