-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Thanks VOT,
I don't profess to have all the answers, but I do deeply believe everything I discussed on the interview. I think a broader perspective is a better chance of recovery. I am happy to see tht you are already considering many of these things on your journey as well.
Some of the things I hold most dear now like ART are things I also would have considered utter nonesense years ago. Fortunately, I have become very open to considering all options. Some have been helpful; others not.
As for financial interest, I've had people approach me to sell information that I freely offer on my web site. Any affiliate sites that may pay money back to my web site are clearly noted on the site with a disclosure statement. I also use these affiliate dollars for promoting and supporting Lyme projects and trying various products, reviewing educational materials, etc. which then become part of the content I share on the site.
I am glad that you enjoyed the show. I had fun doing it.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Any affiliate sites that may pay money back to my web site are clearly noted on the web site with disclosure statements.
****** So you DO make money off of this in some way- see, that is what I don't like. Difference of opinion I know. I do like YOU and much of what you post btw, just I don't like the moneymaking thing- but lots of people don't care I know!!!
But I do like you and think you are a good guy regardless. With important info to share!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I guess I would be better then not to mention it on the site at all? Do you realize the Lymenet takes donations to fund their operation? Do you realize that the Public Health Alert takes advertisers to fund the publication of the paper? It doesn't mean that any of these people are making a significant amount of money, if anything, on what they are doing.
My site is not about money. It was there long before any affiliate program I was involved in. In fact, one affiliate program got to be such a pain, that I took down the affiliate links and just link people directly to the company - thus making zero - though I still believe and support their products and think they help people so I still endorse them. I did get $26.00 at one point.
I hope that people benefit from the radio show, but I don't want to continue to debate the web site. Take it or leave it. My intentions are good and I hope that people benefit - as I said - everything on it is free. I have never asked for money and never sold any of the information that I offer.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Just a note in Scott's defense (as if he needs it), it costs money to create a web site and keep it going year after year. He either pays from his own pocket, or he can use the kickbacks from the links. I don't think there is anything wrong with that.
Scott, how would I find ART testing in AZ? I'm sure insurance doesn't cover this?
Posts: 2903 | From AZ | Registered: Feb 2006
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
It is hard for me to believe that we would distrust someone who has done as much as Scott. I have met and spoken with Scott at 2 conferences. It is my belief that he is truly working for the greatest good for all Lyme patients. Now, you don't have to agree with his methods, but, there is no doubt his efforts are true and that he expends multitudinous amounts of energy and spends more money than he can be making on his website. Please lets not chase him away.
If you wanna pick on a bad guy ...... go pick on Bush. So there, I said it!
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I wondered and asked Scott but the more I think about it the more I appreciate all the info he is bringing us. Let me tell you it's not easy to write up a whole conference like he did and so clearly. Let him make a little money and he's being honest about it.
Posts: 2276 | From united states | Registered: Jun 2004
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Scott has spent time and money (conferences aren't free) to provide the information, not to mention the education and expertise it takes to build a website. It also costs money to buy space on a server to host it. Then there is the cost of software etc...
Most websites are much less invasive than the advertising we are forced to watch if we want to watch a TV program. The informational content is there to read on Scotts website for free. You don't have to click through on any of the ads if you don't want to. If you would rather not contribute to reimbursing Scott for his expenses and time, don't buy products through his site. If you don't like it that he may recoup part of his costs - don't use his site. It's as simple as that. Just don't ruin it for the rest of us.
I personally have bought things through his site because I needed the product and felt it was reasonable to give back a little for all of the time and expenses he puts out in order to provide some very useful information.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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bettyg
Unregistered
posted
Scott, i just got in on this post so this clears up a few things for me.
your web site which you make a little money off of; that's why you can no longer mention this here on lymenet .... ok, finally got that.
scott has offered a lot of food for thought, etc. since i began reading his posts. he's always been very polite and never starts fights; a rarity on this board with lyme rage.
scott, i still haven't finished your 42 pages of detailed, organized notes from HOPE TO HEAL but will in future.
When I printed it out in 100%, it was in ARIAL....love you for that for this LOW vision lymies which i'd discussed many times with you about your web site since i could not read it as is!!
