posted
I have just posted this in the general section and someone suggested I posted it here. I suffer with dizziness most days and sometimes full blown vertigo. Doxy made me dizzier and dizzier until vertigo on 6th day, lymecycline did the same. I have tolerated amox for 2 months and on week 8, started getting dizzier and dizzier and today vertigo so I couldnt move for 3 hrs, now I just feel sick. Has anyone else experienced this, does it get better? I can tolerated most things but this is making me feel like giving up on the antibiotics. Thanks Chris
Posts: 22 | From England | Registered: Jan 2004
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I also experience vertigo from lyme and I know how awful it can get. Mine is like my head is spinning like im on a spinning ride or something. It makes me feel nausous. I havent really fuond anything that helped it except xanax sometimes. I am not sure why it works, but it helps. Try telling your doctor about it and see what he says.
Good luck, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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Have you found that antibiotics make it worse or do you just get it on and off and dont associate it with the antibiotics?
Chris
Posts: 22 | From England | Registered: Jan 2004
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Itsy_bitsyone
Unregistered
posted
My first bout with vertigo lasted three months.
It was worse when laying down, its almost gone now. It started right after I upped my gabapentin, and while I was on Levaquin for the first time for an ear infection with pnemonia.
I slowly weaned off gabapentin (which could be a cause), I finally have had 90% of that mucous drain (after yet another cold last month), and have been on Daxy now 2+ months...
So, was it Lyme, an inner ear infection, Levaquin, gabapentin? No clue. But it was one of them...and getting better now.
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posted
my vertigo symptoms improved greatly when I added Tindamax (variation of Flagyl) to my regime: Doxy plus Tindamax was the best combo for me, after trying many other standard Lyme combos with a well-known LLMD.
If I go a week or more without a day of Tindamax I feel the vertigo return.
I was taking Tinda on Mo-Wed-Fr and now I am trying something different, taking it on Mo-Tues instead.
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Ive had a chronic low grade vertigo for 3 years. Its worse around strong chemicals and mold. Which is unfourtunate because in my house there is mold and it doesnt even bother my parents.
I used to get it maybee once or twice a year but 3 years ago it became chronic. Nothing has helped.
Attacking candida and toxins with binding agents it what Im doing now.
Posts: 2905 | From New England | Registered: Sep 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Yes, this is a new symptom for me - have had it for a few months, very debilitating. Don't know if it's because I added Doxy to the Rifampin (I didn't have this symptom when I was just on Doxy three years ago), I'm also worried for me that it's Babesia because I haven't treated that yet.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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My vertigo began when I first started taking Ceftin for a sinus infection. The next week I was diagnosed with Lyme so I have been on antibiotics since. So could the antibiotics be causing the vertigo? It might be since I have been on antibiotics since. I also notice that my vertigo is worse on certain antibiotics then on others.
Good luck, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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Greatcod
Unregistered
posted
President Bush had an episode of vertigo after he was "cured" of Lyme. Makes me wonder.
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posted
Yep sorry thats me, on Eurolyme too, trying to get info on the vertigo. Its so hard to put up with if you think it could be the antibiotics making it worse. Seems it is quite common. Trying to see if it is connected to the headaches too. Thats true, you can get the same effect from a good night down the pub, come to think of it, the first time I got it really bad, was the morning after a lot of red wine! But I havent drunk for twenty years, honest!!
Chris
Posts: 22 | From England | Registered: Jan 2004
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High dose steriods clear it for me, but of course they are a no-no for lymies.
Thyroid hormone reduces it for me, but only if I supplement enough to be considered hyperthyroid by conventional measurement. Unless you also have thyroid problems, it's unlikely anyone will let you try the hormone.
Posts: 727 | From USA | Registered: Mar 2006
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posted
. Vertigo is spinning or feeling like things are moving , How many have severe dizziness but not true Vertigo? Also how many have Sinus and ear problems? I seems like most have a sinus/ear like infection. My thoughts are It's a fungal infection. This would be why ABX. seem to make it worse ?
