LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme relapse , babs herx or both?

 - UBBFriend: Email this page to someone!    
Author Topic: Lyme relapse , babs herx or both?
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Since coming down with one of the worst cases of stomach flu that I've ever had,

Last week, I've been sliding downward.

I now have some type of bronchitis.....Have had pink eye in both eyes.

Am having panic/anxiety attacks again. Feeling like my throat is closing off and my

Face is numb. Increased air-hunger, dizziness, joint and muscle pain, brain fog and fatigue.

Have tingling in my toes followed by pain.

I am just scared.

I started back on my babs treatment on Friday of last week once I could hold food down.

Started back slowly, but am up to four malarone a day and 1000mg of biaxin.

I am to see LLMD next Tuesday as I had to miss last appt. due to stomach flu.

Did I mention I am scared?

I know that Lyme is slow to come back, but is it possible as I have only been on

Rifampin, zithromax, bactrim and now biaxin that I haven't really hit the Lyme since December?

Anyone think it may be time for doxy again?

I had panic/anxiety attacks prior to being dx. and placed on doxy.

Thank goodness that went away fairly quickly on meds.

Any advice/suggestions would be deeply appreciated.

I am living a nightmare again that I thought I was past.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780

Icon 1 posted      Profile for Vermont_Lymie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Geneal,

So sorry to hear that you are not feeling well, I hope you feel better soon.

Please hang in there! I would place my bet on your renewed feelings of anxiety as being either due to the lingering effects of the stomach flu, or a herx/adjustment to the malarone and biaxin. I don't think it is a lyme relapse.

Just one malarone made me feel that way that you are describing, so I am amazed by your toughness in taking four of them plus the biaxin!

Zithromax definitely treats lyme, and I believe Biaxin does too. Not sure about bactrim -- it might. I have heard llmds say that no one knows for sure whether rifampin treats lyme since it has not been tested in vitro (though clearly there is lots of clinical experiments!)

The first thing is to heal your stomach well. These feelings will pass, and you will feel better than before! If things get too bad, you should speak with your doctor about cutting back until you feel better.

I had the same experience as you -- doxy quickly took care of anxiety/panic attachs, but they came back after starting malarone. It took me 7-8 weeks to adjust to the malarone, or get past the babs herx, I hope you do it quicker! Take care

Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Marcie
LymeNet Contributor
Member # 10070

Icon 1 posted      Profile for Marcie     Send New Private Message       Edit/Delete Post   Reply With Quote 
HI Geneal,
I am so sorry this is happening to you. I know how hard it is to have many gains, then backslide.

It can be very discouraging.
With the anxiety attacks, air hunger, and dizziness it could be a babs herx. If you have

stopped the meds and then restarted your body could be adjusting again. Four malarone is a

lot. I am only on one and have bad herxes. We just added bactrim and I had to stop because it

was too much for me.
Your body is also recovering from a severe flu, so your immune system is not where it should

be. I would see what your doctor says and wait it out to see if the symptoms get better. This

disease is such trial and error.
Let us know what happens. Hope your feeling well soon.

Posts: 323 | From Michigan | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you so much for your invaluable insight and words of wisdom.

If this is a babs herx it is the worst one I've ever had.

It is so discouraging. Maybe I will back off the malarone a little today and

See if I feel better.

This darn disease and co-infections are really taking a toll on me.

It's the "been there done that" feeling to only have this occur over again.

Those panic/anxiety attacks along with the sensation of throat swelling,

Numbness and air hunger are terrifying.

I had prayed to never feel this way again.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope it's a Herx!!!!!!!!!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Sarah.

I know you've been around this block a time or two yourself.

Hope the husband is doing well.

I still think of Annie-bannanie every time I see you post.

It makes me smile.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
Geneal,

You are in good company.

I'm there too. Babs herx kicked my butt like I couldn't believe. The anxiety and dizziness almost put me in bed for a few days.

Rest assured.... It's a herx and it will pass.

It is so hard to tell yourself that its just a herx and it will go away in a day or two.. but honestly.. I'm in the same situation. It's getting better by the day... Hang in there. You will get over this hard time.

Also.. the next Babs herx won't be this intense.. so you've done the hardest work already (so to speak)

It's a herx.. its a herx its a herx...

If you are like me.. babs herxes come and go quickly.... write back and let us know how you are feeling.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041

Icon 1 posted      Profile for merrygirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Geneal I hope you feel better soon.

I have no words of wisdom but wanted to let you know I am hoping that you get over this super quick!


Melissa

[kiss]

Posts: 3905 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Geneal

I don't have much answers to your questions, I think only time will tell. Just wanted to say ~

hang in there [kiss]

and hope you can feel better soon [group hug]
Dana

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all so very much.

I know I am in the finest company here.

