posted
My mold problem was diagnosed by Dr. C. I have had a black tongue that did not respond to yeast treatment. He looked at it and immediately said, "Oh, you have mold."
Dr. C then gave me a prescription for Sporinex, which are antifungal pills, and told me to move my bedroom from the basement to upstairs. I did both.
It all worked for the week I was on Sporinex. My black tongue went away and I felt much better. The problem is that as soon as I went off the pills (which is manditory because it is hard on the liver) my black tongue and fatigue returned. I have to go off the antifungal for three weeks before I do another week of it.
The issue is this: I have mold growing inside of me and I don't know how to get rid of it. Are there any other ways besides Sporinex to fight this mold infestation? Why did it come back?
I have been eating carefully, avoiding sugar and following the yeast diet. I eat lots of homemade yogurt. It is ultra-plain, and we cook it for 24 hours to get the lactose out.
What do I do? Is it the result of a moldy house? Are there things to take, suppliments to try, or protocols to follow?
Any advice about this would be greatly appreciated!
Posts: 204 | From Wyoming | Registered: Feb 2003
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Get an Organic Acids Test from Metametrix or Great Plains Lab. the cost is about $200. It will tell you a lot about what is going on in your body.
If you do a search using the lab names, you will find a lot of info.
Also, you can get a CDSAX3 (comprehensive, diagnostic stool analysis X3--3 different parts) which will tell you which drug the mold/yeast you have is most susceptible. Usually it works out, but sometimes the lab can't get it to culture. Try Doctor's Data in IL for this lab.
HTH, Kayda
Posts: 582 | From midwest | Registered: Nov 2006
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posted
I don't know anything about it, but I'm wondering if some sunshine would help. Vitamin D is being discovered to be more valuable to the immune system than they thought, and mold doesn't like sunshine. I can just see you laying out with your tongue facing the sun, LOL.
What about drinking lemon water?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I have already tried Diflucan, and it didn't work. I am not eating any sugarfree stuff. I already take vitamin D and drink lots of lemon juice.
Anything else I should try? What's the cause of this fungus?
Posts: 204 | From Wyoming | Registered: Feb 2003
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Foggy
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Miss, did dr. C culture your nasal cavity and do Rast IgE tests for specific molds? Did you hae the basement air tested to compare? dehumidifier in the basement?
Mold can colonize in the sinuses & be very resilient & hard to treat. I had Sporonix nasal rinse but had to go oral as it had invaded my head.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Just my 2 cents worth here, but if you have mold issues, besides taking medication to kill it, clearing out the whole GI track with binding agents is a must. Clearing mold toxins is very much like clearing metals toxins, it works through osmosis draining from the GI track. Clear the GI track and the rest that is in the body will drain to the GI waste removal process.
Cholestyramine can work very well but many can't stand the side effects it has on the gall bladder. Less reactive agents like candeda purges (benonite clay, psyllium powder, caprlyic acid) chorella and activated charcoal colon clenses are very effective.
Posts: 582 | From milwaukee wi | Registered: May 2005
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posted
I did not have a culture or a test done by Dr. C to determine my mold problem. He just looked at my jet-black, nasty looking tongue and told me what my problem was. Should I get a mold test done? What kind of test? I have already done a stool panel by Genova Diagnostics, which turned out normal.
We have a dehumidifier in our basement. Most people in our area have basements and basement bedrooms. However, it would probably be good to get it tested. How in the world do you go about testing for molds in the house?
No one else in my family seems to have mold issues at all. We do have some mold growing under our tiling and in our basement bathroom.
I am currently taking Questran to get rid of toxins, following the sauna protocol, taking Psyllium, and also activated charcoal. Should I be doing something else, as well?
What should I do?
Posts: 204 | From Wyoming | Registered: Feb 2003
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Foggy
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I had blood IgE tests & a nasal culture
Home depot sells cheap mold tests that can be sent to a lab if molds are cultured.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Are the Home Depot tests reliable? Is it better to hire experts to test a home when buying a new house?
Posts: 204 | From Wyoming | Registered: Feb 2003
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riversinger
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Mold testing is extremely controversial. Do some research, and get recommendations before spending money.
I also had mold colonization (what it is called when it grows inside you.) Mine was in my lungs and sinuses. I had to take Sporanox for eight months in order to get rid of it. Molds are very hard to eradicate, as they are so slow growing, and the antifungals only work when the spore opens to grow.
The good news is, I only had to take Sporanox at higher doses the first month. After that, I only took a half capsule daily to keep any new growth under control. I never had any trouble with my liver, even though I was taking antibiotics at the same time. You just need to keep checking to see your liver can tolerate it. Many can.
