Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Lyme Family >>>>>,
Don't know what I might have done or eaten different than normal...nothing I can think of...
I did catch my foot and trip again... unfortunately common for me... yesterday evening.
I sleep sitting part way up...last night my right leg jerked so hard and went out stiff,that it pulled in my groin area.
Happened again late night/early AM. Bad dream: wild animal 'invisible' trying to pull me out of my chair... Jerking again..hollered out in my sleep and woke up TxC'.
Still sore and tired...don't know what is up... maybe more seizure like issues?? Been awhile and that usually starts in my neck/arms first.
I take a variety of supplements and vitamins...but not sure what would cause this...
I probably have babesia from what I saw in my blood slide smears Dec.1st so dealing w/ the three dreaded B's.
This was just unusual... I feel under attack and even a little paranoid, and fighting continuing head ache. Also going between to hot and sweating,and cold chills...annoying, Oy!
Any tho'ts on what might be up/ Stress ? Weather? cold and snowy now ...storm was coming in last night.Also yesterday ended up being a stay home 'Imodium day'.
I do a Fish oil blend, Cinnamon, Cats Claw, Resveretrol etc. [ the simple low dose Buhner Protocol]. Magnesium , Vit.D , Methylcobalamin B-12 and so on.
Ideas ,input tho'ts appreciated!
Thank You !!!
Jus' that Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Sorry you're having such a tough time of it. Sending you healing thoughts.
Posts: 251 | From Florida | Registered: Aug 2011
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Jimmy1 >>>>>,
Thanks for the healing tho'ts,and the PM !!
it was a rough night...still not sure what is up, but I hope tonight is much more peaceful.
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
Hi Silverwolf! I'm so sorry this is happening - these symptoms are scary sometimes aren't they?
I'm no expert but it sounds like Lyme to me - I used to get violent limb or partial/whole body jerks both while awake or asleep, no matter if I'd been active or stressed recently or was perfectly calm and relaxed.
Are you not able to be on antibiotics for Lyme?
It sounds to me like you are saying these symptoms are increasing in frequency and maybe intensity?, and you mentioned you haven't changed your treatment protocol recently.
I hate to say it but it sounds like your Lyme is worsening and you might need to get onto some antibiotics. Just my non-doctor opinion. Do you have an LLMD?
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< nenet >>>>>,
I do not have a Doctor per see , It is difficult to find LL help in Idaho.
I recently went to a 'Naturopathic team'[one is a retired general surgeon], they had some great ideas, but they don't prescribe antibiotics.
They did recognize Lyme and some other issues...as seen in my blood smear slides.
Problem is, w/o insurance...I paid to see the 'Doctors' but then cannot afford the treatment herbs/supplements and so on.
I may have to go to a 'Doc in a Box' type clinic and get some Antibiotic for allergy/sinus respiratory issues, w/infection. Have to be super careful what I take now...darn allergies.
[ BLM has decided to re-seed w/ grasses, the fire zone in the hills above us., now in Dec. in 10 and 20 degree weather].
Trying to find something inexpensive that will at least be antibiotic like...
I'm sure the Lyme and Co's are reactivating and acting up...w/o proper treatment...just the caught me by surprise last night severe leg jerks and all.
Thanks for the input.
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
I'm just so sorry you have to go through this... Is there not a low income clinic near you? sliding scale or flat $10 co-pay... And just have a really tough bronchitis or something .until you can figure something out....Please get so kind of care. I just lost my 52 yr. brother fighting system ,never said the LD word... When he visited we got him on a city plan by income... But he had to get back to Arkansas to get his belonging's... He never made it back for medical treatment............
Heart issues, ear issues, chest/Bronch issues and yes they will ask a million lame questions..
Like mentioned above internet purchase???/
Not a doc , I can't believe so many of us can be medicated for months and not be jumping and doing flips... It's just a miserable illness
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< nonna05 >>>>>,
Sadly the 'Slide-fee clinic' here overcharges and prescribed a med they were warned I was allergic too. We payed what they asked [and we have the receipt] and they still keep trying to make us pay more.
They used a different sounding name for the meds and I didn't think to check the Net for info. But I believe they knew,
[because we wrote down Crestor and Lipitor on the allergy info'], I am still having issues from the wrong meds [statins].
One of the local larger chain dept. stores has the 'Doc in a box'. Their prices are posted for Sinus-respiratory, UTI and so on so I am going to try and save up and go,if this doesn't calm down right quick.
At least I got some sleep last night tho' am up a bit earlier than I wanted... dogs woke me up.
I am so sorry you lost your brother, May The Lord bring you comfort in this time of sorrow.
Extra hugs and continuing prayer for you <<<<< nonna' >>>>> TxCoord and I both lost family members this summer ,and it is so difficult.
Thanks for your reply and the tho'ts and ideas!
<<<<< jimmy', nenet, and nonna' >>>>>,
Thanks again so much for each reply!!!
I am feeling a bit better this a.m. [tho' really achy] but I know I'll need to get more meds.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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TxCoord and I both lost family members this summer ,and it is so difficult. 
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