posted
It's been a while since I posted on here because of the computer problems I was having. I am glad to be back again. I am having bad back pain and leg pain. The pain starts off from my left side near my buttocks and inner thigh near my vagina, It also starts too from my lower back all the way down my left leg and it hurts so bad, My entire leg is severely hurting. I did test for lymes disease but it was negative. Sometimes I wonder if they were wrong. There are times when I can t walk or function because of the pain. MY dr finally put me on lyrica for the nerve pain. I have to go pick it up today from the pharmacy. Ther e are times when I want to cry because there is nothing I can do. It is making me go broke to see the doctor. For the last couple of days I have been taking aleve for the pain but I'm scared to keep taking that because of the de effects. I also have 2 cyst on each ovary. One on the left side is 5 cm and the other side is 3 cm. I am tired of all of this. COuld it be possible I have lymes but the lab said it was false? I feel like giving u pat times and people are starting to think I am a hypercondriac. Sometimes I feel like I have a tumor in my leg because of all of the pain and pressure when I stand up or walk. Thanks to everyone
Allison
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Ovarian cysts can cause pain. Do you have plans to have them removed? It makes perfect sense to me that that pain would be as you describe.
If you have Lyme, it could make what would be tolerable pain severe. People with Lyme seem to feel a lot more pain from the same condition as people who are otherwise healthy.
Lab tests for lyme are bad. Do you have other symptoms besides the pain that make you think you have Lyme?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Yeah, I do have other symptoms but nearly as bad as the leg pain, Sometimes my joints will hurt in my fingers and there are times when I am so sleepy, The other day me and my husband were out shopping and I got so tired all of a sudden, I felt like I was about to pass out, This has happened 2 times already. My doctor keeps teling me I have an autoimmune disorder because I have positive ANA. Do you get positive ANA when you have lymes?
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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Aniek
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Member # 5374
posted
I think some people get positive ANA with Lyme. Lyme can, in rare cases, cause an autoimmune reaction.
Have you mentioned the pain to the doctor who is treating you for the cysts? I'm not saying you don't have Lyme, but I know ovarian cysts are extremely painful. So treating them might help.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Actually I have seen both my gyno Dr and my normal MD and they have both looked at my leg. One said it could be neuropathy and gave me lyrica. My gyno Dr looked at my leg and just wrote out a prescription for birth control pils and for prednisone. I can't start the birth control pills until my next cycle which is almost 2 weeks late because of the cyst. My blood work was sall good except for a bit of anemia. I will say that my leg pain really started hurting after I took my lifeforce vitamins which has alot of vitamins K in it.
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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posted
My lower back pain has been easing up since I started Malarone for babesia, even tho I tested negative. Is it possible you do have Lyme or an untested co-infection?
Posts: 277 | From NY | Registered: Jun 2005
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posted
Thats what I am wondering too. I'm sure there are alot of doctors who test for lymes disease but it's really the lab they use to test you with. It's weird though because my Dr went over the test results and told me I should use cats claw even though I tested negative. Now I'm starting to wonder if he knew more then what he was telling me
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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I'm so sorry to hear about your pain. I have also been having gynecological issues (3 cm cyst; fluid in endocervical canal and peritoneum) in addition to Lyme-like symptoms.
I recently tested positive for Bartonella, so I would really encourage you to find a doctor who will order this test from Igenex (as well as Lyme, Babesia, etc.).
I am not sure if all of my pelvic pain is attributable to Bartonella, but it does seem likely.
Hang in there.
Posts: 390 | From Oakland, CA | Registered: May 2007
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Yes, I have seen a rheumatoloist in March 2007 and she said it wasn't lupus but wasn't sure what it was. When I mentioned lymes diease, she laughed and said we didn't have it here in texas. I am scheduled to see a neuroloist in a few months. I did have an MRI in Jan 2007 and it was normal too. I guess I'm stuck at square one,
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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posted
We ended up losing our medical insurance a few months ago. Now when I have to see a specialist, we are put on a waiitng list and it takes months to see one. I'm lucky my gynocolist worked out a payment plan with me for the ultrasound or I would have never known I had the cysts.
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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Maybe this radiating pain is similar to mittelschmirtz but it occurs all the time instead of just during ovulation....
Are the birth control pills helping?
Maybe the cysts are causing your ovaries to release hormones that are irritating your peritoneum.
I have mittelschmirtz and it sounds very much like what you are describing.
Sorry about losing your insurance... That's the US health care system at its best, eh?