Not everyone is sensitive to mold. People with damaged immune systems will be the most likely to be colonized, which is why so many Lyme patients have trouble with it, one way or another. About 1/4-1/3 of the population also has sensitivity to mold toxins, and once triggered, may react to extremely low levels of molds that other people will never notice. It is good you are taking CSM and other things to keep toxins moving out.
However, if you have mold growing in or on you, you need to get it out of your house. If it is in the bathroom, clean it up!!! If it is under the tile, then you need to clean under the tile. If you can see the mold, you don't need to test. You need to get rid of it!!!
Only if you continue to have trouble once the visible mold is gone, would I bother to do some testing.
lymeHerx001
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Whats the difference between mold and candida then.
I respond to EXTREEMELLY small amount of mold with fatigue, post nasal drip, vertigo ...etc
Posts: 2905 | From New England | Registered: Sep 2004
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riversinger
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Candida is a type of fungal growth. So is mold. People react to different ones. Personally, my body doesn't have trouble with candida colonization, nor do I seem to have allergic reactions to it. I have been tested many times, many ways. Not everyone has trouble with candida, even when taking antibiotics.
lymeHerx001
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Interesting, I had a test and my levels were elevated. LLMD said "yea you have a little candida here" Give my diflucan, made me sick becuase it interfered with BIAXIN.
Just took Caprylic acid and I have had a big herx. Then I felt better. Take some more and herx again. Over and Over. Been loading on Psyllium to maybee take up some mercury too
Im trying to find out why my sinuses are so bad and I cant eat fermented foods, yeasts, wheat, bread, sugar, cakes, fruit and fruit juices...
I get very tired and then stabbing burning pains in my feet. My skin begins to feel painfull all over like sunburn and I start to slur my speech and my vision gets burry and narrow. I have to lay down for a couple hours each time. Cant stand, Ill fall over.
ALL OF THIS!!!! I must be nuts.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
To everyone reading this thread: mold issues are a huge problem. I thought my issues were Lyme, but it turns out that they are probably largely related to molds. I felt like a new person when my mold was beginning to be taken care of, so I think there are a lot of people who are running around with hidden mold in their bodies. Get it checked out if you are still sick. :-)
We are living in South Dakota right now, which happens to be rather humid. However, we will soon be moving to Wyoming, which is much drier climate. That should help with the mold issues in the house, am I correct?
Now about testing, which you say is conterversial. I would agree. Is it important to test your body for mold, or your house? Since we will be moving, should we test our potential housing for mold? Is it important to get yourself or your body tested if you are having no longer having symptoms? Where do I find reliable testing for our new house? Home Depot? Or professionally done?
I felt so much better when I went on Sporinox, whereas Diflucan did not help me at all. Dr. C. is giving me a prescription for a different kind of Sporinox that is not quite so hard on my liver. If you say you were on Sporinox for eight months, did you take the oral or systematic kind? Why did it take you so long to get rid of?
About CSM: how much and for how long did you take it? Did you stay on an anti-sugar diet? What else did you do for detox?
How many of you out there have had experience with mold and mold toxins?
Posts: 204 | From Wyoming | Registered: Feb 2003
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clairenotes
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We live in Colorado, which has a similar climate to Wyoming, though not quite as dry. I have never seen any mold anywhere in or around our home. The weather patterns have been changing and we are seeing more rain and snow. So perhaps this will change at some point. But for now, I think this could be a good change for you.
I have had to address fungal issues and lately have been feeling tired, moody, and slightly dizzy with the treatment. I hope it gets better as I think I will treat for several months.
Are there other toxins that go hand in hand with fungal issues, besides metals, that need to be addressed? I take chlorella, but I am wondering about other detox methods too.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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posted
i use colloidol silver,kills yeast and mold fast.I also use oil of oregano,sometime.Then i take tablets to put the good bacteria back in myself.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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posted
According to Dr. Cr, mold toxins create havoc in the body. He uses the Actos and Questran protocol in his patients. He prescribed Questran for me.
I have already taken Colloital Silver, but it didn't do much of anything for me. The Sporinex and Questran are what really help me feel better.
Sauna use has helped me so much for detoxing. I use it a lot for long periods of time, but I feel like a different person when I come out. It causes detox reactions, but it helps me feel better too. I love my sauna.
Posts: 204 | From Wyoming | Registered: Feb 2003
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Foggy
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Has anyone had a surgical debridement to remove mold effected tissue & augment the healing process?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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------------------------------------------------------------------------ Caution: Some soft drinks may seriously harm your health Expert links additive to cell damage By Martin Hickman, Consumer Affairs Correspondent Published: 27 May 2007
A new health scare erupted over soft drinks last night amid evidence they may cause serious cell damage. Research from a British university suggests a common preservative found in drinks such as Fanta and Pepsi Max has the ability to switch off vital parts of DNA.
