posted
I am going on my third month of Plaquenil and Biaxin and I have had it. This is the third time in the last three months where I become so flu like I can't get out of bed . I can barely talk on the phone because I don't have the energy. Has this happened to anyone else and is it a good sign or not? I thought over time you should feel better-not worse. The numbness,stinging and burning have become intolerable,as well. My LLMD doesn't seem to know-says that after time the body starts attacking itself.Please help!
Posts: 425 | From NY, United States | Registered: Mar 2005
| IP: Logged |
MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
I did get worse before I got better but do not remember how long that originally lasted. Probably three months at least.
posted
Though I haven't been on plaquenil and biaxin, my first 5 months of treatment went from bad to worse. I was on Doxy and Flagyl, Flagyl only three days/week, doxy every day. I started out herxing "only" when on Flagyl. But then it became just one long herx over several weeks. It was awful! I felt so depressed and worn out.
But then, after about 5 months, it changed. And I didn't get the massive herxes anymore. Unfortunately... it was about time to change abx, and so I am back to herxing again. Though this time I get more good days inbetween.
Amkdiaries; I don't know if this was of any use, but I just wanted you to know that you're not alone in feeling it that way. It is very hard to go through all that. Flares or herxing is the worst!! It is hard on the body as well as on the mind.
Hugs, Sigrid
Posts: 155 | From Norway | Registered: Jan 2006
| IP: Logged |
posted
I would check with your lyme doctor and see what he says. Mine says to back off treatment if herxes get to severe.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/