Abstract, "Up to now, the cause of chronic sinusitis has not been known," say the Mayo researchers: Drs. David Sherris, Eugene Kern and Jens Ponikau , Mayo Clinic ear, nose and throat specialists. Their report appears in the September issue of the journal Mayo Clinic Proceedings. "Fungus allergy was thought to be involved in less than ten percent of cases," says Dr. Sherris. "Our studies indicate that, in fact, fungus is likely the cause of nearly all of these problems. And it is not an allergic reaction, but an immune reaction." The researchers studied 210 patients with chronic sinusitis. Using new methods of collecting and testing mucus from the nose, they discovered fungus in 96 percent of the patients' mucus. They identified a total of 40 different kinds of fungi in these patients, with an average of 2.7 kinds per patient. In a subset of 101 patients who had surgery to remove nasal polyps, the researchers found eosinophils (a type of white blood cell activated by the body's immune system) in the nasal tissue and mucus of 96 percent of the patients. The results, the researchers say, clearly portray a disease process in which, in sensitive individuals, the body's immune system sends eosinophils to attack fungi and the eosinophils irritate the membranes in the nose. As long as fungi remain, so will the irritation. "This a potential breakthrough that offers great hope for people who suffer from this problem," says Dr. Kern. "We can now begin to treat the cause of the problem instead of the symptoms." More research is underway at Mayo Clinic to confirm that the immune response to the fungus is the cause of the sinus inflammation. The researchers are also working with pharmaceutical companies to set up trials to test medications to control the fungus. They estimate that it will be at least two years before a treatment will be widely available. The researchers distinguish chronic sinusitis -- sinusitis that lasts three months or longer -- from acute sinusitis, which lasts a month or less. They say that the cause of the acute condition is usually a bacterial infection. Antibiotics and over-the-counter decongestants are widely used to treat chronic sinusitis. In most cases, antibiotics are not effective for chronic sinusitis because they target bacteria, not fungi. The over-the-counter drugs may offer some relief of symptoms, but they have no effect on the inflammation. "Medications haven't worked for chronic sinusitis because we didn't know what the cause of the problem was," says Dr. Ponikau. "Finally we are on the trail of a treatment that may actually work." Thousands of kinds of single-cell fungi (molds and yeasts) are found everywhere in the world. Fungal spores (the reproductive part of the organism) become airborne like pollen. Some people develop allergies to fungi. The new evidence from the Mayo study suggests that many people also develop a different kind of immune system response.
posted
Al I get dizzy on a daily basis then sometimes it builds up to severe vertigo attacks. They are the ones that keep you completely immobile on the bed, head propped up with pillows, not able to move head a fraction or the room spins fast, they can last a few hours and if the house burnt down, I couldnt move. Horrible!
Chris
Posts: 22 | From England | Registered: Jan 2004
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quote:Originally posted by Myco: Mine comes and goes. Almost drove off the road last year I had it so bad and thought I was having a stroke.
Oh boy, Chris, same thing happened to me 1 1/2 ago. Also lost feeling in right side and strength at same time- I wound up in the ER. One thing different with me is I wasn't on any abx or any other lyme tx at all at the time. I had been feeling like crap, and had gone for an ionic foot cleanse about an hour before my "crisis". So, in my case I know no abx caused the problems. My LLMD put me on Levaquin 750 mg, Samento and Arteminisin. I am much, much better. No vertigo, dizzyness, loss of feeling. Still have headaches, loss of strength, and 0 energy. Get wiped out very, very easily, but something worked for the vertigo. My LLMD was thinking Bart which the Levaquin would have hit. Hope this helps.
-------------------- Valerie *********************************** "A woman is like a tea bag- you never know how strong she is until she gets in hot water." Eleanor Roosevelt Posts: 63 | From Jim Thorpe, PA | Registered: Aug 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
One of the only things that helps me with the dizziness / vertigo (and I follow this with vomiting), is believe it or not -- Tylenol. I stopped taking it for a few months, and began again yesterday. I take quite a bit of it; pretty much 1/2 the maximum daily dose, and I take it throughout the day -- before I start to feel dizzy.
This has worked for me better than Gabapentin or Celebrex. I asked my LLMD why it's working, "We don't know exactly how Tylenol works".
It seems odd, but I've been able to manage my symptoms well enough for two days now...If I can get my symptoms under control, I'll post yay! and let you all know.
I'd be curious to find out whether Tylenol taken throughout the day helps anyone else.
With best wishes,
CBL.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
I think tynelol is same as syndol over here, contains, paracetamol, caffiene, codeine and a antihistamine. (Is that right?) I too, take pieces of syndol throughout the day, which is the only thing that helps me cope, thats where I think the headache part comes into the dizziness too.
Chris
Posts: 22 | From England | Registered: Jan 2004
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Hi Chris,
Tylenol is Acetamenophen. I should look into syndol, though caffeine is hard for me to tolerate; perhaps I will research the other ingredients for me.
What I forgot, but vividly remembered last night at 2AM when I woke up having to go to the washroom, is that if I've been pushing it before I go to bed, when the Tylenol wears off -- last night it was 2AM -- I have an event with dizziness, and then throw up.
Gosh, the symptoms of this disease are so difficult to manage.
Wishing everyone a lovely, and healthful day,
CBL.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
For those of us with severe dizziness / vertigo attacks:
Why is it that putting something cold on my spine improves matters? I managed not to vomit during an attack last night by doing so.
Do we have lesions in our spines? Could it have something to do with the spine?
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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