It helps me to know that.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
MommaK
LymeNet Contributor
Member # 10376

Icon 1 posted      Profile for MommaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Geneal!

Hope things are looking up!

I would also ask Dr F about taking 3 malerone a day at least until you feel better.

He lowered my daughters dose from 4 to 3 because the herx was so bad the first time around. He said her weight was on the border line of the dosage cutoff anyway.

It made a difference. Before she was having to take a break from the med to get over the herx, and stay out of the ER.

If I recall you posted your size before and you probably are near the cutoff also.

I think I read about a cycle for babs. Maybe this could also be the hardest part of their life cycle?

Thanks for the PM. I did reply but somehow deleted the post! Will try again later today!

Hugs back at Ya!

MommaK

Posts: 242 | From Mississippi | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
wiserforit
LymeNet Contributor
Member # 9732

Icon 1 posted      Profile for wiserforit     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey Geneal!

I'm so sorry you are going through this! I am with you in spirit, since I began my Malarone adventure a month ago.

The first two weeks were do-able herxes, but by week three it was getting intense and by week four my gut involvement was so intense that I'm on a Malarone break.

The anxiety always feels like an insult, doesn't it! I was perking along on Amoxicillan with arthritis stuff but a clear head. Then I added two pediatric doses of Malarone and I feel like a weepy, exhausted, nauseous crazy woman.

Monkey-mind gets going and I start wondering if I have other TBIs and should I be on other medicines. Slow and steady wins the race, they say... have to "keep on swimming, keep on swimming...."

PM me to commiserate anytime -- I'm around a lot lately with these new woozy symptoms.

Sending love and strength vibes,

wiserforit

Posts: 508 | From Banks of the Hudson | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
wiserforit
LymeNet Contributor
Member # 9732

Icon 1 posted      Profile for wiserforit     Send New Private Message       Edit/Delete Post   Reply With Quote 
P.S. Are you sure it was a stomach flu? Just asking because week four of Malarone has turned my guts inside out! [dizzy]

Soothing thoughts with bicarbonate of soda,

wiserforit

Posts: 508 | From Banks of the Hudson | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am definitely sure it was the stomach flu.

My children both had it before I did.

I never, ever get stomach virus'.

This is my second go around with Malarone.

No issues with it before.

I even heard from an aquaintance yesterday about a friend who was hospitalized

Last week due to dehydration caused by the stomach virus.

I guess the valcyte really lowered any natural defense my body has/had

And this bug really got me.

That part is over (Thank God). Now I am dealing with some type of sinus/upper respiratory infection.

With my luck, I probably aspirated some of the throw up.

I am going to see LLMD this week. Hope to get some answers.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
pippifern
Member
Member # 11564

Icon 1 posted      Profile for pippifern     Send New Private Message       Edit/Delete Post   Reply With Quote 
HI Geneal,

I hope you continue improving. I just PM'ed you before seeing this thread, so I didn't know you were going through a flare-up... Sorry to hear it.

And I hope your long trek to the LLMD is not too draining. I recall you have a long way to travel to see her/him.

Best of luck to you.

Hugs,
Pippi

--------------------
To our good health,
Pippifern

Posts: 36 | From Cape Cod | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
lymednva
Frequent Contributor (1K+ posts)
Member # 9098

Icon 1 posted      Profile for lymednva     Send New Private Message       Edit/Delete Post   Reply With Quote 
Biaxin should help out with a sinus/upper respiratory infection. I was rx'd Biaxin several times for sinus infections before I made the connection that it was keeping me awake at night every time I took it. However it was effective at knocking out the sinus infections.

Now my LLMD and I have concluded it was probably a herx those many years ago, just didn't know why it was happening. I am beginning to sleep through the night again, thankfully!

I hope you are able to resolve this soon. It's no fun having infections to deal with in addition to the TBI's.

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
surg
LymeNet Contributor
Member # 6937

Icon 1 posted      Profile for surg     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sometimes I have mixed up yeast herxes with babs herxes. Make sure you don't have yeast. Maybe ask for diflucan and see if it calms things down. Yeast can come on really fast.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been on Sporonax, once a day for 30 days...

I don't think it is yeast.

I took some mucinex last night and am finally moving some of this chest congestion.

I think this is all related to valcyte, which I have been on for extremely high CMV titers.

It really does lower the immune system.

That combined with Lyme and a babs herx....Yikes!!!

I am going to speak to LLMD tomorrow about this.

Did I mention I also got pink eye?

It is one thing to be not well with Lyme and babs.

It's another thing to be sick with other illnesses on top of this.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
LymeNet Contributor
Member # 10435

Icon 1 posted      Profile for Visual Afterimage Man     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hang in there...

*Feel Better*

Did you call the dr and let them know what's going on?

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.