The problem - more usually associated with ageing and alcohol abuse - can eventually lead to cirrhosis of the liver and degenerative diseases such as Parkinson's.
The findings could have serious consequences for the hundreds of millions of people worldwide who consume fizzy drinks. They will also intensify the controversy about food additives, which have been linked to hyperactivity in children.
Concerns centre on the safety of E211, known as sodium benzoate, a preservative used for decades by the �74bn global carbonated drinks industry. Sodium benzoate derives from benzoic acid. It occurs naturally in berries, but is used in large quantities to prevent mould in soft drinks such as Sprite, Oasis and Dr Pepper. It is also added to pickles and sauces.
Sodium benzoate has already been the subject of concern about cancer because when mixed with the additive vitamin C in soft drinks, it causes benzene, a carcinogenic substance. A Food Standards Agency survey of benzene in drinks last year found high levels in four brands which were removed from sale.
Now, an expert in ageing at Sheffield University, who has been working on sodium benzoate since publishing a research paper in 1999, has decided to speak out about another danger. Professor Peter Piper, a professor of molecular biology and biotechnology, tested the impact of sodium benzoate on living yeast cells in his laboratory. What he found alarmed him: the benzoate was damaging an important area of DNA in the "power station" of cells known as the mitochondria.
He told The Independent on Sunday: "These chemicals have the ability to cause severe damage to DNA in the mitochondria to the point that they totally inactivate it: they knock it out altogether.
"The mitochondria consumes the oxygen to give you energy and if you damage it - as happens in a number if diseased states - then the cell starts to malfunction very seriously. And there is a whole array of diseases that are now being tied to damage to this DNA - Parkinson's and quite a lot of neuro-degenerative diseases, but above all the whole process of ageing."
The Food Standards Agency (FSA) backs the use of sodium benzoate in the UK and it has been approved by the European Union but last night, MPs called for it to investigate urgently.
Norman Baker, the Liberal Democrat chair of Parliament's all-party environment group said: "Many additives are relatively new and their long-term impact cannot be certain. This preservative clearly needs to be investigated further by the FSA."
A review of sodium benzoate by the World Health Organisation in 2000 concluded that it was safe, but it noted that the available science supporting its safety was "limited".
Professor Piper, whose work has been funded by a government research council, said tests conducted by the US Food and Drug Administration were out of date.
"The food industry will say these compounds have been tested and they are complete safe," he said. "By the criteria of modern safety testing, the safety tests were inadequate. Like all things, safety testing moves forward and you can conduct a much more rigorous safety test than you could 50 years ago."
He advised parents to think carefully about buying drinks with preservatives until the quantities in products were proved safe by new tests. "My concern is for children who are drinking large amounts," he said.
Coca-Cola and Britvic's Pepsi Max and Diet Pepsi all contain sodium benzoate. Their makers and the British Soft Drinks Association said they entrusted the safety of additives to the Government.
Posts: 636 | From Wroclaw, Poland | Registered: Mar 2004
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caat
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If the sporinox works and the diflucan doesn't I think you're much better off spending the money on a good dehumidifier than home mold tests.
A 30 to 40 pint dehumidifier is about $120 to $150 including shipping if you bid around. I got one 2 years ago and it's the best money I ever spent! You'd have to move it around the house a bit, and they're heavy, but it is SO worth it!
Nobody beleives this until they get one and then they wouldn't part with it. Much more effective than an air purifier I think!!
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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posted
We do have a good humidifier in our basement. It goes and goes all day long.
But what do you do when the climate is humid? How do you keep mold from growing when it's a constant battle against the environment I'm in?
Posts: 204 | From Wyoming | Registered: Feb 2003
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Foggy
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The benefit of the mold blood & air tests is to give an MD an idea of what molds you were or are exposed. They may use targeted immunotherapy or antifungals for specific regional molds.
Duflucan didn't help me either.
I have 2 60 pint dehumids in my basement chuging away. They cost $ to run, but it's worth it.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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lymemomtooo
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My daughter was a patient of the dr that wrote the book called Mold Warriers. He says that many have a genetic susceptibility(is that a word?) to Mold. I think, but can't remember the exact number it may be as high as 25% of the population.
So for many it is hard to escape. Also Mold is one of many neurotoxins and they are all treated somewhat the same by our bodies and do similiar damage. The symptoms list is almost identical. So you may only have mold or you may have it and Lyme or some other such toxin problems.
I am not a DR but I personally think it is almost impossible to escape mold if you are genetically vulnerable. But it can be controlled.
My daughter took CSM without a lot of instructions on Actos, etc and her herx was a suicide attempt so be careful. I think you need to be careful and under the help of a knowledgeable physician.
You must attempt to find and remove all things in areas in the house of mold infestation. We found a leak in the bathroom that we had not known about. But a few cheap test kits from Home Depot for various rooms, showed us hot areas. Well, not completely cheap if you have to do many rooms.
