posted
I'm due to get a PICC and receive IV Rocephin. Any special things I should know about the PICC? Or Rocephin? I'm supposed to get abx 4x a week, in the doctor's office. It seems like a lot - is that normal? Also, I notice that some of you talk about getting the abx at home. Is that pretty typical?
I noticed through posts here that after months of IV abx, you go on oral abx. When does it all end? How do you know when it's time to stop?
Okay, so you've been treated for Lyme and coinfections and you're done...for how long? There is no cure, so do you wait until you start to have symptoms again - and you do it all over again?
I guess what I wondering is...what is "normal?" How does all of this work? There are so many stories and so many different treatments and things to watch out for, but I would just like a basic idea, a map of how, in general, this is supposed to go for the rest of my life.
Thanks for your help.
Lori
Posts: 18 | From MI | Registered: Mar 2007
| IP: Logged |
bettyg
Unregistered
posted
hi lori,
i just sent you my 56 pages of newbie links, advise, symptoms, igenex tests, ssdi disability, etc.
rocephin ... read top feature about that; lots of advise in there for all patients.
there are no easy guidelines; each one of us is unique and have NO IDEA how long this lyme journey will take.
i've been in lyme treatment 3 years; misdiagnosed for 34 years; so it will take a long time for progress and hopefully REMISSION.
skim thru what i have sent you; different options of treatments i believe are shown there ...
1 treatment doesn't fit all; can be combinations of many things; it's trial and error.
knowledge is power, so read, read, and read.
IP: Logged |
Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi Lori,
It will be okay, just take one step at a time. And as Betty said...read read read.
I have been sick my whole life and in treatment for the last 6 years, but I have a life now. I feel better today than I ever have.
Hang in there... Posts: 6638 | From Michigan | Registered: Jun 2001
| IP: Logged |
posted
Thank you both. I have been reading, like crazy. There's so much information that I have to know. Thanks again for the help.
Posts: 18 | From MI | Registered: Mar 2007
| IP: Logged |
bettyg
Unregistered
posted
it's not easy; conflicts on so many things!!
posted
***I noticed through posts here that after months of IV abx, you go on oral abx. When does it all end? How do you know when it's time to stop? ***
When your symptoms are completely gone for at least 2 months, then it's safe to stop the meds. If you do not follow up the IV with orals you will relapse.
My LLMD follows up at the end with several rounds of heavy dose flagyl to make sure it's OK to go off abx.
That's another thing...While on Rocephin or immediately afterward, you need to be on flagyl or tindimax....something to kill the cysts.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic