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Author
Topic: How should Western Blot results change with treatment?
starfish1995
Member
Member # 11809
posted 06-05-2007 01:13 PM
Dear Listmates, I posted a month or so ago about my 8 year old with autism who tested positive for lyme. I received some wonderful replies - thank you once again for all the support and information. As a background, the only reason I even tested him for lyme was that a recnet course of Septra for a tooth infection led to fairly dramatic improvements in his autistic symptoms. So, I began to suspect a bacterial infection as part of his autistic etiology, and possibly lyme. For a number of reasons, I have decided to not do antibiotics, but instead do the Stephen Buhner herbal protocol with him. Over the course of the last month I have been ramping up the suggested herbs very slowly; so far so good. My son has somewhat limited verbal abilities so I cannot rely on him to tell me his symptoms or improvements. I just have to carefully observe him. I am hoping that the lyme treatment will help with his autism symptoms; i.e. improved language, cognition, eye contact, connectedness, etc. He *may* have some neck stiffness as he frequently pops his neck (like a chiropractor would), but he denies that it hurts or is stiff. Certainly one could argue that many autism symptoms could be neurolyme. I don't know. All I know is that his autistic symptoms dramatically decreased in response to antibiotics, and he subsequently tested positive for lyme, and we are going to take a stab at this with the Buhner protocol. He does not seem to be fatigued or in pain at all, no rages or headaches like some of the severe lyme children with autsim. So no severe physical symptoms of lyme, but arguably a neurolyme presentation based on the autism symptoms (delayed language, verbal and eye stims, poor eye contact, poor social skills/connectedness). My question is that at some point (when?) I will probably want to re-run the Western Blot to see if it has changed, or if the lyme has cleared. How can you tell in a Western Blot if the lyme has cleared? What kind of changes would I expect to see in his test results? I will post his pretreatment test results below. All coinfections were negative so I did not post those. Thank you to you all for any help! Beth Here are his pretreatment results: IGenex Labs: Lyme Igg Western Blot Igenex IGG Result - Negative CDC/NYS Result - Negative (The only band that was positive was a ++ in band 41) Lyme IgM Western Blot Igenex IGM result: Positive CDC/NYS result: Negative 18 kDa + 22 kDa - **23-25kda IND 28 kDa - 30 kDa ++ **31 kDa ++++ ** 34 kDa IND **39 kDa IND **41 kDa IND 45 kDa - 58 kDa - 66 kDa + 73 kDa - **83-93 KDa +
Posts: 15 | From PA | Registered: May 2007
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted 06-05-2007 01:44 PM
I noticed you are in PA. Are you anywhere close to MD? I have a doctor in MD who treats autistic children and Lyme. He uses herbs and other supplements. -------------------- "When there is pain, there are no words." - Toni Morrison
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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starfish1995
Member
Member # 11809
posted 06-05-2007 01:53 PM
Well, I am within a 2-4 hour drive of MD depending on where. We are in the Pittsburgh, PA area. Any thoughts on my question though about how the Igenex Western Blot test should change with successful treatment? Thanks, Beth
Posts: 15 | From PA | Registered: May 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted 06-06-2007 08:02 AM
Dear Starfish, It may be more reliable to monitor infection via CD57 than a Western Blot. Less expensive too. Since it will be difficult for you to monitor until your child is two months symptom free, this May be a better/viable alternative. I don't know if I would look at a negative Western Blot and say "Oh good, the infection is gone". We know that you can have Lyme disease and still have a negative Western Blot. You may also carry IgG titers for a long, long time. Hope you see a big improvement in neuro symptoms in your child. Hugs, Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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