mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Just wondering if anyone has had results or knows of any results from this company. It's supposed to be a great test and the company opened on March 1.
The only feedback I've heard so far is one individual who got a negative result but is pretty sure he has Lyme. His Western Blot had significant results but technically not "positive" He is continuing treatment.
Posts: 1761 | From USA | Registered: May 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I have Lyme and have been treating for two years almost and also got a negative recently. It may be a good sign though I worry that it shows blood infection not tissue, brain, etc. So it may just be that the antibiotics and other therapies clean out the blood enough that the test results look better than they actually are...
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
That's what I'm thinking/ wondering too, Scott.
I don't even know if CFR can test 'tissue samples' or synovial fluid - stuff like that, do you?
I think the flow cytometry test would be great for people who have never had any kind of treatment for Lyme, but not sure what to expect from the test for those who have been busy trying to eliminate the bugs....
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
hmm.... very interesting. Not quite the test we were hoping for it seems.
It would be interesting to see some statisitics on how this test is doing. So far the only results I know are two false negatives.
Bummer.
Posts: 1761 | From USA | Registered: May 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Mojo, I'm not sure how much more we can EVER expect from blood tests for Lyme though, do you?
Remember, with the flow cytometry test, ``The results are expressed as ≤0.02% negative, 0.03% borderline positive , ≥0.04 positive.''
So, a negative result doesn't mean that they didn't find anything; it simply means that they didn't find enough to consider it as an 'active infection'. That was also true of the Q-RIBb test although interpretation of the test wasn't really publicized.
Since Scott feels that he is 80% well (or more), then I think that sort of fits. I don't know who the other person was with the negative test.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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