posted
Two months ago, I experienced the oddest thing yet from what I hope is the lymes.
It felt like little painful explosions were occuring in the right back side of my brain. then followed immeadiately by blurred vision, difficulty speaking, and a feeling of not being able to control my body or get my hands and arms to move.
Since then I have had pounding headaches everyday. Does anyone else have this specific problem?
Posts: 5 | From San Jose, CA | Registered: Jul 2007
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tailz
Unregistered
posted
I'm not sure about this one - I've had headaches. What worries me is the fact that you experienced a period of blurred vision, difficulty speaking, etc...
That could be signaling an impending stroke:
- Sudden numbness or weakness of the face, arm or leg, especially on one side of the body - Sudden confusion, trouble speaking or understanding - Sudden trouble seeing in one or both eyes - Sudden trouble walking, dizziness, loss of balance or coordination - Sudden, severe headache with no known cause
I would definitely call your doctor ASAP.
It could be nothing, but I'd rather be safe than sorry.
By the way, do you use a cell phone? This could be causing it, too. Which side of your head do you hold the phone on? Check the link out in my signature.
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
I'm dealing with the same thing now.
My doc has lowered my meds and my head is killing me.
Also have slight ringing and pain in my ears.
Could be lyme encephalitis or meningitis. Also could be vascular.
Diuretics help with the fluid buildup. I take aspirin with coffee for pain and have noticed that ice to the head helps with swelling and pain.
I hope this helps. I know just what you're going through.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6159 | From Columbus, GA | Registered: Jul 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i had this strange thing happen too. in fact, i was sound asleep but then, all of a sudden, i got a horrific, stabbing pain in my head. words cannot express how painful that stabbing sensation was. i got up, or i tried to, and went to my knees.
i was so nauseous i thought i was going to throw up and was dizzy. my face hurt, my eyes hurt, everything in my head hurt so bad.
now i get right sided numbness, severe tinnitus, whole head problems....
doctor found nothing wrong....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Hi petulalee - I too, experience these terrible headaches followed by the inability to talk and whole body weakness.
Last week I experienced what I call an "electrical storm" headache. I felt like my brain was being fried. I was dazed, unable to move, and profoundly weak when it was over. The pain seemed to be deep and centered in my head.
All day long I had jaw pain and a knifing headache prior to this terrible attack.
I am being treated for bartonella with levaquin right now. I think bartonella may have something to do with this but I'm not sure.
Take care - lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
Sudden symptoms like that sound like a stroke. But lyme being a "great imitator" might be the cause.
I've had some similar symptoms which have generally appeared upon waking in the morning, including foggy vision in one eye, blind spots, the flashing colored lights of a migraine, dizziness, sound sensitivity, headache, and more.
After years of trying many thing, I found that boosting T4 thyroid hormone levels (via supplementation Synthroid or Levoxyl) helps abate the symptoms. Blood tests do NOT show me as being low on thyroid hormone. I've consulted with many top thyroid specialists, and none can explain the connection. I chalk it up to yet another bizarre lyme effect.
I've found that minimizing light exposure also reduces some of the symptoms, particularly the headache.
Posts: 727 | From USA | Registered: Mar 2006
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posted
I've just recently come back to this board. I was diagnosed about 2 1/2 yrs ago by one doc then told by another that it was a false diagnosis. Now I'm fighting to be tested again.
YOWZA!!!! Does this all sound familiar. I've been fighting with doctors (ducks) for 3 months now over these same things. It all started with headaches that wouldn't go away, accompanied with some facial numbness that went away after the worst of the headache left and weird flashing floating lights. Mine were mostly in the back of my head, but felt like it was going to explode any minute. At 1st it was "Oh, it's just your migaines (which I've had for years) altering their patterns". When the new meds the doc gave me didn't work, after having a constant headache for over 2 months, he finally sent me to a neurologist who started running tests. Since nothing was showing up, he gave me some meds to "help with the headaches". The meds did take away the constant part of them somedays at least so I got a bit of a break. Then when the numbness didn't go away with the worst part of the headaches, I started having spells where I felt like I was trying to float away and all my voluntary muscles were totally useless (I feel like a rag doll - feels really weird when it happens - still happening some) and I developed symptoms of a possible stroke, vision problems, sluurred speech, droopy left side of face, balance problems, concentration problems, a dry eye (no tear production), and a lot more, I was sent to the hospital.
Well, the tests showed no stroke or any related incident, though the neurologist did talk to me the night before discharge about Lyme, and I thought he was ordering me tested for it. There was even blood drawn the next morning before I was discharged. Well, when I went to see him this week, he didn't have "any test results for anything like that" in my chart, tho "the hospital may have forgotten to forward them to the office, so call back in a couple days; in the meantime, I think it's just your nerves so here's a script for some zoloft and I'll see you in 8 weeks." GRRRRRRRRRRRRRRRRR!!!!!!!!!!!!!
I told my husband I'll give him until Friday morning and if I don't hear anything about the tests by then I'm going to call the doctor that did the original testing on me a couple years ago and ask her to retest me. I'm sure she will.
Good luck with yours too. It's good to know my symptoms aren't all that unusual. Ethel
Posts: 10 | From Humboldt, TN USA | Registered: Dec 2004
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Please get yourself tested and evaluated by a lyme-literate doctor! Your symptoms are serious -- obviously something is very wrong.
It sounds like a pretty classic case of neuro-lyme, though other conditions can cause similar things... but whatever is going on, it needs care. I went through years of being told it was 'just migraines' or depression, or stress, or I was attention seeking, etc. etc. etc.
When I finally got a proper western blot (from IgeneX) I was definitely positive on *9* bands, with several others indeterminate -- a result even the CDC couldn't discount (except to take issue with IgeneX, which they do).
I'm not saying you have lyme for certain, only that your symptoms indicate that lyme is a real possibility, and that whatever you have, it needs proper care.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Could these symptoms be cased bybrain inflammation? Lyme incephalitis/meningitis? Has anyone tried treating them with a list of anti-inflammatories like fish oil and proteolytic enzymes? Just wondering.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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