Posts: 69 | From Wisconsin | Registered: Apr 2007
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Yep, you are so right about the health care system in our country. It was almost $500 a month for just me and my husband, not including the children. Even then if you needed a special xray or test, it still did not cover it. I think $500 a month is a car note. I haven't started on the birth control> I have to wait for something to start which hasn't if you know what I mean. I think the cyst are to blame for that
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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quote:Originally posted by Allysp: Yes, I have seen a rheumatoloist in March 2007 and she said it wasn't lupus but wasn't sure what it was. When I mentioned lymes diease, she laughed and said we didn't have it here in texas.
posted
Just a thought-you might consider getting checked for polycystic ovarian syndrome (PCOS)-if only to rule it out. Simple blood tests can show if hormone levels are off. It is an auto-immune condition & can present with joint pain, missed/irregular cycles, weight gain, etc.
Sue
Posts: 249 | From finger lakes, ny | Registered: Jul 2006
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quote:Originally posted by susiecv: Just a thought-you might consider getting checked for polycystic ovarian syndrome (PCOS)-if only to rule it out. Simple blood tests can show if hormone levels are off. It is an auto-immune condition & can present with joint pain, missed/irregular cycles, weight gain, etc.
Sue
Good idea!
Posts: 69 | From Wisconsin | Registered: Apr 2007
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quote:Originally posted by Lymetoo: Sciatic pain can vary in location.
And there are plenty of people on this site who have sciatica...myself included.
The ANA can indeed be elevated due to Lyme disease. Most ducks wouldn't agree.
Count me in too
Never heard of true sciatic pain varying though... There is only one sciatic nerve per leg and it usually runs the same route in everyone.
There is no need to start an argument here. Posts: 69 | From Wisconsin | Registered: Apr 2007
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I am having simialr issues with ovarian cysts and pelvic, low back and leg pain. It's been unbelievably bad. Pfft...
The cysts are not terribly large multiple simple and hemoragic(sp?) about 3cm a piece. I was in menopause and started producing them suddenly and frequently.
I do think it's related to the infections and junk going on. They started on Babesia treatment.
The gyn wants to do a hysterectomy but I am stallling hoping it will stop, SOON! I also know the pain is from the cysts and fibroids as the Ultrasound sent me through the roof and triggered all the pain, again.
I hope you are able to get some answers and help. Sorry, I haven't more to offer but to say that the cysts can be miserable.
(Interesting about the Bartonella, ellie. I am untreated for it and definately am symptomatic.)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by Tori:
quote:Originally posted by Lymetoo: Sciatic pain can vary in location.
And there are plenty of people on this site who have sciatica...myself included.
The ANA can indeed be elevated due to Lyme disease. Most ducks wouldn't agree.
Count me in too
Never heard of true sciatic pain varying though... There is only one sciatic nerve per leg and it usually runs the same route in everyone.
There is no need to start an argument here.
*nods*
I have nerve pain down my leg that isn't siatica, seems the nerve it's following is femoral. I don't know what you'd call that. Other than ouch.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Funny that you mention PCOS. I did mention that to my gyno Dr after he did the ultrasound and he said I didn't have it. No blood test was ever taken. This isn't the first time I've had cyst. There was one time last year that I had woke up to use the bathroom. Right after I used it, I could barely walk. I barely made it to the bed and I begged my husband to go to the store to buy advil. It hurts so bad I couldn't walk. I took 3 advil and a few hours later, I felt better. I think a cyst ruptured on me. I never told my Dr because the severe pain went away after I took the advil and went to sleep. I know my gyno found a cyst on me when I first got pregnant almost 2 and a half years ago. I begged my Dr to test me for PCOS and he said my hormones were fine. In fact, he got mad at me for asking. I think I could have PCOS. Last year my normal MD did a 2 hour glucose tolerance test on me and told me I had prediabetes. I wasn't put on any medication but now I am making the connection to the cyst and the prediabetes. Besides the cyst, I also have pain under my ribcage that comes and goes. One time I was hurting so bad in my lungs. My Dr did an xray and he said everything looked ok. He said it was probably more my ribs and muscles causing the pain. The pain comes and goes in that area. I also have very bad fatigue. The other day, I could barely get off the couch because I was so tired. A few days later, my husband and I went shopping and I felt like I was about to pass out just standing there. Something is up with me, just don't know what yet.
Posts: 31 | From beaumont Texas | Registered: Jan 2007
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I hope the Lyrica helps.
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