WOW, an index to find out where things are in your entire hope to heal package! that takes a great deal of time.
i've received complaints about my newbie package of links, advise, symptoms, tests, and disability that it has no index, etc. well, it's too much for me, and since i add things daily; it would mean revising all those pages numbers ... a no no on my time/ENERGY!
i applaud scott for ALL HIS LABOR OF LOVE in taking these detailed notes and sharing FREELY with all of us who can't afford to go and/or in bad shape and physically can't make it.
scott, what did you do in your PREVIOUS PRE-LYME life? you do outstanding work!!
he shared freely his LYME GREEN AWARENESS BRACELETS which i wear! thanks scott! i had the bracelet on my dressed mannegan in my library display.
yes, it takes money to run a web site; i don't have one so unaware of the costs involved.
this also explains why you can afford to go to lyme conferences, flying, etc...it's from the profit you earn on your web site by educating yourself more, and in turn....educating US!!
scott, please continue to share freely your wealth of info available to you which you offer us! i've learned so much from you.
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robi
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posted
quote:Originally posted by bettyg: this also explains why you can afford to go to lyme conferences, flying, etc...it's from the profit you earn on your web site by educating yourself more, and in turn....educating US!!
I am not sure, but I doubt that the web site pays even a small fraction of the conference fees.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Scott, it's a tough life on this board, isn't it?
If the reason for staying here were dominated by anything else but sharing to help what we have learned through ART and the generosity of some brilliant medical doctors, mainly Dr. K., -- I know both you and I would be long gone.
Hang on, dear friend. You and I are helping a lot of people that we never hear from on this board! And I have learned to consider the Nellies sort of a black ugly picture frame that just doesn't fit around a wonderfully fresh and colorful, uplifting water coloring ----- I have become a master in ignoring them leaving them to their permanent misery from which they seem unable to escape.
Hang with me - you are doing good, good things.
Fondly - Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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kelmo
Frequent Contributor (1K+ posts)
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posted
Actually, Gigi, I don't think he was barraged with negativity. It was only one person who questioned him making a "profit" from his website.
I'm not sure you can call it profit, you would have to sell a lot of merchandise to pay the annual fee of running a website.
Actually, the response to that one person's comment really shows how much support he has. Let's not make this a war, it's thread of appreciation.
Posts: 2903 | From AZ | Registered: Feb 2006
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I do appreciate the information you provide here and on your website.
Peggy
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Thanks for the kind words. We are all in this together and I am still finding my path. Don't have all the answers yet, but I hope that by sharing our information and learning from each other, we get closer to that day that we feel truly well. I'm very optimistic.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Hi Scott - your mailbox is full...
Posts: 13117 | From San Francisco | Registered: May 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Resolved - prefer emails via my web site though as I don't check PM as much.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Kelmo, I am not referring to the negativity solely re this post. I am referring to the negativity and/or closed-mindedness toward posts in general when they are offering alternative ideas in general.
I do not care to start a war - far from it. But there are plenty of accusations in this thread alone that are unwarranted, out of place, offensive at least to me, and have nothing to do with the purpose of this thread. You will permit me to state this - I hope?
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Dear Scott, I just want to express how much I love your site and enjoyed hearing your interview. You are such a giving caring guy. You have always been so helpful to me and many others. Don't let these negative, rude people get you down. Many Blessings to your healing. Joyce
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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Just want to say I appreciate all you do for us lymies. Also, consider putting on your web site, betterhealthguy.com some way to leave you "a tip"-- maybe via paypal? Or a link to a gift from amazon.com?
Glad you and GiGi can roll with the disagreements. It's crazy to think that we all have to agree, especially on a topic as complex and nebulous as lyme. There are many paths to healing.
best to you -
Posts: 211 | From NC | Registered: Dec 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Gigi--of course!
I'm sure a lot goes on behind the scenes that I am unaware of. To me, the post thread wasn't hostile. But, you may be more sensitive due to something that has gone one before, or something you see that I am completely overlooking.
Just know that you two are appreciated. Everyone is on their own journey with this disease, and the more we hear, the more we have to choose.
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