It showed us a problem in the bathroom and in our daughters bedroom. There was no water source in her room so were perplexed but were ready to gut the room once when she was hospitalized. We suspected old wallpaper, so while stripping it, we discovered a hole in the wall behind her dresser. We had not moved it in years..But she had.
Never underestimate the strength and determination of a child. She had discovered years ago that there was a small tear in the wallpaper. She busted it thru to use as a secret place to stash her favorite things.
Later we discovered that the original builder of the house had built in air ducts from the basement to take advantage of the heat from the boiler. She was getting great convection air from the basement. WE did not even know the ducts were there. They had been plastered over years before we bought the house. So you never know everything about your home unless you built it..
I agree that the dehumidifier is the way to go..I can smell mold from a good distance and it is gone with the dehumidifier.
Also chlorella and lemon in water seem to help.
Get rid of all old bedding the has been contaminated.
Gigi's Dr.K cautions when removing mold to be careful of mercury. He feels that candida encapsulates mercury to protect us. If this is happening and you remove the candida, you may release the mercury and it may move to the brain or other areas..Be careful with the detox strategy.lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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caat
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>>We do have a good humidifier in our basement. It goes and goes all day long.
>>But what do you do when the climate is humid? How do you keep mold from growing when it's a constant battle against the environment I'm in?
Sounds like you have a leaking roof, or standing water in your basement, or the house is built on top of a spring. Or the dehumidifier isn't very good. ??
I live in a rain forest- rains all winter long here. Granted, my place is small, but it's a trailer and the condensation is very bad. I have a 30 pint for about 250 square feet. It's probley triple the power dehumidifier I need. Fans in poorly circulating areas to direct the air to the dehimidifier help too.
Good luck!
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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clairenotes
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quote:Gigi's Dr.K cautions when removing mold to be careful of mercury. He feels that candida encapsulates mercury to protect us. If this is happening and you remove the candida, you may release the mercury and it may move to the brain or other areas..Be careful with the detox strategy.lymemomtooo
Thanks for this information. I have been trying to understand the mechanism or phenomenon that makes fungal issues and metals go together and there it is. I was thinking that perhaps the molds or fungus were attracted to the tissues where the metals are lodged. But then why would it be released after the fungal stuff dies? Dr. K's encapsulation theory makes sense.
I am feeling a very different die-off reaction with my own anti-fungal treatment (shaky and frail feeling). I think it may be due to metals.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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posted
So if I am understanding you all correctly, I need to:
a. remove all visible mold from my house and basement
b. get a better dehumidifier (or more than one)
c. make sure I am not heavy metal toxic
d. detox for molds - How do I properly detox for molds? Is the Questran I am currently doing enough?
e. Do I need to eat differently?
As far as heavy metals go, I am pretty sure I am done with chelating. I did a round of Detox Max and all my blood work changed from elevated levels of mercury to no mercury.
Posts: 204 | From Wyoming | Registered: Feb 2003
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lymemomtooo
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Claire, I am no Dr. Just have come to believe in the neuro toxin issue. I have read a lot of Gigi's postings and have listened to Dr. K talking about the mercury and candida issue.
I know that both of my daughters have played with liquid Mercury..The chemistry teacher at high school would look the other way and let the students play and chase the little balls around. I also found my lymie playing with some once from an old Drs medical bag.
I think someone, maybe Gigi or Scott, recently(in the last couple of weeks)posted about how to download this talk or cd.
Good luck..I think it is very hard to get rid of all mold.
Posts: 2360 | From SE PA | Registered: Mar 2004
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Foggy
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As Gigi often says, I wouldn't go molds or metals detox alone. I'd find a specialist(s) or stick with the one you have to help you address this carefully.
My MD said mold can be very tough to treat & resilient & may take time. I was on some of the things you mentioned for months.
[ 30. May 2007, 10:08 AM: Message edited by: Foggy ]
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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I agree that supervision with detoxing mold/fungus/metals is important. There is a danger of redistribution of the metals per the research I have read from Gigi, too. We are seeing an LLND in two weeks that will be able to help with this particular aspect of treatment.
We played with liquid mercury also, once or twice .
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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Foggy
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posted
quote:Originally posted by missextreme: Froggy,
How did you eventually get rid of your mold problems in your body? What did you to your house?
How did you do mold detox?
Still fighting it with Sporonox, Questran, allergy shots targeted towards the molds I tested IgE + for and 3 dehumidifiers.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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Truthfinder
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posted
What was that stuff that Symie Lymie took and said it put him into remission.... I think it was an anti-fungal med..... does V-fend sound right?
Might be worth a search here of the forum to find out about it - I'd never even heard of it.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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