posted
i wanted to know if any of get this, getting startled and body tense so so easily even if someone talks suddenly and not loudly, or if a sudden noise that isnt that loud either, i hate this, i always feel like i am about to jump out of my skin, and i cant even have a normal conservation with anyone for fear that they will just talk suddenly and i will get startled, since i am so so nervous all the time, could this be a part of the lyme or babesia? thanks for any input radha
Posts: 392 | From New York | Registered: Dec 2005
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Yes, this has been one of my symptoms. It gets worse when I'm having a flare up or a herx, too.
I agree, it's annoying.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Dysautonomia.....a common happening in dysautonimia is is startling easy. Comes with numerous symptoms and it explains a ton of stuff. Startling easy is a symptom that I hae always found rather annoying. I was constantly pulling my head out of the cealing (sp?).
I read this really interesting book about dysautonmia and I posted about my findings awhile back. Here it is:
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Actually this is a common issue. I had an appointment with LLMD yesterday and he had run some hormonal type tests and he says I didn't even register in one of the top on the chart.
Without getting technical, lyme tends to mess with our hormones and part of that is going to be the anxiety, the jumpiness, being startled, all sorts of things in that category. He tells me that lyme treatment will settle it down, but it obviously won't happen over night.
Sometimes you may need to take some meds to help you through this, just as some of us are also doing the thyroid meds until things settle down. I'm doing a saliva test next to find out which path they are going to work on.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Once I started treatment for babesia, this symptom re-emerged. I had it quite badly when I first started to get really sick. It hasn't bothered me for years until recently.
I feel like I get a big adrenaline release when I get startled. I really dislike it. I feel like I don't have the extra adrenaline to spare.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
In Dysautonomia, adrenaline is one of the key players.There is a whole chain reaction that occurs.
Posts: 1251 | From california | Registered: Apr 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I too am startled so easily. It can be a noise in the house or a person. I get a really angry feeling when it happens. Just another CNS sx.
My massage lady always tells me my body is always in the defense mode. My body doesn't relax like normal people she says. I can't believe she thinks I'm not normal. I used to be??? lol
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I have neuro lyme & I get startled very easily. Really worry the most when I am driving.
Am thinking this is a side effect of having neuro-lyme. So far treatment hasn't made it go completely away.
I find when I take ultram for pain my startle responce is much greater. The ultram tends to make me more jittery. I still have hope over time with more treatment this may go away completely.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
It is amazing that we share so many symptoms. The brilliant quacking ducks would probably explain it as mass hysteria.
I've had to leave my wife in restaurants because the sound of dishes being picked up was unbearable.
Posts: 175 | From Colorado | Registered: Feb 2007
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posted
Noise sensitivity and an exagerated startle response can be caused by magnesium defiicency. You may be taking supplements and think that you do not have a magnesium problem. However, the tests aren't that accurate.
Hubby has been in the ER two days in a row this week. The 2nd time the ER Doc told me he had tetany. Tetany can be caused by low calcium or by low magnesium.
Of course all the doc did was give 2 liters of normal saline to try to correct low sodium and then keep giving IV Ativan to try to control tremors/seizure-like episodes and what I used to call temporary paralysis episodes which I think have been tetany in the past at least part of the time.
Got hubby home and in the last 24 hours I have given him 12 grams of IV magnesium sulfate -- he has still not gotten flushed from the IV's, but his tremors are virtually gone and I put him back on his 3 mg dose of IV Ativan (ER docs had him taking 5 or more mg daily and it wasn't helping).
Epsom salts are magnesium sulfate. Try soaking your feet or taking a bath. If you are extremely low in magnesium I would start with just 1/2 cup and work up to 3 or 4 cups of epsom salts. Generally 20 -30 minutes in very warm water is sufficient. Stop and get out if you feel faint or start to throw up or have other detox symptoms.
The sulfate can cause a detox reaction and magnesium is required for something like 200 different enzyme reactions in the body.
I had been giving hubby 3 or 4 grams of IV magnesium once a week, but he recently had some mild diarrhea and drenching sweats multiple times daily from babesia treatment. This snuck up on him even though he uses an electrolyte solution in his drinking water.
The IV magnesium also greatly improved G.I. symptoms -- less nausea, feels hungry now and stopped dry heaves/G.I. muscle cramps.
Bea Seibert
Note: Vitamin B6 is required to utilize magnesium. The best form of supplement is P-5-P (pridoxyl 5 phosphate) -- this is the active form of Vitamin B6. Also need to take a regular multi-B vitamin with any specific B vitamin supplements.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
wow! i cant thank all of you enough for your replies and even though living with this symptom makes life in general so so hard, it is reassuring to know i am not the only one! i have POTS and lyme and babesia and pretty much tell my mom who is my primary caregiver not to talk to me at all, or to give me a huge warning like put her finger up before she has to say anything, but to talk very little in general and i have my hand on the remote all the time since commercials are so loud! thank God my mom is so underanding, if i get startled even few times i get very upset, emotional and even cry. and i dont want to drug my self up with xanax or valium, but i have to say this problem is a big big worry for me, the constant anxiety. i just cannot handle the stimulation of a even a normal conversation. if someone talks too loud or even too much i sometimes even sweat and get shaky! sorry to go on and on, thanks again for all your input radha
Posts: 392 | From New York | Registered: Dec 2005
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caat
Frequent Contributor (1K+ posts)
Member # 2321
posted
yes, lyme and babesia can do that.
Also, sometimes perfumes or cleaning stuff can make it worse if you're at all sensitive to any of them.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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posted
This symptom has improved for me with ongoing abx treatment.
However, I still have some sound sensitivity.
Posts: 925 | From California | Registered: Sep 2004
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bettyg
Unregistered
posted
i've suffered for 30-37 years with this problem, and never knew why until now!
jelly, your dystonia, sp, info and MVP syndrome info was really interestng. i'll add it to my newbie links/advise as soon as i can get my address line back that disappeared!
thanks for the good education and wealth of info here!
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posted
I, too have this startle syndrome. I had it so profound in the beginning when I first got so sick. My whole body would jerk and respond to the stimuli that caused me to be startled.
Very interesting that so many people suffer from this. It should be added as a sympton of lyme disease or as a coinfection perhaps babesia. I will ask my llmd next visit what causes this startle syndrome lyme or coinfection.
I still have it today, although not as bad as in the beginning and it is at its worst when driving or riding in the car.
Yes, I also feel that adrenaline is involved and the vegas nerve. I also have dysautonomia.
Posts: 188 | From ID | Registered: Jan 2007
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